I finished filing online yesterday. It is an amazingly long form! Took me a days to fill it out a little at a time because I would get too tired and have to quit. Anyway, I sent it off on faith that...
I was wondering if any of you have a rheumy who uses a team approach to your care? I like my rheumy, she is caring and listens, but the only approach she has is meds --- which so far have given me no...
I drive 2 1/2 hours to see my rheumy because the ones in my town are jerks. It is worth the drive and she works with me by ordering the lab tests locally and minimizing the trips....
What is your experience with getting disability? I understand almost everyone gets turned down initially and has to appeal. I have seronegative RA and am unable to work as RN but I have pushed myself...
I am looking at the possibility of filing for disability. I have been having this terrible joint pain all over for 2 years now. I have gone from working 2-3 12hour shifts as a nurse to working only 1...
I was just wondering how many of you are RA neg but definately have RA? My blood tests never show RA but I have all the symptoms of RA. Also, how long does it take the Plaquinil to kick in? It has...
My joint pain is like you have jammed your finger --- but in all my joints. I was diagnosed last week with polyarthritis. This is likely rheumatoid but I don't quite meet the criteria yet. I started...
have you had an MRCP done? If not, I would ask them to do one, just to be sure. And if it turns out to be chronic pancreatitis, make sure you are followed up regularly because you have increased risk...
Yes. My EUS, MRI, MRCP never showed chronic pancreatitis changes, but yet my symptoms are consistant with the diagnosis and the meds seem to help. From what I know, Pancreatic cancer would show in...
It sounds like you may have chronic pancreatitis. Do you have loose stools with fat rings surrounding the toliet bowl? I have the same kind of pain and have finally been given a diagnosis. Viokase is...
My liver seems to be fine from the labs done, it's my pancreas that is messed up and also a stomach ulcer. I can't find anyone who will treat my joint pain without a diagnosis for it and so far, no...
I have been in chronic pain for 2 years now. Started in my upper abd and then 5 mos later in all my joints. I have been to IM's , GI's and now 2 rheumys. Went to one local PM and tried to get a...
Atlanta area is an option too. It is about 2 1/2 hours...
I am searching for a rheumy who will diagnose and treat me. I live in central Alabama and am willing to go to Birmingham. Any suggestions of a specific MD?...
I went through 8 months of testing last year for abd pain, wt loss, joint pain and extreme fatigue with the only pos. results being a pos. Promethius test and a low Vit D level. My abd pain became...
My brother (who has Crohns) and I (no diagnosis yet) both take a complete nutritional suppliment called Reliv. He says it has really helped his symtpoms (fatigue, pain, ect). I have just started a...
I went to my primary care MD. He refused to give me ANYTHING for pain. He thinks it is fibromyalgia even though I don't have any of the tender points. He says the pain med will make things worse by...
I have not had any xrays done. My abd pain in upper abd just below my R lower ribs. it is a constant ache that goes through to my back. I have had all the scopes and nothing showed but the promethius...
I am going to a new rheumy and I need suggestions for questions I may not think to ask. I have had the RA and ANA tests done (neg) and the inflammation tests done (neg). by my first rheumy. I hope...
I went back to my rheumy last week. He sat there with a straight face and said he didn't know what was wrong with me and didn't know how to treat it and I should just go home, learn to live with it...
I went to my Rheumy last Wed. He looked me straight in the eye and said You don't have arthritis and you don't have fibromyalgia. I don't know what is wrong with you and I don't know how to treat it....
What does HLA B27 pos mean?...
I too have the joint pain and all my tests have come back neg. except a vit. D deficiency. If that hasn't been checked, it should be. One of the effects is joint pain. It is also common in Crohn's...
Do any of you who have joint pain and/or crohn's arthitis NOT have swelling or an elevate sed or C reactive protein? just wondering if this pain could really be a form of arthritis or Crohn's even...
I have had all the tests I think they can do including the capsule endoscopy and the colonoscopy. They say they can't see anything. Yet the upper abd pain has continued for 9 month and the frequent...
Does anyone know just what a pos promethius test for Crohns really means? What if it doesn't show up on scopes/radiology tests?...
Hi Curley, I have had all the tests done for CD so far except the pill cam and I am waiting for the results of the blood test. So far nothing has explained my pain in my abd for the past 6 months. I...
I am new to this forum. I have been having upper L abd pain and Crohn's like symptoms for 6 months. I have had all the tests (all neg) and just went to Atlanta (a 3 hour trip) to see a specialist to...