Matt, I'm sorry for the pain you went through, but use this horrible experince to learn the most important lessons for a CP patient. Never, Never, Never arrange for surgery or any other painful...
I haven't been around in quite a while, but we always joked that we were all fluent in typo because our pain and med side effects just skewed our brains that way! To my great embarrassment, I wrote a...
I have had a nightmare of a time in search of a Dx. For years I had all the classic symptoms of CD but neg biopsies and my Prometheus tests were inconclusive (Neg ANCA & ASCA, pos pANCA). ALmost...
My absolute favorite was when I was working 4p-12a in the ER. I finally got so sick I had hubby drive me in one morning. The triage RN told me that I could just call in sick, I didn't need to come in...
You are not alone in the fight with the Docs. I suppose that many of us here have had problems. It's been my experience that once a Doc has made up his/her mind, it's very difficult to impossible to...
Just one more thing about the Hashi symptoms. How is your Doc managing it? Are they going by your TSH alone or doing the whole thyroid panel and looking at your T3 & T4 too? It's possible to have...
Thanks Kaz. I do stretch regularly since it's expected that I will eventually develop Akylosing Spondylitis. I have some calcification at my facet joints already and it's really a case of use it or...
I've been being treated for inflammation of my SI joints for years so I know well what that pain generally feels like. Over the last few months, I've had some really severe pain in the left SI joint....
I also have Hshi and Crohn's. On top of that I have Sponyloarthropathy - a type of autoimmune arthritis and it sounds like that should be a consideration for you. Many of the symptoms are similar to...
Nothing can completely stop my gurgles. As long as they don't hurt, I don't worry about them. Well, not now anyway. When I was younger they embarrassed me. The question is what the sounds really are....
I can't help but wonder if anyone else has these problems or if it's just me. Over the years I have had many cysts. First just small ones along the bikin line. Then in the middle of my thigh and one...
I don't believe in IBS with Crohn's. If the intestines are inflammed, of course they are irritable. To me, it's a simple matter of logic. I believe that IBS is a diagnosis GIs throw at us when they...
Nanners -The low Iron, Ferritin, Iron Sat and TIBC kinda go along with your low HGB/HCT. All of these indicate anemia. In order to be able to make more red blood cells, you need to have adequate Iron...
I also suffer with anorexia as a symptom of a flare. For the last few weeks I've literally been forcing myself to eat at least once a day, but I have no real appetite. Actually, I didn't eat at all...
Do you have an epi-pen? If not, you really need to get one. Having a reaction invloving inflammation/hives in your mouth is serious and you need to be concerned about the possibility of anaphylaxis....
I did the gluten free & lactose free diet for almost 3 months and didn't see any change in my symptoms so I went back to a normal diet. Well, that of course is normal for me, which is a low...
Itis is inflammation of whatever body part they put in front of it. So, ileitis is inflammation of the ileum. A Pathologist will not make a Dx such as Crohn's because inflammation can have different...
I am absolutely convinced that artificial sweetners are bad for us and probably affect us in many ways. It really scares the daylights out of me when I see people giving diet products to children or...
When I was first told that I probably had Crohn's I was told to go on a low residue diet. When I did a google search and learned what was accaeptable and what was not. By time I finished reading I...
This is something I've considered many times too, but I've never actually made that bag. I've been lucky that even when my gut get really bad, I can usually manage it at home with the help of the...
Is it normal for you to experience bleeding during a flare or is this new? Are you bleeding with every movement or is it just the 3rd one? If the bleeding continues, you'll need to get to a Doc soon,...
Oh Poopsy, I'm so sorry you've had to go through all that. You need to get yourself to a great GI who will treat the Crohn's as aggressively as it's been treating you. There are some awfully good...
This is a problem that can happen with all meds. For me it was Pepcid. For years I took Pepcid and had my heartburn under control. Then it became available in generic and stil, I was fine. Then one...
calypso - I've had a few go-rounds with aphtous ulcers. They usually respond well to a mouthwash called "Magic mouthwash". Your Doc/Dentist would actually have to write out how much of what...
Sean - Have your Primary Care Doc get you a consult with a Pain Mgmt Doc, look one up through the hospital you've been going to or ask you insurance carrier for a list of Pain Mgmt Docs. GI's are...
Supanova, I know exactly what you mean and though I have not been hospitalized since I began my Pain Mgmt treatment, I have on occasion seen a new Doc when my regular one was away. One looked at my...
Thank You, Thank You, Thank You....
Hey Sniper,I have to second Ctoo's recommendation for Cardio Pulm Rehab. Mom went to a great program and they really helped get her up and moving again. She had more Pulm trouble so they even got her...
Dragonfly,You should discuss this with your Doc because there is help available. Certainly Reynaud's is a possibility, but whatever the cause, a Pain Mgmt Doc could help. My mother always had poor...
NCOT, Nobody here is trying to say that they are sicker than you. Only telling about the trials they have each faced with this disease. We all know despair and depression for many different reasons...
Congratulations on the addition to your family!! Thank you for letting us know! It's always nice to hear good news!...
Hi Ivy! Good to "see" you again. I hope all is going well for you and your family. I've been MIA for quite a while but hope to be around more regularly, as things have settled down somewhat. I've...
Sounds like you've gotten all my advice but I've missed you and wanted to say hello. I've frozen my own potatoes, purchased frozen mashed and tried refridgerated ones. None are as good as fresh made...
Good for you! We all need to stand up for ourselves, regardless of the problem. I hope that you've documented all of your attempts to get assistance from the college and if you have not, start doing...
TB started to make a comeboack during the 80s and early 90s when AIDS was in its infancy and the immunosuppressed were coming down with it. Now it frequently makes the rounds in prisons and even...
Well their solution was to switch me to another building for freshmen with the same amount of girls, the problem is I can't afford that it's a thousamd dollars more than where i am now. It is the...
Cup, there can be periods of time when we really do go into a true remission and have relatively no pain ( or at least very little pain). I have been there, although not for quite a while. It seems...
Habs, I've also had the same type of dry, scaly problem your talking about. Luckily it didn't last all that long but I'm sure it was really an elongated fissure that literally ran up my buttt crack....
CToo, preps are unfortunately no different than our symptoms or what meds we need. Each one of us reacts differently. I'd rather slit my wrists than to ever take a Ducolax again. Years ago I had to...
I"m with nice cup of trea on the starvation effect. I'm in that now and I'm dreading the next time I have to get on a scale. I could easily lose 30lbs without missing it but no matter whatI do I just...
I also had an anaphalactic reaction to the IV contrast used for CTs. They usd to use iodine but because so many people are allergic to shellfish and therefore react to iodine, they switch toa...
cindywchrones said... My coworkers and husband were convincing me today my high altitude severe sickness in Colorado would not equal a plane ride?? I'm not sure what you mean. I think you're saying...
I've been suffering with the for years and have developed several strategies to combat it, although I have to admit, none are completely effective. The first thing I do is increase my vitamins to...
Cindy, do you have an antispasmotic for when you do get spasms? If you don't, you definitely need one. If you do, talk to your Doc about increasing the dose if the spasms get bad. I've been using...
Minou congratulations. I sure hope that whichever way you decide to go, it is a quick and easy process for you and baby. I lost an ovary to a cyst months before I got married and unbeknownst to us, I...
Hi Sassy. I guess that first I should say that I do not have children, but only a few years ago I was trying to get pregnant. At that time I had decided that I would continue on Humira & Pentasa...
Vicki, I'm sorry you've gotten stuck with Shingles. As if we don't have enough troubles, we need to worry about that sort of thing too. I haven't yet had the pleasure of shingles but my sister had a...
Cindy, if you work with your docs, I suspect that you can find some help on all of these issues. A mild sedative would go a long way to helping with your fear of flying. Perhaps you might even relax...
I also agree that maintenance meds would be a good idea after your hubby's surgery. Crohn's never goes away no matter how much gets resected. I have lots of problems with aphtous ulcers in my mouth...
Thanks guys! It's nice to know that I'm not the only one that has gone through this nightmare with GIs. A very interesting thing to note is that the GI I see is one of the top Docs at Mt Sinai New...