Okay, I jumped. Don't have anything gassy 24hrs before. I jumped about 3pm. I didn't eat much and no soda. That way my bag was quiet. You wear a jumpsuit when random because you land on your bottom....
Thank you so much. I'm going to try it....
I use tegaderm. It's clear tape . They use it on IVs. Keeps my barrier dry when swimming. They have different sizes. When it's time to change my bag. I shower with no bag in mornings while my stomas...
Has anyone been sky diving? Need tips. Thanks...
Yes, I have a tube I'm every room....
Does anyone else get the itching? Usually it's on mw ankles, feet or hands. But I tried going down on my gabapentin and started itching again. I am back to my 300 twice a day now. But my shoulder has...
Turns out the lesions is salmonella. Went to ER today. Because the ostomy clinic moved out of town. So on Levaquin antibiotic. A normal person wouldn't need antibiotics, but with an autoimmune...
Things are calming down some. I'm not as panicked. Not so much pain today. I will be calling the wound clinic tomorrow to see what the ulcers are. Thanks for listening. Halo...
Clo thank you so much....
I had colon removed in 2011 due to ulcerative colitis. They have looked for crohnes and it was negative. Well last night I notice an ulcer on my stoma. Today it has grown. I've been using my stoma...
Thank you...
I had one and it failed. Because they left a piece of my rectum in there and it had uc. I'm fine with the bag....
I've used press and seal before. It sticks right to my body. Also try tegaderm on the flange....
1. Does flakey dry skin affect the adhesion of the appliance in anyway? If it does what do you do to avoid problems? I've never had dry skin. I use benzoin compound tincture to protect my skin if...
It shouldn't. I take my D year round....
I understand your fears. But getting rid of my pouch and getting a permanent ilio was the best thing ever. I finally got real sleep. No regrets....
It sounds like pyroderma. Took steroid injections and pills to get rid of mine. Research it. Hope this helps....
Clo, Thank you for replying. I tried the closed end bags. I don't think they are economically good for iliostomies. Plus it was messy just changing the bag. Halo...
Humara is awesome. But by time they tried it my colon couldn't be saved. It also helped my back pain. Check out Zac and Maggie on youtube. She has lots of information....
Emma...
I've heard of non drainable bags that you throw away than empty. I have a drainable bag two peice. Was thinking of trying the throw aways. Are they more costly or better?...
I found a dr who specializes in it. She shot steroid into the ulcer and had me take steroids orally. Also had a special dressing for it. Can't remember the name. Wish I would have known about the...
You will have a better life with an ileostomy. My first night I got the best sleep ever. Good luck....
Dresses or capris....
Not sure. I had one and the surgeon fixed it. Hopefully someone on here has an idea....
I eat nuts sometimes. I just make sure to drink plenty of fluids. I wouldn't eat them within six weeks of a new stoma. This sight has taught me a lot. Welcome....
Google them. Etsy.com. has good ones. I make my own. Real simple. Good luck....
😇...
Ljm2014 thanks for the advise....
Thank you guys....
Sherrine, Thank you for the suggestion. I will definitely check them out. I will let you know....
Got rid of colon and rectum to get rid of UC. Happy with the ileostomy. But now a year after having rectum removed I keep getting pyroderma. Family dr said he knows someone who deal with it. But...
My feet hurt so much when I walk. I need a shoe that is like walking on air that I never want to take off. Do those even exist? I need to start walking to help my fibromyalgia. I also am battling...
Has anyone had pyroderma under their wafer? I can't get it to stay away. It's so frustrating. My dr finally said he has someone who specializes in it. It's very depressing....
Mines 30mm....
I'm a female and have found sex okay down there. It's been awhile now that I've had to have the wound reopened in Sept. But I definitely look forward to that reconnection. I would express your...
Roy, I am so happy to have it All gone. I had to have a second surgery to open up the pocket that was leaking. They left the incsion open to heal from the inside out. Its healing pretty good. I do...
I use kleenexes. Great size and soft on the soma. I also use them to clean my bag after emptying. Hotels always have tissues, or you could pack a box....
I had a reaction my first time. But my second one I found this site and found out about bct. Benzoine compound tincture. Saved my skin big time. If you have open wounds it will burn but I love it....
Press and seal works great for bathing....
Virdent, Thank you so much for your reply. Thats going to be a long wait. How long did you do the baths to soak the wound? Do you think the soak really helps? I'll do anything to speed this up. How...
I had my J pouch and rectum removed in Dec 2017. My wound didn't heal so the surgeon opened my bottom up to heal from the inside out. My question is how long can I expect for the wound to close? She...
Have you ever tried press and seal? It sticks to your body. It's in with the saran wraps....
When I had a problem one time with pain in thw bladder area. My chiro was an acupuncturist and did a acupuncture treament. He said the nerves sometimes can have a problem calming down. It was a...
Notbob I have tried nuts and carrots. They go through but get backed up behind a srticture. In the shower I checked out my stoma with my finger. I can feel i stricture in there and the carrots and...