ok, you're making me feel better. I need to do something, as I don't want to stay on Entecort much longer, it has already been over a year. I'm one of those people who takes a new medicine and before...
For anyone on Tysabri, Supposedly there are some neuro things/questions that get done before you start? Can anyone enlighten me? For instance, if you're one of those people who gets to the end of a...
My PCP's reaction was not to go near it because of the 3 people, but I didn't have time to explain further. You're right, surgery has side effects and isn't a cure. As one doc said, you can't undo...
Tysabri has been presented to me as an option and I've been a little nervous because of the 3 people dying issue, although I've had two respected GIs tell me that no one who was using it by itself,...
Hi Northern Guy, Good luck, I lost in the bonus round and went home with my consolation prizes. After a CT scan said I didn't have Crohn's (yeah, right) they wanted me to have a colonoscopy the next...
Hi all, I just met with a doc today about possibly enrolling in a study for prochymal. They're also doing one for an IL-12 inhibitor. We also discussed Tysabri, and he reiterated what's posted...
getting oldER, NOT old, but yup, try and remember what I had for breakfast, forget it! And lately I find that when Im writing I can't think of the word I want to use, and it's words we use everyday!...
The CCFa has a scholarship available to its members. try their website for info...
Look at it this way... you're also doing a favor and a good deed for the person who ISN'T getting laid off who would certainly have a much harder time finding something new! Susan...
Fairfield County, Connecticut!...
are you on pred and entecort together? Isn't that overkill? I'm not a doctor, it just seems like an awful lot of cortisone in your body that could definitely be making you loopy, so to speak. It...
Look at this as a gift, a chance to figure out what you want to do. You have skills that can be useful in a variety of ways. It's also a chance to get your health together. good luck, Susan...
I've been on Flagyl for months with no problems other than they taste vile and. The stomach upset is a definite side effect, but the other symptoms sound like you could have come down with a cold or...
I'm not a lawyer, but stuff like this ought to be covered under the Americans with Disabilities Act. Check it out, becuase I'm pretty sure schools have to make reasonable accommodations....
Before I was diagnosed with Crohn's I had a pain in my hips for years that never showed up on anything. Then I started having lower back pain. i thought it might have been related to being an older...
Hi Knotted, welcome to the club. When I was diagnosed almost 3 years ago I had little to go on. My GI (I've since changed) showed me some of the pictures of the inflammation in the terminal ileum and...
You're right, Maya, I do have nothing to lose. I guess the biggest problem is psyching myself up to do it. I have "Restoring your Digesetive health," which I assume has the same diet since it's by...
Thanks for the reply. I do have probiotics that I have to remember to take. I've looked at both the SCD and Jordan Rubin's diet, but I haven't tried them partly because they all talk about stopping...
A chiropractor I went to recommend George's Alow Vera. it tastes almost like water. Some of the other stuff is pretty vile. L-Glutamine also has anecdotal evidence of being good for the intestinal...
Has anyone tried complementary and/or alternative therapies for their Crohn's? I'm thinking hypnoses, acupuncture, chiropractic, anything else? If so, what have you tried, and have they made a...
you need to see a gastroenterologist, not a GP. Did the CT Scan do the abdomen and pelvis with and without contract? A small bowel series might help. A colonoscopy can't go all the way into the small...
I can echo yp's sentiments. I'm one of those people who start having side effects before the pill has even reached my stomach. Everyone is different, but I can tell you my experience... I'm currently...
Have you asked the GI about starting 6MP after a couple of weeks on the prednisone? 6MP takes a couple of months to kick in. I flet quite good on it, but my iron went in the basement so I had to...
I'm lucky, needles don't bother me. I went to Mt Sinai and saw the surgeon last may becuase the CT Scan showed worsening after 4 Remicade treatments. I have multiple strictrures with proximal...
Speaking as a fellow sufferer and not as a medical expert, there are several other meds to try. it sounds as though you're improving, and Entecort does take time to start working. IMHO surgery should...
I had the same experience with Dr. Abreu, met with a fellow and then she came in. I've also met with Dr. David Sachar who used to the the chairman of the department. He's expensive and doesn't take...
I just joined the forum, and I was diagnosed in December, 2004 after years of being told i had IBS, and suffering with vague symptoms that didn't add up. I was told this past May that I've probably...