I'm with you Aimee. I much prefer the syringe. I think the pen hurt a lot worse. It took me more time to work up the nerve to do the syringe but it was easier in the long run. You can push the...
I've been on Flagyl for months. It's the only thing that works for me. Humira, 6mp etc haven't worked but Flagyl makes me feel a hundred times better. I'm not quite in remission but my quality of...
Hi - I'm sorry you're having these problems. I'm a 33 yo female. I was diagnosed w/ Crohn's when I was 29. I started having trouble with rectal abscesses right away. The first few were treated with...
Mr, I had the same thing happen. I had an abnormal pap smear. Then the doctor did a colposcopy. The result was moderate dysplasia, which is PRE cancerous. Not cancer. Then I had a procedure called...
I'll be traveling to China next month. I'll spend a couple of days in Beijing, about a week in Changsha and another week in Guangzhou. I'm really worried about what I should eat for two reasons: I...
Welcome to the forum. I have awful night sweats. I have for years. I was diagnosed 3 years ago, when I was 29 years old. Hardly a night goes by that I don't wake up completely drenched. I never had a...
Usually 10-15 times per day. Usually only once during the night....
I'm not familiar w/ Dr. Klein's book or diet but I've been sticking to a strict vegan diet for about five years, vegetarian for over 15 years. I was diagnosed with Crohn's about 3 1/2 years ago and...
I was the one who started the thread a few months ago. My doctor is really excited about the clinical trial and wants me to participate. I've tried just about all of the other meds out there with the...
I'm sorry you're not feeling well and that your doctor didn't do a very good job of explaining. I have a seton in my fistula too. It's to keep the fistula open so it can drain. This will keep it from...
Aravind: I had the same kind of fistula you did - a horseshoe perianal fistula. I've had my seton for about a year and a half. My doctor seems to think there's a good chance that the fistula will...
I don't have an easy answer for you, I just wanted to let you know you aren't alone. I've had plenty of accidents as well. Sometimes I think there just isn't anything to do to avoid them. Often when...
I've had a seton for about a year and a half. It drains. A lot. I keep guaze on it and change it every time I use the restroom. I worry that there is an odor if I go more than an hour or so without...
I second what Beethoven's Wife said. Same thing happened to me. I had a horrible abscess, the doctor started me on Flagyl and after a few days it didn't help. He did a CT of the pelvis and found that...
I never take pain killers. They may be a good choice for some people, but I don't like them. I don't like they way they make me feel. I have a very low tolerance to them and they make me feel foggy,...
The same thing happened to me. The welt would be huge and painful and itchy for several days, then it would bruise and the bruise would last another week. My doctor didn't make too big of a deal of...
I know, crazy name for a drug, huh? Thanks for the input, everyone. My doctor said he was really excited about it because the preliminary data is good and the saftey data is good. I'm not sure I'm...
I saw my GI today and he's doing a drug trial for Ustekinumab starting in November. I've never heard of it before. I've done a wee bit of reasearch on the web and haven't found much about Ustekinumab...
1. past meds: pentasa, entocort, cortifoam, 6mp, humira, imuran, flagyl (plus a few supositories and enemas that I can't remember the names of) 2. why i stopped: none of it has worked. Still flaring...
I have stuck with a pretty strict vegan diet (I consume no meats or dairy products) for many years before I ever had any symptoms or was diagnosed with Crohn's. There are many healthy...
I had a series of 8 iron infusions last Winter. One a week for 8 weeks. It's totally not a big deal. I didn't have any ill effects at all. Most of the time they took anywhere between 2-4 hours....
I can't comment on the sneaky internal fistulas, because mine drains out to the skin. But I do want to say that I agree with Chroniemom - the best way to combat that "not so clean" feeling that you...
I was diagnosed with Crohn's when I was 29 years old. My brother was diagnosed when he was 12. Our sister, thankfully, doesn't have it. She's now 44 years old, so hopefullly she won't ever have it....
I was on Humira for about 10 months. Initially the injection site reaction was pretty minimal. Each injection it got a bit worse (I was using the pen). By 8-10th month I was on Humira, the injection...
Same thing happened to me when I was on Humira. MY WBC count was so low that my GI sent me to a hematologist. He did a bunch of tests, couldn't find anything and just told my GI to keep an eye on it....
Do you take your mtx orally or by injection? I've had problems w/ nausea/vomiting when I was taking Imuran, but now I take methotrexate via injection and I haven't had any nausea. I also take folic...
Hi Nanners, Sorry you're feeling so worn out. I was really anemic too and I wasn't absorbing the oral iron. I did the IV infusions of iron - once a week for 8 weeks. After the 6th or 7th infusion, I...
Flagyl is a miracle drug for me. I've used it before for abscess, and it has worked wonders but just last month I was in the midst of a horrible flare and I was waiting to see if the methotrexate I...
My husband and I are in the (LONG) process of adopting our daughter from China - we've finished all of the paperwork and been approved, now we're just waiting to be matched with our child. We didn't...
I didn't notice an increase in headaches even when my anemia was at it's worst. I do notice that I get horrible headaches when I get dehydrated from the D. I guess everyone is different though. Do...
Welcome to HW. I'm on MTX as well. I'll do my fourth injection today. So far I haven't seen much of a difference. The frequency of pain has been a little bit less lately, but that may be due to the...
I've taken both of them as well. Imuran made me sick - about 3 hours after I took it I would have vomiting and d, I tried taking it in the morning, taking it at night, with food, with phenergan, it...
Same exact thing happened to me. I had been on Humira for about 4 or 5 months when my WBC count fell to about 3.0. MY GI sent me to a hemotologist and he ran some additional labs and talked to my GI....
I'm one of the lucky schmucks that has active disease in my small intestine and my colon. My brother has Crohn's as well and he only has small intestine involvement....
I have had my seton for a little over a year. I've was on Humira for about 10 months and didn't show any improvement. I agree with some of the others - some days I forget I have the seton and other...
I did my first methotrexate injection on Monday. I did it in my upper thigh as well. The nurse said to choose a place that has a bit of fat. I don't have much in the way of fat on my stomach, so I'll...
I've been a vegetarian for 15 years. I only take a regular multivitamin. You really can have a healthy vegetarian diet and not need supplements, if you just make sure and eat a wide variety of...
I've had a seton for a little over a year now and I've held off on swimming, which is one of my favorite summertime activities. I'm losing hope that this fistula is going to close and I'm starting to...
I have to do a colonocopy tomorrow, so I'm doing HalfLytely this evening. When I picked the HalfLytely up from the pharmacy, the kit included two Bisacodyl (laxative) tablets. When I've done...
PV, I know how difficult it is, especially at the begining. I'm sorry you and your husband are going through this. I echo what some of the others have said - once you go through a greiving process,...
Do you think it could be gas? Sometimes gas can be really painful? Maybe talk to your doctor about trying and OTC like Gas X or something. Hope you feel better :)...
I have night sweats EVERY NIGHT. It drives me crazy. I've never been on pred and I never had a problems w/ night sweats until I was diagnosed w/ Crohn's three years ago. I sweat so much my hair is...
I have a fistula and I've been on Humira for 10 months. So far, no luck with fistula closure. I don't think I'm really responding to Humira much at all. My GI wants to talk about switching to...
... You can change the sheets/mattress pad in the middle of the night with hardly opening your eyes. ... You have a clean pair of undies stashed in every possible place - office, car, purse, computer...
I agree. It feels like fire when you're injecting it. I think it feels like someone is holding a hot poker to my leg. Horrible. I've been on it since last July. I always get a nasty injection site...
I didn't have any side effects. You go to the infusion center, they put in an IV, hook up saline and the iron. The first time they'll probably push the iron in pretty slowly, just to make sure every...
My GI is thinking about putting me on Tysabri. I haven't responded to Humira or imunomodulators (Imuran, 6mp) and my GI said he's been having some luck with some of his Crohn's patients and Tysabri....
I've had iron infusions. Usually your doctor will order a series of them, not jus one. You probably won't be able to tell much of a difference until after you've had a few. I had one a week for eight...
I haven't had to have a transfusion, but today I had my second iv infusion of iron. Maybe that would be a possibility instead of an transfusion? I have to go once a week for 8 weeks for iv iron. My...
I think I noticed a little bit of a difference w/ the rectal inflamation w/ Cortifoam, but it took a few weeks of using it. It's not really painful or difficult to use like regular supositories or...