I am really appreciating this FEEDBACK a lot! I have been on every medication possible and it has either not worked or I have gotten severe side effects from it! THANKS! Please keep the feedback...
oh lovely! ugh!...
Hi! I would love some feedback on Imuran. Are you on Imuran? Is it working? And, what are the side-effects? Anything I should know before going on it? I will be starting soon. I was on it years ago...
Yep, I got mine. Why not I thought! I have never had any side-effects from the regular flu shot and studies show that this one is pretty much the same. I know many people as well who have gotten it...
I am currently getting iron infusions! Those may work a lot better for you. Just an idea. I used to take FLORADIX iron and now I am on BLOOD BUILDER! They seem to do okay and my stomach is very...
Yep, I do the SEATTLE one every year. It is coming up on the 18th and I hope it is a nice time. I know they just changed it from 9am to 4pm and supposedly they made it more exciting and fun (and more...
For Your Blood Type Diet (by: Dr. D'Adamo)? [color=green> [color=green>
FABULOUS, Thanks... makes sense! Sorta like me, still got the Crohn's. I am a rare case, so wasn't sure what direction to go in. I will try what you suggested. Thanks so much :) Brittany...
Thanks, I appreciate it! I am surprised that I haven't received more help or feedback, even from the UC forums! Thanks sooo much for the help Bev! Take Care, Brittany...
Yes, I know that and have already been through all of that. It has been 9 years and several tests to determine that and have already determined that my Crohn's is in the colon. Still a mystery. I...
Hi: I have been a member of the Crohn's Disease forum for quite sometime. My disease is very severe and with my Crohn's my whole colon is involved. I have been told by my doctors that I have no real...
Yep, you are very true! I am a different situation, so that is a great idea. Thanks very much. Brittany...
Hi: I have been a member of this forum for a while and absolutely LOVE IT! However, I am need of talking with people with severe crohn's in the colon OR Crohn's/UC patients that have had the J-POUCH...
Futterflies: I think that the first thing you should do is seek a support group in your area. Start by calling hospitals and asking if they have a Crohn's support group or maybe another topic that...
Of course you are not a baby! You need to do what is best for you and you know your body more than anyone. Wow, I don't eat any of that stuff when I prep for colonoscopy. Interesting. But maybe ever...
So do other people feel this way about the IRON SHOTS? Input please... Thanks, LOVEPINK...
Great! Thanks for some of your responses. Now on the IRON SHOTS: How often do you get them (and do you really think they help?). And are they painful? I mean a shot is a shot, BUT do they hurt more...
I am just curious what you guys all do for anemia. I have done it all and NOTHING works, so I thought hey ask you all on the forum. Any advice and opinions would be great. I just want to know really...
Interesting. I recently won my battle with Disability after 1.5 years. It didn't take near as long as I thought. I got denied the 1st time and then my lawyer told me that this could take 3 years....
Wow well good luck to you all on the diet. It didn't work for me. Just crazy to me how one thing cannot work for one and then work so good for the next! Good Luck! And hope it does well. My only...
LOVEPINK!!...
Hi: I was told by someone else on the forum that you were or did in the past this study! I would love to hear what you thought about it, did it help, etc? If you are willing to please share some...
LOVEPINK ...
I have never tried bentyl but have always wondered what the difference between say that and percocet is? I take percocet for pain. However, it doesn't really do much. It relaxes me a little and I...
Fabulous! I am so glad. Please keep us posted! LOVEPINK...
Okay I just did the survey for you! Gosh- I sorta hope and or wish doctors and others would look @ this survey! I really hope this helps! Thanks- LOVEPINK!...
Have you tried e-mailing the actual forum people? The help e-mail? I would try that. That would be an amazing idea. This is a random thought, BUT have you ever heard about the CCFA Camp Oasis for...
Wow JATIKA: Your story sounds very similar to mine and makes me teary. Gosh, I wish I could help. I find it so amazing that so many people on this forum Care. They truly care because they are going...
7 times including the Mayo Clinic. the pain med that you are talking about ? Is that what you take? What is the diff in your experience between that and percocet? I do go to hosp. for pain...
I personally do not touch alcohol!!! It is not good for the tummy, especially with our Crohn's tummies. But some people do fine....
Hi! I have had Crohn's for about 8 years now and am pretty much waiting for a cure. Doctors have told me they are not able to help me. I have a very severe and rare case. Yuck! Here are some...
Ahhh how sad to me. But you sound like you have completely accepted it and the fact that she is NOT in pain anymore is very comforting. What an amazing attitude you have, although this is so, so...
Def. does not sound like Crohn's. See an infectious disease doctor and get a good primary doctor that really listens and someone you trust! Sounds like an issue that you need to get taken care of...
Hey All! I hope you are all doing well or at least what us living with Crohn's consider "okay". I just sort of wanted to blog on here a bit. I am very sick (and have been for a very long time). The...
That is very, very important. Do NOT sugar coat anything....... Be real and mention EVERY LITTLE DETAIL, etc. LOVEPINK...
I would be more than happy to walk you through the steps of disability and be a support to you. It is not easy. But we, very sick ones with Crohn's DO deserve disability. Send me your e-mail if you...
Hang in there! I am always here 4 you if you want to e-mail me: [email protected] (oops should I not post this on here?) Oh well, maybe it will help someone. What area do you live in? Stay...
Gosh, honestly when I take the medications for my pain, I am usually in so much pain AND sick anyways, that I really do NOT notice the difference, side-effect wise, does that make sense? I actually...
Okay I got ya! I take 2-3 times a day and no problems with it! But like I said, I always go in between! I am 25 a day person as well, so good for you. I hope it helps and good luck to you. Going...
Great to hear from someone else FINALLY, my goodness! What dose are you taking (or are we not allowed to talk about that on here?). Honestly, it only made me loopy the very 1st time I took it. Then...
I do appreciate people understanding though and being happy 4 me that I do have some relief... Thank You! Lovepink...
I am sure it is different 4 everyone! All I know is FOR ME (again), this is giving me some relief from my 20-25 times a day D's, blood etc. I just wanted to share with everyone and didn't mean to...
LOL great to hear that! Good for you! That is good though..... a start..... and hoping you will get even more better and less urgency. That is so hard and can be so embarassing @ times. But us...
Ah well hang in there! I understand and I am sure many of us do. It started out very expensive, but after a lot of research and going to a lot of compounding pharmacy's I worked it out. Going 20-25...
Yep of course I will be careful as I am with all pain medications and all others. The natural stuff unfort. have not worked for me so I am definitely thankful. I won't get addicted, I am smart... and...
Oh yes you have to be careful with every drug you are on! As a last resort this is great for me. And yes I take it strictly for my D ONLY, not the pain! Like I mentioned before when you go 20-25...
Unfortunately, NO, it is a prescription! But ask your doctor about it. I guess some won't prescribe it which is to bad. It took 7 years before a Dr. offered it to me and I consider it a part of a...
Yep exactly :). And that is why you always want to make sure you go D or whatever you normally do before taking the next dose. It has been amazing for me though.......
Hi All! Happy Holidays! May you all feel well this Holiday Season! I am really sick and it got to the point where I had to say: Here is the deal. If you can't make me any better at least help my...
A second opinion is always good :). If I were you, I would get a 2nd opinion. If you do have Crohn's, then it is very good to catch it @ the beginning!!! Good Luck and keep us all posted! Brittany...