Thanks for sharing this and sending me down a research rabbit hole! 😂Grounding is something I've done somewhat instinctively since childhood, and still do occasionally (I go barefoot in my yard and...
Glad to see everyone! Funnily enough, I've been revisiting the forum archives for the past couple of weeks as I navigate my seasonal spring flare and deal with medical providers who make molasses...
Hi all - Just wanted to add that I think the secret to my "too-good-to-be-true" success with hemp/CBD oil is the high levels of beta caryophyllene (BCP) in the brand I was using. I'm now taking a...
Welcome, Beefaith! (Love the name) I echo everyone's comments about a low residue diet. When I'm flaring, my go-to foods include any kind of broth, chicken soups, grits/cream of wheat, mashed...
UPDATE: On my last purchase from NAH&S, I was sold cloudy hemp oil. (I've read that this can result from exposure to extreme hot/cold or from improper production.) Their customer service assured me...
Good research - I never knew that and am sure others might not have either. Sorry it's a no for you. ☹️...
Yeah, it's been good for my anxiety too. All the best for a smooth surgery & recovery! 🤗...
Thanks Clo! I'll try to update weekly. Glad your friend has found relief. She's braver than me - THC isn't legal in my state, but if it were, I'd be too scared to try it. The one and only time I ate...
Thanks NCOT! No, the brand I take is hemp-derived not MJ-derived, so it doesn't have more than the legal 0.3% of THC. And I can personally attest to this, as I haven't noticed any "high" from taking...
If you've ever considered CBD/Hemp oil, I'm here to encourage you to give it a go. It's been in the back of my mind for a few years now, but as someone who has a somewhat negative opinion of cannabis...
I was in a similar position with Remicade, which caused me to have dyshidrotic psoriasis (blisters that turn into psoriasis) on my hands and feet. 73monte is right, it's a hard decision. Ultimately,...
Thanks, Clo. Yes a preliminary insurance check would have been nice. At least I would have known Stelara was out of my "Prednisone budget" lol! I applied for the J&J assistance program last year, but...
I'm with you, Poppysocks. And "criminal" is putting it mildly. Like you, I started Stelara at the end of a calendar year (2019), so the 2 injections I got within that year were covered by insurance...
Did anyone else catch this part: "Seventy-five percent of the participants had health conditions that put them at risk of severe Covid, such as diabetes or obesity. Although only 3 percent were...
Thanks Imahealin - Wow, I feel like I must have been "sleeping" on Schiff gummies lol. I'll keep thinking on the Bio360s. On another note, I'm terribly sorry you've been suffering. This disease is so...
Thanks sejinro, I may give these a try (I'm a sucka for gummies). Anyone take Bio360? I'm considering these too......
Any recommendations for a good shelf-stable probiotic? Been taking Udo's Super8 and still love these, but for various reasons (time to switch up my strains, supply shortages, etc.) I'm looking to...
Hi isaac, Welcome back, but sorry it's for these reasons. I've been on Stelara since late 2019. At first, it seemed to be the next best thing since Remicade (Remi worked wonderfully for about a year,...
Thanks, xy. I'm signed up for the email newsletters but haven't gotten one since the pandemic began, so I hadn't heard this news. Talk about a glimmer of hope!...
Thanks EP - I, too, work from home and don't exercise regularly, so I'm sure this doesn't help. But seems like if this was the main cause I'd be bothered with back pain more than once or twice a...
Thanks, monte. I've been resting for 2-3 days now with a heating pad, alternating between tylenol and the cyclo, and the pain is slowly lifting. Glad to hear you say that back pain can be mysterious...
Has anyone ever experienced severe, out-of-the-blue back pain? Last year, I had a bout of severe lower back pain for days (so bad it was excruciating to walk, lay, sit, anything). I was prescribed...
Sending healing hugs, Grammy! I suffered with a recurrent Cdiff infection some years ago. At the time, I didn't try any herbal remedies because my gastro suggested a FMT and I agreed to go that...
Thanks CC - I'm sending you healthy vibes too! What am I waiting on... more studies focusing on IBDers would be nice. Btw here's a good CCF link if anyone hasn't seen it yet -...
Thanks for sharing this study. As someone who is taking a wait-and-see approach before I get vaccinated, I appreciate constructive posts like this. I've been observing some of the COVID-related...
It's a month later and I'm still trying to figure this mess out! As if Crohn's isn't bad enough, we have to fight for treatment too... Castroh - My doctor initiated the medical benefit route, but...
I had a FMT 5+ years ago for the same, but mine was done the anal route. I don't recall having any side effects, though. Vomiting is never a good sign, so sounds like something may be amiss. Sending...
Same, VanJordan, same. Can you recommend any websites to watch for phase IV data? It'll be interesting to see the results of this NIH study come late-summer -...
Thanks Castroh - I had wondered about that! I believe going through my medical benefit would indeed be better, since I never had any hiccups with Remicade or Entyvio which were both billed that way....
Also, how's your water intake? I always notice my fistula gets fussy when I'm not hydrating properly. Within 1-2 days of me upping my water, the tenderness usually subsides....
For others who may run into this problem, look into the Johnson & Johnson Patient Assistance Foundation: https://www.jjpaf.org/ If your drug is a J&J drug (Remicade, Simponi, and others are) and your...
Sorry to hear your fistula may be flaring, Minnie. Like your Remicade, Stelara has done wonders for mine. Most days, I have little-to-no pain or drainage; I'm OK living with that vs. surgery. On the...
Nicky, I'm sorry that you had to make such a decision. I certainly understand it, though. I don't understand how pharmaceuticals can put these unrealistic price tags on drugs while keeping a straight...
For those of you on Stelara, how do you afford it??! Long story short, I'm currently due for my third injection. While calling the pharmacy to request my refill, I discovered that my payment...
That's a really good question, Pam. I hope more vaxxers chime in on this. Whenever I get sick, I flare like clockwork, so I imagine the side effects some people are reporting would indeed trigger a...
Florastor is pretty good - it's what I used before switching to Udo's. Now I feel like no other probiotic can really compare! If you can swing the price, I'd still recommend trying Udo's....
For anyone looking for a good probiotic, I always suggest Udo's Super 8 Hi-Potency. They're pricey ($20-$40), but worth every penny. I have Crohn's, and taking them has helped me leaps and bounds...
Thanks Liz3. That's good to hear!...
whatdoigotDOC! - Did your tests reveal good news? My poo is either the consistency of oatmeal or pudding. I'm currently on Stelara, but am only a few months in. Guess I should also say my Crohns is...
For folks on stelara (or Humira, etc.), how soon before your injection date does the medication ship? Arrive? Has this year's mail chaos impacted its shipping time? I'm due to take my first Stelara...
poopydoop, my words weren't meant to invalidate your decision. I was simply sharing my personal outlook. As someone with perianal & fistulizing Crohn's, I 100% understand what it's like to have no...
ewafromwarsaw, I feel the same as you. People in the IBD realm always love to say "the benefits outweigh the risk," but I don't believe this is always true. And in this case, it certainly isn't true...
I've been on Entyvio for 6 months and my GI didn't put me on bridge therapy either. (In hindsight, I should have been on something cause I don't think it's doing all that much for me.) After a BAD...
Glad ginger has been helping you heal, SL2! It works for me too. So well, that it's one of my go-tos when I feel the beginnings of a flare. I make tea from fresh ginger root (I pour boiled water over...
I'm at the 6-month mark with Entyvio, but haven't seen any noticeable improvement (I have Crohn's). In fact, I'm beginning to wonder if it could be working against me?? I say that because I've...
@Lili35 You're right, it's not a simple situation at all! (As if having UC/Crohn's weren't hard enough already lol.) I agree with your partner. I'm planning to schedule my procedures a few months out...
Hope your prep is going well, Lili! I had a colonoscopy scheduled for last week, but cancelled. I just don't feel comfortable increasing my exposure to new ppl or new environments right now....
Thanks @straydog, I decided to do just that (finish antibiotics first). I already take Florastor daily, so no worries there. My dr said we'd try stelara if entyvio didn't work so I'm going to ask him...
Hey guys, I'm fairly new to the board, but I've been a reader for years now. I've heard such good things from Canada Mark, 25wcolitis, and others here about wild oregano oil that I've decided to try...
Sorry you're in pain, ailing. I have an active fistula too. And yes, I sleep and nap A LOT when it flares. I'm lucky because mine does drain on its own, but since late-2019, I've been in a viscious...