sr5599,,,thanks and cheers to you. I was kicked off thr Tysabri when the folks started dying....mostly MS patients. I did so well on it that I didn't care how many died...I was willingh to still take...
Doing okay thanks. Good and bad days followed by great and worse than death....The docs have ruled out the colostomy and say I will have to have an ilio....BUT, we are doing what we can medically...
Ohio... yes it will be permanent and it will be as you describe...at least that is the plan as of now. The surgeon mentioned that he could do it laparoscopicly but that he felt with me he needed to...
Thanks M.......
Ohio... issues in the small bowle as well as some major problems with the sigmoid, anal and rectal areas...the surgeon wants to do the ileo and my gastro feels we should follow his advice....
Over the past couple of years I have found the people on here to be pretty good with advice and insightful...so I need your input on these items.... feel free to comment on any portion and IMO there...
I fly a little over 100,000 every year ...been doing that number since around 1996 and so I had and have very limited concern about the most recent edicts to come out from the Airlines and TSA....
Been on Cinzia for a year...just increased pred and now added 6 MP any watch-outs or concerns? Any comments on what I mind find or feel? Gastro is sending me to a rheumatoid ologist...suspects...
just another 2 cents worth...I am now on Cimzia and a nurse comes by and does the injections... I was on Humira for about 18 months or more. I hate shots... can't stand the sight of a needle... get...
Having a hard time finding a company that makes and sells frozen meals...would be nice to have some for quick meals, or to leave behind for the baysitter to use. Hoping for a bakery/coffee shop soon...
yes..Tysabri...in certain cases...mostly the MS patients...caused an infection of the brain...something to do with the JC virus that resides in something like 90% of the people alive (or so i have...
was on it starting back in 2007...no real results, then had a major blockage that required surgery (Nov 2008) so the doc thought maybe after the surgery the humira would be able to work.....it did...
another way to get some good bacteria in your system is to eat some soggy organic rice....wild, brown and or white. Standard white rice mix is 1 3/4 cups wate r to 1 cup rice....instead use 2 1/2...
Couldn't that read "Chance for free Colonoscopy requires entry." lol...
Absolutley....with no rhyme or reason I will break out in hives...a day, two days up to three days after injection...not every injection but every now and then...maybe 4 out of ten times. It seemed...
I know it is too late...but in the future: Running on Empty (you even get a theme song with that one....Jackson Browne) or Running for Relief Good luck...and thank you for helping to get the word out...
in a word: OFTEN...
Thanks chronie....sounds like your dentist just needs to be a little better informed on crohns....it is not the crohns they base their decisions on ....or at least it shouldn't be...it is or should...
Ides is correct...for routine cleanings and as long as you are not having any major infection issues you should be fine w/o taking any anti-b's. If you have had recent surgery then you may need to...
My doc is taking me off of the Humira and asking me for my feelings on going with either the Cimzia or the remicade. I have found that the humira and remicade have very similar information cascades...
Like most I have to work....and luckily I have a job I enjoy....but yes....working and having CD is a hard combination. the trick for me has been to always be prepared for the worst....I always have...
I hear you snohare....you bring up some good and valid points. It seems that this person who did the most recent church shooting...Illinois i think...may have just recently been dx'd with Lyme...
Actually ...i am going to my gastro in two weeks and will discuss it with him then...then maybe discuss it with my primary so that I can get a referral to a pathologist. one of the associated...
has anyone else looked into ro considered the idea that their non-responsive to treatment Crohns may actually be a symptom of Lyme Disease. I have been reading up on this disease and the indicators...
Thanks all...good information, but even better support. Rider: My doc has not said no to the Tysabri....but he has said he will not be the one to oversee its application. He would prefer that I go...
Thanks for the concern Nanners.....but yes I continue to have issues. The surgery never really fixxed everything, just the major issue of the small bowel. They found areas of concern in the large...
Kasper...thank you, With the cimzia did you self inject? if so was it w/ a reg subQ set up or do they offer the pen. The site says it is to injected by a nurse in the office....but I could swear my...
I have been on Humira for over a year....almost zero improvement.... doc says time to move to Cimzia or Remicaid any thoughts? I know many of the issues with remicaid...what about Cimzia? Thanks...
fly in and out of there on Delta at least 3 times a year...never had a problem...the bathrooms are pretty much the same as in any airport....no where to be found when you really need it and...
I am 52 yrs old. DX'd about ten years ago...probably suffered with it for several years before that. The only other history of a gastric nature is my grandfather on my mothers side used to complain...
if anything...the improvement in my health...attributed to the Humira (and surgery) has done a lot to improve things in that area......
Have a very direct discussion with your surgeon and gastro...ask them for practical advice on lifting. Ask about the possibility of some sort of backbrace...only backwards so it will hold your...
The very real positive thing here is that you...YOU...are taking charge of your disease. YOU have choices and YOU have made it clear that YOU will be the one to decide. It is normal to want others...
for me ...basically the same...plus between the two admits I had the barium x-ray series of the small bowel and it showed nothing really out of the ordinary. In the hospital the ct showed the...
mine was just what you describe...only with the addition that as time went on and they became more frequent and hurt worse.....the vomiting of food became the vomiting of green bile. I would even...
each season that they were on NBC they would do one complete show as a musical....that song was/is the funniest of the bunch. Thank goodness for our DVR ...I was able to record it and we watched it...
I have posted this before, but maybe it bears repeating... My wife is a Dental hygenist...so I have some experience on both sides of the issue. It is very very important that you keep your dentist...
too funny..... from the TV show scrubs this have been posted before, but just in case......
funny but I just saw almost the same concern voiced in one of the groups on Facebook here are a couple of links...they add anything...but maybe someone else can or will dig deeper.......
I live in Florida.....but spent a lot of time and have a lot of family in an area just outside Dunnville...small town south of Toronto ...on the Grand River...
I guess i am the odd man out on this one....I had been having off and on pain due to cramping along with nausea starting last april....finally in late september it got so bad i went to my local ER at...
some of the most recent studies suggest that almost all oral tabs are non-effective. Might want to talk to the doctor about injections...they seem the most effective. Overall the studies suggest that...
Not knowing if you are male or female wolfie.....but one last thing...at least for the guys....be prepared for the worst part of the surgery......it is part of the prep and was done while I was...
Land O Lakes, FL (tampa bay area)...
for those who have a problem with flour but really miss spaghetti and sauce.... try baking a spaghetti squash....then scraping out the insides and letting break-up into the string like pieces then...
I really enjoy eating all foods....but sometimes ai need something that is soothing and will not upset my stomach. A few years ago during a family Christmas vacation to my brothers house in Northern...
Wolfie... I am the biggest baby when it comes to blood, pain and needles and I look back on my Nov 2008 resection as a piece of cake. The best advice I was given was from this site....I was told to...
I think a lot of people gave you some history and comparative information so that YOU could make an informed decision. I can only speak for myself...but I would never tell you if it was dumb or...
worked for me: Certainly not eating foods you know or find out are irritants to your body....or that you are allergic too is just common sense and IMO doesn't require a special diet to tell you...
3 inches south of the BB and about 4 inches north....I have always had an "innie" for bb so the slice went right along the edge of the opening but of course not through the knot itself. Funny thing...