Hi there everyone - I was diagnosed with Lupus a few months ago and don't yet know much about it. One persistent problem is the inside of my nostrils hurt so much. I think this is because of Lupus?...
Thanks ZenaWP that's helpful!...
I'd like to hear tips on going from Remicade to Humira. Did you have a waiting period in between? Why did you switch? I'm going on Humira in 2 weeks. My doctor said I have drug-induced Lupus from the...
Thanks everyone SO much! This is so helpful. I am going to discuss all of this with my doctor. This gives me a lot of hope....
Hi everyone, it's been a while since I posted! I've been on Remicade 3+ years and had a great experience. Seems lately though that it's wearing off and I think I'm flaring again. I'd love to hear...
I've had an excellent experience with Remicade. I think some people are hesitant to try it because going in for infusions can be inconvenient, but I'd walk through fire for this stuff. My reaction...
This is a great post because clearly so many of us have or have had this issue. Ivy, I wanted to add in that there is a big difference between being impolite and being assertive. The former is rude,...
Stef17 thanks for your reply & sorry it's taken so long to respond to your post. I just got back from the doctor and he said everything is fine, so I think you were right in your assessment. He also...
Hi everyone, it's been a while since I came on to chat. The last time was to tell you all I was pregnant! I'm now at 30 weeks and have been doing really well, but the last 2 nights experienced...
Thank you so much Stef17! That is a relief and very helpful info. This is my first and I'm amazed by the whole experience, but having had Crohn's for years has really prepared me for a lot of it -...
I'm successfully on Remicade and now 5 weeks pregnant. My first OBGYN visit is next week, but I had a question for any of you who've had Remicade babies - were you able to breastfeed while still on...
Hi everyone, A friend of mine is going through her diagnosis stage, they seem to have ruled out Crohn's and are calling it IBS. She has awful stomach pain and frequent irregularity (too much or too...
Do you think your meds affected your memory? Mine is like swiss cheese. I was on prednisone for years, I've been on Remicade about 5 months....
Other than HealingWell, what is your favorite health resource online? What about other resources? Do you use your cell phone or PDA? On Demand TV? Podcasts? YouTube? Yes this is research for work :)...
I'm not late yet...I'm supposed to get my period on the 18th. I called my general doctor and she wants me to come in...wish me luck!...
Good morning everyone. Eww....Monday. My question is this - I have a strange pain that I've never felt before. It is just above my pubic bone, about five inches below my belly button. It started...
Hey everyone, I've been having a weird experience ever since I started Remicade. Whenever I lay on my back, for example each night when I go to bed, I feel a weird pressure in my intestines usually...
I thought when I heard the word Remission from my doctor I'd be overjoyed. Instead I have anxiety, nightmares, can't sleep. He said we should use this window of time to get pregnant. Also something I...
You got it...I can't wait until my belly is swollen from a baby, and not from my Crohn's! Ha......
I couldn't be happier and wanted to share! The news my husband & I (and our parents!!) have wanted to hear: I'm in remission and we can start trying to conceive. I'm jumping out of my skin with...
jdiane - sure, what's your email?...
The reason I posted the question is this - I've supported CCFA in three cities I've lived in since I was diagnosed. However, since I moved to my current city, I've had nothing but trouble with the...
Definitely talk to your doctor. He/she may be able to help, like for example are you anemic...sometimes there's other reasons that you're tired, not just the Crohn's. I deal with remission by...
Hi everyone, Do you know of a nonprofit that benefits those with IBD? I'm looking for an alternative to CCFA for making a big donation. Thanks! Carly...
Remicade treatment #2. Please pray for me - I am really hoping this works!...
Philly - Dr. Francis Dufrayne at UPenn. He is fantastic. He spends time with me making sure I am getting all my questions answered. He knows a lot about all of the newest treatments and weighs them...
Does it work right away? Does it hurt? What should I know? Did you have a baby on Remicade? (I'm not pregnant now but would like to be)...
I have to fly tomorrow and my white blood cell count is low - I'd love tips on how to avoid getting a cold (or worse!) from the other passengers. I've heard about airborne, and that I should wash my...