I have been on Humira for about a year and a half, I still only do one shot every two weeks. I felt better after about three months on Humira but then kind of hit plateau for a while and then felt...
I do feel great. I have put on weight and am not fatigued. I am concerned that someday I will have to stop taking it and what other things it may be doing to me (cancer) but I guess there is a trade...
I have had crohns for about 18 yrs now and have tried quite a few medications in an attempt to get it under control without much luck. I have been on Humira for a bit over a year now and just had a...
I have been on Humira over a year now with great results. I felt better within weeks and was still improving after a few months. I let the Humira get to room temp, I ice the area (lately I have used...
TJF - the same thing happened to my 13 yr old son - but as a mother I panicked when he told me he couldn't see and rushed him to our eye doctor only for the eye doctor to tell me he had two contacts...
PV - does he have a back problems? I have a friend whose husband had a nerve pinched in his back that caused a drop foot. Just a thought....
Princess - I get it checked every three months now - but in the beginning it was every month. MB...
Princesscolon - I have been taking 75 mg of Imuran (which I believe is the same as 6MP) for about 2 years and Humira just over a year and have had no real side effects. I do get a welt at the Humira...
PV - I noticed your husband takes Flagyl - my GI did not want me taking Flagyl for very long because it can cause neuropathy. Has anyone discussed that as a possibility? MB...
Demery - I can't imagine how painful it is for you to see your daughter go thru this. I have used Humira a little over a year now - room temp, ice injection site and maybe if you could distract her...
I really like Garden Harvest toasted chips by Nabisco for a fiberous snack. I like the apple cinnamon flavor. They are whole grain and you get a 1/2 serving of fruit in each 1 oz serving. I found...
Mikeg999 - I have been on Humira for a year and I have to say that I also saw improvement right away but had hoped for more and then about 4-6 months after my initial dose saw even greater...
I have been on Humira a year now. Now big bad side effects yet, and yes I do get a welt at the injection site each time but nothing worse than that. I also think I get more headaches but as I said in...
I have been on Humira for a year and I have had a migraine that has come and gone the entire week. My last Humira shot was on 4/18 so it started about 10 days after my shot - anyone else notice a...
I use hydrocortisone suppositories - they work well but take some time to kick in. I am also on Humira and found that worked well but I am sure you hoping you would not need meds like that right...
Ski Bum - I have had the same problem from having horrible diarrhea. I have found that Desitin diaper rash cream works wonders. I get the cream kind, I think there is an ointment kind also. It truly...
I think I have had an increased number of headaches. And far worse headaches than I ever had in the past. Kind of strange - I'm not sure why Humira would cause headaches....
Belleenstein - I can't recall as to whether or not I was on steroids at the time. I am thinkng I was because the doctor I had at the time was big on pushing steroids as the cure all and I ended up...
I had a perforation of the intestines about 10 yrs ago - I had the regular crohn's sypmtoms going on but not all that bad. I had golfed that day for a work function, came home and was watching my son...
I am on Humira for Crohn's disease and it has worked well. The nurse coming to your home must be a new thing. I did my first two rounds of shots at my docs office so I could learn how to do it and so...
Thank you for the information. It sounds an awful lot like Humira. But you would only have to do the shot every four weeks as opposed to every two weeks. After a year of doing the Humira every two...
I loved it - thank you for sharing!!!...
I agree with Lynn, try your thigh instead. I was having an irratation also when I did it in my stomach because of my pants rubbing against it and it seemed no matter where I did my shot that was wher...
Yes, you will administer your shots right in your own home. My doc had me do the loading dose (4 shots) in his office in case there was a reaction and the next dose (2 shots) in his office. I had no...
Dorri - I have been on Hunira for almost a year. It is administered through a shot - either a pen or a regular needle syringe into your thigh or stomach. I use the pen because I think it is easier...
I actually found some more information about this trial and it is kind of scary to me. It sounded like you receive chemo to basically get rid of all your existing white blood cells then they add the...
Zena - thank you. I missed that....
Habs - we have chatted before - I am from the Syracuse area, any idea how you inquire about getting involved? I have tried all the big meds, I am on Humira right now and feel much better but not...
I am not saying don't take the antibiotic but I can tell you that I was on Zithromax a couple of weeks ago for brochitis and it absolutely killed my stomach. I had horrible D and stomach cramps. I...
I have been on Humira for about 11 months now - within the first two months I had gained about 8-10 lbs, but I needed to gain weight. Then the weight gained seemed to stabilize until the past 2...
Tastroman - I can completely sympathize with you. I have had crohn's for about 17 years now and the whole rectal issue has got to be the worst thing to deal with. I recommend the pantyliner approach...
I am on Imuran and Humira, both immune suppressants and I flew two weeks ago and cruised for a week and had no problems with catching anything. Just keep the hand sanitizier nearby and enjoy yourself....
I got crohns when I was 19, I am now 37. The only period of time that I felt really good was when I was pregnant with my only child. I had absolutely no crohns symptoms then. About six months after...
I have been on both pentasa and azathioprine for over a year now and the combination seems to work well. I take 75 mg of azathioprine and 8 pentasa capsules a day. I am also on Humira. The addition...
SGRUBB - I also have some pretty severe rectal issues - I personally have Crohn's and not UC but the Crohn's involves my rectum. I was so inflamed a year ago that I could not you enemas, I was first...
WantRelief - I agree with PB4, you need to get rectal meds, I had the same symptoms and didn't get medical attention for it for quite sometime and it got progressively worse and then took longer to...
CrohnsDaddy - I am glad to hear the Humira is working for you. I have been on it for about 9 months now and feel it has helped me tremendously. I do think I have more headaches now than ever but...
My doc has had me take it for short term fixes for a flare but strongly advises against taking it long term because of the neuropathy side effect and I guess if you get neuropathy it is not...
6MP and Pentasa are nothing compared to Humira - I have a $2,200 deductible and had to pick up my Humira the first week in Jaunary - $1,387 for a one month supply!!! The pharmacy thought I was crazy...
My exact thought - I know I was told to stay out of the sun while on Cipro. You might want to ask your pharmacist about that. MB...
I was exposed to chicken pox when I was 9 months pregnant and got shingles. It was not fun. From what I understand you are much more likely to get a herpes virus again if your immune system is...
Pampers - I just wanted to let you know to be optimistic about the Humira - I started it about 9 months ago and I have had great success with it and I am on most of the same prescriptions you are on,...
I gained about 8lbs in the first couple of months after starting Humira but that was it, I haven't gained any more in the last 6-7 months. I also agree it is the absorption thing. MB...
Diana - I have been on Humira for about 9 months now and have recently, the past couple of weeks, noticed bad bruising on my legs. Right now I would be embarrassed to put shorts on my legs are...
For the past three years this is how my crohns has been. I was in denial for quite sometime and didn't want to talk to anyone about it. Finally it got so bad when I had my colonoscopy my doctor...
my hair fell out for a brief period of time but it only lasted about a month. Since then it has all grown back. I will admit I was nervous while it was falling out that I may go bald but no one else...
Homeboy - I don't personally have Part D but I do quite a bit with it in my line of work. You can go to Medicare.gov and put your current RX's in and the program will determine which plan is best for...
Kandice - I am 5'8 (female) and was down to about 105lbs when I started Humira back in April, I am now at about 120lbs so the Humira definitely helped me gain weight. I stopped having as much D and...
Habs - Good luck with your SBFT. When I left my old job it was exactly like Sniper said - you know when it is time. I loved everyone I worked with except for my direct supervisor. She saw me as a...
Habs - I also work in the health insurance industry(also in NY) and two years ago I changed jobs after 12 years at the same place. I didn't change careers much, I went from working for Excellus to...