Hey Dom, I am relatively new to crohns, I got diagnosed back in March but have had symptoms my whole life. I have the same troubles that you are having and everytime I go to the ER they tell me...
Sounds like a flare to me, but I don't know for sure. I've always read when you see mucus when you whipe its because of inflammation. Call your GI and get some bloodwork to find out for sure. GOOD...
You probably should listen to your doc on this one. The way I see it if we are in remission, the medicine put us there so if we stop then there's an increased chance of a flare. We need it to keep...
My doctor told me last time I was there that I had IBS...but I thought IBD is just a worse form of IBS, I don't know it makes no sense to me. I call whenever I feel like I'm bad enough, I don't care...
I am like nanners, my pain is always worse in the mornings. I guess it might depend on what times we eat through the day. I dunno, that would be a good question to ask your doctor. Hope you get to...
Hey! I would like to know what the symptoms of that are...I might have one myself. Sorry I can't help you!...
Hang in there. At least you are taking your time and actually getting through school. I had to drop out because I couldn't handle all of the stress from being sick. You should give yourself a pat on...
Jenn, I have been suffering from depression as well. I just want to snap out of it, but its so hard since we are sick. Try to think positive, and as much as Ive been saying that on here its starting...
Glad to hear that your other son doesn't have it. You should see improvement by the 3rd dose, after that if he still doesnt improve ask his GI to up the dose. And then go from there. Good luck!...
Any of this help you?...
Call your pharmacy and see if those medicines cause headaches as a side effect. My aunt is on Relpax or Imitrex for her Migraines and it seems to work pretty good for her. Tell your doctor to check...
are you on anything like pyridium or anything for urinary tract/kidney infection pain?...
Hmmm...I've been wondering the same thing lately because before I was never having any good days. But now I'm about even with the good and the bad. I plan to ask my doctor this very question. Its so...
My aunt had one without anything and said it was rough. I had mine under general anesthesia I couldn't imagine not doing it that way. Afterwards my throat and bum were so sore I had to get a pain...
Ive been dealing with the same issues. For about a week I have been fine, and today I woke up in an awful lot of pain and had really bad D all day. I thought I had FINALLY went into remission, but I...
Its so awesome to see a teacher concerned about one of your students as much as you are. I am 21 with crohns and have to kids. It is a very horrible disease, and the most active part of the day for...
Yea I know exactly what you mean. I have just quit complaining all together!...
Hairy tongue? I have little red dots raised up on my tongue. Is that similar to what you have metallichic?...
thanks for the info, its made my day!! Hopefully it will be available really soon! We are sick enough they just dont know it lol!...
Happy you went...it wasnt that bad was it? It always helps me when im in a lot of pain to get the shots and rest helps a lot too. I have a hard time sleeping when i feel bad like that....
Never had this happen to me before. But I noticed while on steriods that they absolutely made me insane where I couldn't even stand myself anymore....
Awesome! Its good to know that other people with this darn disease are trying to think positive. I suffer from severe depression and have found that anything I can do that I enjoy helps. Rather that...
Mine are completely gone too, it may be just where i was used to having them swollen for being pregnant for two years straight. Who knows? But I see that mine are a lot smaller here lately, but how...
Didn't mean to freak anyone out. No medicines have worked for me, everyone is different... and there are a lot of ppl out there that are in remission because of remicade. So don't get discouraged...
Sorry can't help you on this one. I am wondering the same thing myself. I get that same pain before I use the bathroom no matter if its D or not. Ask your GI to find out for sure....
Try a really healthy diet. I only took steriods for about a month and my face was already starting to get swollen. Walk or jog all you can, and work out if you are able. If you are able to stand a...
Im about to switch to Humira or have resect surgery. It's not helping me that much....
I have that sometimes too, my GI said it was nothing to be concerned about....
Hey Jenn! My fourth treatment is coming up and I'm wondering the same thing you are. I don't go back to my GI until the 6th, but I'm going to ask him what he can do. I feel sick to my stomach all the...
P.S. GI's know a lot more about the stomach than any pediatrician, so listen to them first and foremost!...
For sure take her to a stomach specialist (GI.) They had a hard time with my diagnosis the biopsies could not be for certain. They ordered a camera pill and Small bowel follow through to confirm....
It just takes the right meds to get it under control. I have had it since march and since havent seen remission yet. I have tried almost every kind there is, but other ppl are different. Yes, you...
I am so sorry to hear that you have to deal with this during your pregnancy. I have two sons and was in remission with both of mine. But shortly after I had my second baby I found myself in a...
The camera pill helped my doctor finalize my diagnosis of Crohns Disease back in March. I think that would be really helpful. Your GI will be able to see exactly what is going on in there from all...
Remicade is an immune suppressant and you may actually be getting a cold. Thats just a thought, you might want to call your GI ASAP and find out exactly what he thinks might be happening. I've been...
It depends on how bad you are. If you pain is intolerable then you need to go because its silly to have so much pain that you can't deal with. If you are dehydrated they will give you IV fluids and...
umm....they usually give me a steriod shot which I have to wait 30 minutes after that, before I can start the actual med. Remicade usually takes at least 3-4 hours. A long time I know, but its worth...
Not sure about the obstruction, I've never had one. But I usually get pain like that if I have ate something that doesn't agree with my crohns. If the pain stays constant or gets worse I would go to...
Does your state have something like Medicaid for low income parents? I don't know if you have low income, but I'm in the same situation you are. I applied for my disability and got turned down, but I...
Its a hard journey, but as long as you stay strong you will be alright. Stress always flares mine up and I make it worse on myself than it really has to be. It's horrible being sick, but it helps to...
Poor Steph. I know how you feel me and my fiance don't get along near as good as we used to because of my CD. It's hard feeling so bad all the time and when you lose your support it makes it much...
This is helped me so much. I will keep you guys posted! :)...
Thanks so much for the advice, I will probably ask my GI at the next appt. to up my dosage on the Remicade and see if that helps me any more. I'm glad to hear that you are feeling well people on here...
Hey everyone. You guys probably already know my story. I got diagnosed with severe active crohn's back in March right after I had my two babies and I have felt like crap ever since. They tried all...
Its a battle, but we will make it through. I'm not currently working, I applied for my disability. I have two small children and this disease makes it rough, but what the future holds we never know....
I have had about 35 UTI's since high school and I don't know what causes mine either. I have bad kidneys though because I get kidney stones really easy too. Try drinking lots of water and make sure...
Didn't know anyone else thought that way too. I do every time I go to the doctor because I feel like so much crap and they are like we don't know what's causing your pain..I think to myself sometimes...
I applied for my SSI/disability but got turned down by the state go see a lawyer friday to fight the case! So good luck with that!...
Its helping some, mostly with my joints. My stomach still hurts all the time and I'm so sick and tired of being sick and tired. I don't know why this happens to people but I guess its one of those...
I agree 100% I had a doctor with crohns disease that I only got to see once. He was wonderful and so understanding. It's like if they dont have to deal with it theirselves then they don't really...