If it puts your mind at ease... in the clinical data from the maker of Stelara, they did have success with chrohns at 45mg instead of 90mg. They only recommend 90 because there was 10% more response....
Sometimes it is hard to tell if it’s chrohns or UC. Lots of similarities. I was diagnosed as UC then as years went by doctors started leaning towards Chrohns even after many scopes, and it has only...
Stelara is approved for both, Skyrizi will be eventually too. Maybe he likes skyrizi better. My GI asked the other day if I wanted to try it instead of Stelara. Luckily she qualifies for it because...
There is a Facebook group called Stelara Warriors that is very active. I hardly visit here now. I had a pretty quick response but seen plenty of others there that say it took longer. I’m guessing...
I know you’re going to be wondering up until your appointment but as you probably know, it could be anything, even just short term gastritis or reflux. I’m sure the GI will do bloodwork or at least...
Ohhh yep that could be! It’s called Stelara Warriors....
There’s a Stelara Facebook group that you could join, it has a lot of active members. I’ve had a lot of success with Stelara and I’m chrohns/colitis. Maybe you were nervous?...
This has been interesting to read. I didn’t do well with mesalamine and when I told the dr that I had wished I could take them he said “they don’t do very much anyway so I think it’s a waste to put...
I know “big pharma” is a very debatable topic, I agree there are some corrupt areas, but I think it’s worth saying that a ton of good has come out of that industry. I’m thankful for my friends dad...
I did okay with doxycycline when I had a respiratory infection, but my dr told me to take Florastor with it (hours apart). I’ve done ok with levaquin and cipro too. If you ask your GI for input they...
It is hard to find people that relate. You might have more luck with Facebook groups, I started to find people who were friends of friends, that helped. If the Stelara wasn’t helping much to begin...
I’m sorry, you’ve gone through a lot. Stelara has been great for me GI wise but I don’t like how I feel on it either. You could try the 45mg instead of 90mg. Once I’ve been on a year we are hoping I...
It’s hard to find MDs that like to promote diet. I found a GI that believes it can help, but he says it’s hard to find people who will do it and since it’s different per person it’s a tricky topic....
You’re going to get a lot of different opinions. Even among doctors. I asked my dr recently if I could come off Stelara at some point and he said after 2 more doses he would start lowering my dose,...
I think it’s great to avoid trigger foods. I think it’s great if people have less symptoms from cutting out sugar or gluten or whatever. That’s not obsessive, it’s doing what works for each person....
I agree with you Sara. Anything can become an obsession. Certain foods, exercise etc. I have heard that term before. I do know one person that deals with it and trust me when I say she is nothing...
I was diagnosed in my teens and it’s been like 20 years almost. As long as you do frequent colonoscopies your covered. Try not to stress over that or possibly needing any surgery. Most people don’t....
Make an appointment with your GI or primary and tell them your concerns. They will explain to you how they monitor you. No one on this board is really able to give medical advice and I think a...
It’s budesonide in a foam, so it’s a steroid. Not usually used long term. My guess is your dr will say stay with Canasa. I use it too. I hate when the year starts and I have to meet that deductible!...
Uceris Foam might still have a copay coupon card but if you are high deductible it might not make it that cheap. Best bet is to put the amount of your deductible on an HSA if you are able to, that...
If it’s of any help, I went from proctitis to almost all of my colon fast. I used to have just proctitus, was in remission over a decade with clean scopes and no meds. Then what was a mild flare went...
I think it’s good you said it, I met with a few surgeons back when I was really struggling and the one surgeon I really liked was quite honest with me about that. She said for some people it’s great,...
Whatever you tolerate. I find exercise helpful, just was harder to motivate when sick. If you don’t already supplement protein that might be good with your plan. I drink protein powder with some...
Sorry to hear that. No I work in the insurance industry. Are there any major GI groups in your area that do their own infusions? Maybe that’s what you were doing before, but lots of GI chains have at...
I didn’t read every post but since your drug is filled by pharmacy and not doctors office they run the remicade program as a secondary plan instead of the credit card. Like you said. They user the...
I think after I’ve been on Stelara over a year I will go off it, and like your daughter, I didn’t respond to other things. My dr is okay with it, but yes, there’s a chance of flaring again and...
If you call your insurer they can tell you which places they cover near you and might even send someone to your home. Depends on your plan....
I’ve done that one, it was fine. Lemon wedge is a good idea, I sipped on apple juice in between. I don’t think I’d add any flavor to it, salty soda is right. And drink lots of water or you might get...
As far as the billing, there can be several answers. I had meds sent to my infusion center and my insurance paid the specialty pharmacy that sent it. But, my dr changed his mind so there was never a...
It is highly likely your insurance paid for the inflectra over a year ago. If you were curious you could look at your COBs from last year. I know that doesn’t really matter but if it came from...
Well it can be an irritant, but it’s not a common response....
Yep, you’ll get through it! I’ve had 7 of these. I actually prefer the miralax with Gatorade. Technically it’s the same exact thing as golytely and peg3350 which are prescription preps. It’s simply...
I’d suggest you buy the actual bisacodyl pill which is what dulcolax is, they are super small. Also have the magnesium citrate drink at home in case you need it. The biggest thing to remember is that...
Prednisone never gave me side effects except for a little more energy which I was happy about. Pharmacists are the ones you want to call to discuss meds. They’ll tell you to take it in the morning...
Dulcolax and milk of magnesia are not the same active ingredient, but dulcolax makes a milk of magnesia. It’s a tad confusing. Dulcolax is the tiniest pill I’ve ever seen so you could swallow it I...
Dulcolax does make me cramp some when I do preps but a nurse told me hydration will help with that. My directions for my last prep said 2 I believe and I went with 1 tab. I did take it earlier in the...
I think by mask what that really means is that many treatments are modifying the immune system to slow down. But yes if you are very lucky, sometimes healthy lifestyle can also calm inflammation....
I actually went years with no meds under a Drs supervision. I realize that’s not everyone’s case but just wanted to provide another view. I really hope that your UC stays mild. Whatever you do, keep...
I can relate. I had a weird week on Stelara but otherwise I am doing great on it alone. I was diagnosed same year as you. Never thought I’d go to a biologic but ended up needing it. I failed Remicade...
I’d say drop the 6MP cause remicade could still cover the immune system component. Rowasa is a topical application and who cares if you stay on that long term. I’d choose to give my body a break from...
I’m sorry and I really hope things get better, I’m not sure if he will say give it more time or not, but I was told my other option was Xeljanz. You just never know with this....
I can tell you my doctor asks me to use miralax. You may want to just ask your dr. It’s common to get constipated after a flare I was told. I use it a couple times a week. I figured it’s my body’s...
Some people do amitriptyline to help with the Ibs that comes with ibd. Worth asking about that before something like surgery?...
Just happened to look at this site and saw you checked in. Renews my energy on trying to get my diet that clean! I was into it but yeah the family get together as throw me off ugh. Hope you continue...
I was pretty much the same at one point, Stelara is what fixed me up eventually. It’ll be approved for UC soon. But even the Remicade or Entyvio might work. Lots of options. Many people have to find...
What SciFi said was very well stated and was excellent, kind advice. I think we all wish we could help, but you’ve got to try your best to have a positive attitude. Counseling is great if needed to...
Yeah don’t worry. If you look at the letter again, I believe the box to the right of the box that says Canasa even says generic is covered. What day did you last fill the brand name and what was the...
The generic will be covered so no worries. The NDC needs to get loaded in their system by that time. I already asked....
I noticed a change about a month after my infusion, and then kept improving with each dose. Best of luck, I hope it works for you!...
Yep you can have both or they’ll tell you it’s either one like they did with me and then they’ll eventually decide. The infusion center can give you an estimate but the connect card covers all but...