Thanks for your replies. Don’t understand why up until yesterday previous doctors refilled my pentasa prescription after every yearly visit for years with no further explanation. Who is to know if I...
I have had crohns for 25 years. I have been on pentasa since day 1 and have always done well…no surgeries…only two hospitalizations, one of which was when I was diagnosed, one when I had fevers. Have...
On day 8 out from positive Covid test. Luckily no breathing issues, but very sick with about every other symptom. Hoping my body bounces back with no lasting problems. Right now I feel like my...
No, it is inflammation of the tendons in my wrist/thumb. Doc says it is de quervains tenosynovitis. 😵💫. After a month of it not improving even after wearing a brace, they took-rays and see that on...
I have been suffering with tendonitis in my wrists since before Christmas. I just read that crohns can cause tendonitis…and peripheral arthritis could be a possibility too. Does anyone suffer from...
Thanks for your reply. My gastro dr. Suggests I give the generic a try before taking the next step to appealing for the pentasa. By the way, pentasa certainly is not inexpensive. Without insurance it...
I know some feel pentasa is useless, but I myself have been on it for my Crohn’s disease for over 20 years and it has worked well for me. Suddenly my insurance company says that a generic will be...
Did you have any flu like after effects from the vaccine?...
I am assuming without seeing a dr....What do you do for it...what shampoo and soaps or creams, or what do you use that does not make it worse. I know the cold and dry air is not helping. I read that...
I love ice cream, but feel so much better when I do not eat it, so I try to stay away from it. Can’t munch on popcorn or chocolate...what do you snack on? Sometimes I will have a banana or grapes, or...
Have not gotten anywhere as when my dr. Ordered a rheumatologist referral for me the rheumatologist said I should see an orthopedist. I am going for physical therapy for my back pain, IF my ins....
Thank you for your replies and suggestions. I walk daily, do housework and shopping and help a little in the garden, slower than usual but I think I do a pretty good job of keeping moving. Wish I...
I have had back and muscle pain for over two years. I was told two years ago by the dr. It was from grief and guilt over my daughters passing. Dr. said my neck and shoulders were as tight as anyone...
JaSanne, I hope that you continue to recover and heal and feel a bit better each day. You poor thing. How scary. I too did not know that this was shingles. I thought it was a blemish, and it was over...
Thank you all. Things are looking much better. I just finished my five day prescription of anti viral pills and still have a few more to go on the hydrocortisone cream, which has made this much more...
What my dr. Thought I had was a cold sore. After it got worse I saw a dermatologist yesterday, and it turns out I have shingles. No fun at all! Wish I had gotten the vaccine a few months back during...
I have had crohns since the 1980’s, but was not diagnosed correctly until 1998. I am 68 years old now and I have lots of joint pain. Most likely it is a combination of age and crohns. Upper Back is...
I posted this same question a few months ago. My gums and teeth are healthy and I go every six months for checkups and cleanings. But my gums do become inflamed, areas red and puffy, a mystery as to...
Thank you for taking the time to reply, all of you. Puts my mind at ease some to know I am not the only one. I would not know how to find a crohns knowledgeable dentist, but I will make some phone...
I was diagnosed with crohns over 20 years ago. I am 68 years old. I have noticed some gum inflammation and discussed it on my past few dental visits. I get my cleaning and x-rays and everything looks...
Mint mixer from Culver’s 😮...
Unfortunately, most people don’t understand. I have a good friend who avoids getting together with me because we always have to figure out lunch around me, and I think Crohns makes her a little...
Danielle, How awful that one lifesaver could wreak such havoc. It is so true that it seems every day is full of do I or don’t I take a chance on eating this!? EruditePaul...all stuff that tastes so...
Having crohns, I am very good about always sticking to foods that are lower in fiber, not greasy or spicy, very bland and boring. I stay away from raw fruit and veggies, only eat cooked peas and...
Can only eat so many veggies and fruits and salads and so on before you end up in trouble with too much fiber...and not eating enough food can often be plain painful or upsetting to the system...what...
Wow, not sure how my post of 8 years ago suddenly popped up! I barely remember writing it. I believe my discomfort had a lot to do with planters fasciitis. I have since gotten orthotics to wear...
I am going to try the ginger tea and ways to add the turmeric to my diet. I am interested in supplements, and hoping my gastroenterologist has a suggestion or two at my next appointment. Happy...
Can’t take ibuprofen...Tylenol helps only a little. Knee effusion twice in six months. Some back pain. I sometimes feel like a rusty tin man. Having a difficult time dealing with this. Can’t get into...
My list of foods and drinks to stay away from that I received from the dr. Over 20 years ago lists caffeine and any dark sodas. I notice if I even drink a diet Sunkist it will upset my stomach, even...
Thank you for your replies. The orthopedist just now phoned with the results of my m.r.i. Shows very mild arthritis with lots of joint inflammation, more than likely crohns related. He suggests I see...
Waiting for results of mri, but the orthopedic doctor seems to think these may be because of crohns related joint inflammation. The first happened in summer when I stumbled while gardening. Four...
I have been on pentasa since I was diagnosed over 20 years ago. What type of treatment plan is an option? I go to see my dr. In a few months. She has always told me pentasa is appropriate for my...
I am so sorry you are dealing with so much. Plus having a new little one to care for when you are not feeling well yourself. I hope you can squeeze in some naps too. I have crohns and am pretty much...
I had stomach upsets for 20 years. My family dr. Diagnosed me with "inflammation of the intestines" after seeing results of an upper g.i. Procedure in 1980. Prescribed Bentyl, flagyl, and mild...
With Crohns I get canker sores now and then. On my tongue mostly, on the insides of my lips. Not as severe as what you are dealing with, but painful! My dental hygienist and dentist recommended a...
Thank you all for such helpful info. I am going to my gastroenterologist in two weeks and will discuss my concerns with her. I have been on pentasa since 1998 when diagnosed with crohns. Labradorite,...
Lately I just have no interest in eating much. Meat just kind of disgusts me. My weight is holding, even though I eat so little. Eggs, smoothies, cottage cheese, toast, yogurt, cereal, rice, soup now...
I have only been on prednisone twice for only a few weeks after my crohns flares, so I am not as knowledgeable as maybe others might be. But I guess the best advice I can offer is, not to scare you,...
I was diagnosed with crohns 20 years ago, but had symptoms for twice that long. It certainly can wreak havoc with our bodies physically and mentally, and I have always come away from reading this...
I have crohns, and maybe 20 years ago I was diagnosed with blepharitis. I also have dry eye that my opthamalogist says can be a big factor adding to my blurry vision...makes a sort of a dirty film. I...
I was diagnosed with crohns nearly 20 years ago and have been on pentasa ever since. I have only been hospitalized twice for flares...once for partial obstruction and once for a high fever. At my...
This is an older post. Since I am now on Medicare my supplemental ins. Premium has lowered, but I currently have to pay over $600 for 180 pentasa until I meet my deductible, then about $471 monthly....
Hope someone did a strep throat culture. I had a sore throat several years ago after being recently diagnosed with crohns...dr. Could not find a thing wrong. But after some years of living with...
I just had my colonoscopy in September. The prep was easy. Chill the Gatorade, USE A STRAW, put your feet up in front of a good t.v. Show and drink until gone. Not bad at all compared to that gallon...
Sorry to be a Debbie Downer, but Alcohol is an inflammatory and should be avoided by us Crohnies. :nono:...
I have crohns, and when I need a snack I will eat maybe a few ritz crackers and a cheese stick. Or cottage cheese or yogurt...maybe a few apple slices with peanut butter. A small soft burrito shell...
So sorry you are in pain. I just had my colonoscopy this morning to see if there was any changes since my last one. The crohns is still mild, so a relief to know that it is not progressing since my...
Going to my gastro dr. Tomorrow for yearly visit. I have been feeling a lot not quite like myself for awhile now and read that hypothyroidism is sometimes shared by immune deficiency sufferers. I...
I just turned 65. Diagnosed with crohns about 20 years ago. I have been very lucky, controlling symptoms with pentasa and always eating what is good for me...two hospitalizations for flares in all...
I live in minnesota and am retired, so have a pretty high premium each month for my health ins. Coverage. I pay $90 a month for 180 pills, 500 mg. if I had no ins. It would cost me 805.92. Next year...