Comet, I've been wearing a wrist guard throughout the night because I also have carpal tunnel in one wrist and I have noticed that I have more pain and stiffness in the morning after wearing the...
I have Crohn's arthritis, also called enteropathic arthritis, in my feet and hands. Enteropathic arthritis is an inflammatory arthritis that does not usually cause joint destruction, not the case for...
First, don't feel bad for venting/complaining, we have all been there, and most also understand that at times it is frustrating to share with family members. I'm sorry that you are dealing with these...
Ides, there are definitely times when I think that I will lose my mind as well, your experience gives me a little hope that things may improve. I do think that I probably need to titrate the...
Habs thanks for the advice about the vitamins and minerals, I will definitely start keeping better control of those. I did start taking alpha lipoic acid at the suggestion of my neurologist,...
straydog, thanks for the reply. I have mostly sensory symptoms at present (in my feet/legs, hands/arms and scalp), numbness and tingling, pins and needles, prickling sensations, I also have some...
I was diagnosed with sensorimotor polyneuropathy in June after a nerve conduction study and EMG, I have been diagnosed with Crohn's since 2002. My neurologist believes that the neuropathy is an...
I posted several weeks ago. I have Crohn's disease and was diagnosed with drug induced lupus about 2 months ago, at that time I stopped taking Humira and started taking Plaquenil. Over the past year...
You could try Balneol, it's a cleansing lotion that also helps with discomfort. I had a GI recommend it years ago and it seems to work better than desitin....
I'm a Crohn's patient and my husband is in the military, we have known several active duty service members with either Ulcerative Colitis or Crohn's disease. Whether or not you are med boarded...
I'm not sure that I can be much help, but I've been prescribed Plaquenil to help with joint pain caused by drug induced lupus. Maybe you can ask your rheumatologist if that is an option. So far the...
I'm a crohn's patient also and I was recently diagnosed with drug induced lupus from Humira. I think getting a second opinion even within the same group is a good idea, some doctors focus on certain...
Some hospitals and clinics have Charity Care which may help you afford a visit before you have insurance, you could call your GI's clinic to find out....
beave, thanks for your replies. I spoke with my GI today after he was contacted by the Rheumatologist and the GI is ok with holding off on the Humira for a few months to see how I feel, he of course...
I had anti-histone antibodies tested in March of 2017 that was when I had the low positive of 1.4. The new rheumy did not want to retest anti-histone antibodies because he said that it wouldn't be...
The only time I had ANAs tested was in March of 2017, at the time my symptoms weren't as bad mostly joint pain, and they were negative except for Anti histone antibodies which were a low positive at...
Thanks for the reply, I've looked through the Lupus 101 thread and it didn't really answer my question about the DSDNA antibodies. I probably need to click through some of the links. I'm having more...
I'm popping over from the Crohn's forum. I've been dealing with inflammatory arthritis, muscle pain, Raynaud's, Erythromelalgia and sudden onset hypertension within the last few years. My initial...
I also used prepopik prior to my resection. It is what I now use any time I have a colonoscopy. I've used 5 other preps and prepopik is, in my opinion, the easiest to tolerate. Good luck with your...
Randy- I saw my PCM today and I will be having a renal ultrasound done next week. I also had some lab work done today to test renal function. We are using this as a starting point to try to figure...
If I were you I would try to find a new GI who specializes in IBD, I don't think it takes more than a couple of appointments to know if the one you have is worth staying with. You should not leave an...
I'm mostly venting but also thought someone here might have had something similar happen. About two weeks ago I started experiencing what I first thought was heart burn and a feeling like my heart...
If you haven't called the GI's office you probably should. I'm not sure where you are but I would hope that your daughter could be seen in a pediatric office at least through high school. I was...
I have used prepopik for my last 4 colonoscopies, it is the only prep that I can tolerate. In the past I have used Fleet phospho soda, golytely, miralax, moviprep, suprep, and mag citrate. Every prep...
I'm sorry things aren't going better for you, I started to doubt my decision to have a resection also because of the daily diarrhea I was having at the time. I had diarrhea everyday for about 6...
I was also going to recommend trying a bile acid binding medication, I preferred Welchol to the cholestryamine powder. After my resection I had to take Welchol for several months before the diarrhea...
So I don't have a colostomy, but I have similar side effects from colonoscopy preps. I can only tolerate one prep, Prepopik, so if the GI is adamant and you haven't tried that one maybe you could. It...
Clo, thanks for the reply. I am willing to try supplements. I would be more willing to try the methotrexate if my Crohn's was running wild also, but I am worried about side effects. I am not as...
So I'm frustrated and mostly wanted to vent, but I welcome advice if you have it. I've been dealing with joint pain, isolated in one foot initially, since the fall of 2015. Since the pain began in...
I'm sorry your son is having such a hard time. I've been using Humira biweekly since 2008 for Crohn's. I can't answer your question in relation to dose escalation for treatment of Crohn's disease but...
I agree that you should probably get a second opinion, especially if your doctor is not an IBD specialist. You mention Duke so I'm assuming North Carolina, I go to UNC they have an IBD clinic as does...
I'm so sorry to hear this. My thoughts are with you. I hope you are surrounded by people who will love and support you during your treatment....
My husband is in the military so we've moved a lot, 7 times in 10 years. I think you should speak with your current doctor about the move. He may know of someone to recommend in the area you're going...
I was also not offered the spinal block when I had my resection, my pain was well controlled without it. You definitely should understand the risks involved before you decide, call and ask questions...
Not an expert but wanted to share my experience with you. I also waited about 30 minutes from the time I finished drinking the contrast until the scans began. I was also given an IM injection during...
cupcakespinkgal - sorry to hear that your surgery did not have good results. Ever since I was diagnosed I have been afraid of developing a fistula, it just seems like a complication that is very...
It's hard to say based on how I'm feeling if I'm in remission, I did have a colonoscopy in April last year that looked good. I have been dealing with diarrhea alternating with constipation since my...
Thanks for the replies. I think I will skip the GYN, wasn't looking forward to a vaginal exam that might not even really be necessary. Is it crazy to hope that maybe there isn't a fistula? I'm going...
I have been having some symptoms of a rectovaginal fistula, sometimes I have vaginal bleeding when I strain to have a bowel movement and I have been noticing gas coming out of my vagina. Originally,...
Thanks for the replies. At this point I'm just treating the diarrhea as it comes with Imodium and Levsin and I'm trying not to over do it with either of them. I have always been sensitive to these...
So, I'm coming up on two years since my resection and wishing I was having more normal bowel habits. I had an ileocecal resection of about 8 inches due to a flare lasting 2 years and the resulting...
scifi- I got lucky and have a wonderful neighbor, I'll probably call him shortly and see what he thinks. I guess I'll add allergist to my list of doctors that I need to see. It seems like I'm...
Thanks for the replies, I was seen by a Family Medicine doctor at my house on Friday night and then Saturday morning. He told me to go to the ER if it got worse which it hasn't so it has me wondering...
I did take some Benadryl on Friday and Saturday because I thought that it was reaction to something, my neighbor who is a Family Practice doctor came over to check me out. I'm just wondering if it is...
I'm wondering if anyone has experience with Crohn's causing a swollen tongue? I noticed last week that my tongue is swollen (I can see teeth marks on the side that aren't usually there) and more pale...
I lowered my dose down from every 7 days to every 14 days after my resection in 2014. I'd actually like to stop taking it and switch to something else, my train of thought is that I failed the Humira...
I forgot to say that I've never had any problems with infections or reactions while on Humira. I do wash my hands probably more than a normally healthy person but I also have two small kids so better...
I've been on Humira since 2008. I started it after a nasty flare that landed me in the hospital, the inflammation going on in my small bowel was actually causing problems with my liver. I started to...
Hi Gumby, I can't remember if you've had a colonoscopy since your resection, but I think it is reasonable to have one done to see how things are going. I completely understand how you're feeling not...
You have come to the right place for support. It is unfortunate that the people in our lives we are closest with sometimes show the least compassion and understanding. My mother-in-law advised my...