Background: I’ve had a jpouch for several years with rediagnosis from ulcerative colitis to crohns recently, as well as fistulotomy. Issue: I’ve had constant stool leakage which I assumed was from...
Background: I’ve had a jpouch for several years with rediagnosis to crohns recently, as well as fistulotomy. Issue: I’ve had constant stool leakage which I assumed was from the fistula/setons for...
Yep. Change multiple times a day. Definitely helps to cover it up but it’s still there...
Anyone have experience with drain setons for Fistulas? I've had them for about 5 months now and still have tons of drainage. Not sure if it's drainage from the fistula or slight incontinence ? It's...
Can you sew? You could make an ostomy bag cover!...
Thanks for your reply. It is a loose seton...
I really want to start eating healthier. I no longer have an Ostomy but have a Jpouch and still try to stay away from nuts, uncooked vegetables, seeds, and popcorn. I feel like this takes away a huge...
I had setons placed for Fistulas a few months ago. I feel like one of the sites is tearing my skin… the hole seems to be bigger. I occasionally have sharp pain in the area but it comes in short...
I’ve had a jpouch for almost 3 years now and have had the occasional hemorrhoid pop up, usually healing in less than a week. However, this one now is by far the worst I’ve ever had. Going to the...
UPDATE: Ended up making an emergency app w my primary due to one of the worst panic attacks I've had in awhile plus awful dizziness. Took my first dose of Paxil last night and am due again in 2...
Scaredy cat- thank you, it means a lot. So I've been reading up on Paxil (not a good idea I know) and I'm worried that the side effects and withdrawal symptoms will be awful on me. I'm tempted to...
Update: Called in today and my primary is switching me to Paxil. Not sure how I feel about this constant switching of meds- I feel like it will do more harm than good. However I still have 8 hours...
"Update": feeling like I'm going to pass out/collapse any time I try to walk. Still dizzy. Weak. Tingling in face....
Don't feel like typing all this out but I'll do my best. I apologize if it doesn't make sense. I've had anxiety and panic disorder for over 10 years. I recently stopped denying it and "diagnosed...
Blksteeda- Occasionally may be from the skin, but I believe it's mostly from the actual stool itself....
Hello my fellow jpouch-ers! This past week or so I've been experiencing painful itching and burning (mainly when using the bathroom). It almost feels like a cut or erosion. I wasn't too concerned at...
ByeByeUC was spot on. I personally found the 2nd recovery easier just because before my 1st I was severely dehydrated and malnourished, however the 2nd was pretty rough too. Pain wise, I found there...
Forgot to mention that the majority of the stools have been liquid with the exception of a few times when it seems to be small hard pellets/pieces that sometimes even float. Don't really know what...
More concerns... I'm a few days over 2 weeks post ostomy reversal. I've occasionally been experiencing short sharp painful spasms in my anus when getting the urge to go to the bathroom. This is...
I've heard a lot about people who have gone back to the ostomy because they just couldn't take it... I hated the ostomy but it sure was nice not worrying about stomach aches and pooping 24/7......
My next appointment with my surgeon is in a little less than a month... I feel like that's a very long ways away.. The pains awful. It's sort of a painful pressure in my anus that feels like I'm...
Decided to make a new post all together. I've recently had my ostomy take down. The first few days after my surgery, once I started going again, I had to go multiple times a day but I don't think I...
Wiskers200- how long were you having to go up to 20 times a day? It's only been a week for me but I don't know how much longer I can take this....
Nope, I'm all closed up! It's so great being able to shower without plastic protecting your stomach, being able to wear tight fitting clothing, being able to eat peanuts!!! It's going to take me a...
Went in for a contrast enema X-ray last Tuesday. (Not sure if there's an exact medical name for it). The contrast ended up on the outside of my intestine, so they admitted me over night to be sure...
Showered without the bag or any coverage and, you're right, it's very refreshing! The area isn't near as painful as before but it's still very red and sore. I don't have any of the symptoms ArPAr...
I'm definitely going to ask my surgeon about the area next week when I see him. I'm considering taking a shower without the bag like some of you have suggested.. But will soap/shampoo irritate the...
As some of you may remember from previous posts, I've had some issues lately with skin erosion and irritation around my stoma. The past few days however it's been pretty bad- to the point where...
Thank you all. To answer your questions, I'm in the process of the three step procedure and currently have a loop ileostomy. The date of reconnection it still to be determined but were hoping...
Total colectomy in July. Jpouch surgery in novemver. The past few days I've been experiencing an excess amount of anal discharge or leakage. I've felt the urge to "go" quite often and have even woken...
Any suggestions as to treat/rid of the pain? Everything from standing, walking, even sitting causes pain...
I just had my jpouch/loop ileostomy surgery about 2 months ago. A few nights ago I had a couple drinks for I haven't been able to do this in all my time with UC/surgeries. Now, a few days later, I...
I guess I failed to state that my surgery was done-amazingly- completely laparoscopically. I believe the catheter was to keep it in place? But I'm not entirely positive....
A few months back I had a total colectomy and ileostomy. Just this past Thursday I had the jpouch with loop ileostomy surgery. I've been having a sharp pain, especially when I move, around my stoma....
I walked a lot today and tried to eat more which I think helped some with the pain. Sorry about the constant questions, but I've been having a sharp pain, especially when I move, around my stoma. I...
Thanks for all your replies. One more question- as for the discharge. Did any of you experience pain with it? I find it hard to keep under control, especially at night while I'm sleeping. How long...
No that is scheduled in a few months after this heals some...
I have recently had surgery to form a jpouch after having a total colectomy a few months back. I have been home since Monday and am still very weak and tired. I have recently started having loss of...
Hey guys. Since there's no behcets forum, I figured I'd just post on the UC one. I've been officially diagnosed with UC, and over this past summer have had a total colectomy. Because of reoccurring...
Nausea has gotten worse past few days. Can hardly eat. Feel awful today. Weak. Scared of getting dehydrated again....
I've felt slightly nauseous all day today... The past few days I've felt weaker. Slight bloating. Loss of appetite. Of course I haven't drank or eaten much today either... I've had an ileostomy for a...
Thanks guys! That's really a relief....
For awhile now I've noticed a "dent" On one side of my stoma. It's slightly darker shade than the rest. Should I be concerned about this or is this normal? Could it just be oddly shapen? Also, I've...
I am positive this is the same thing that I've gotten in the past. Called my doctor today but they never called back... A second one has appeared so now I am getting very impatient and angry. A while...
Like the past times this has happened, it has gotten worse and now resembles a dark, opened ulcer. I've noticed "white" areas around or near the ulcer. You said earlier lichen sclerosis can cause...
I have seen my gynecologist a few times when this has happened Before The surgery but they new nothing about it, just put me on more steroids... This is the first time it's happened in ~6 months....
I don't believe so. There's no white areas, just the one pimple-like red spot. It hasn't hurt with urination but is very painful to the touch and irritating to walk or sit etc...
Before the ulcers were only one at a time, but painful and opened (worse than this is so far) It's a red bump near the clitoris...
Alright, time for an awkward question. I've had symptoms of UC for the past two years and was on prednisone practically that whole time. This past summer I had a total colectomy and ileostomy and...