this is the 3rd gi doc that i have been to. the first refused to do any testing, the second was great but he would not consider any tx after remicade failed except for his clinical trials so I went...
i guess that we all feel like this at times, but i have had such a long time in the flare zone that i don't know if things will ever change. i was diagnosed in 3/07 and have been doing a downward...
i don't think it can hurt to explore your options- just don't risk your severance...
fitzy i would be careful about pushing fiber if it is something that usually bothers you. i would use a stool softener (not a laxative) and make sure that you are drinking plenty of fluids. stool...
While yellowfin's "victim" comment was uncalled for, the statement that some people cannot comprehend things that they can relate to was very important. It is as if we are speaking a foreign language...
i am sorry- you have had a really rotten time lately. my computer is still of in computer world being fixed so i haven't been in touch. i lost both my parents and my cousins, the relatives that i...
what happened to sarita?...
i am reading this from work b/c my computer is still broken. I am praying for you and sending you a huge hug. You have been through so much. I hope that everything works out, but please dont feel as...
for me, being diagnosed came while i was going through a very painful divorce. I had been married for 11 years, and I raised his 3 children from another marriage. at first i thought i was just having...
snohare- what a brilliant idea to write down what a day is like. i think that the more i can make myseld "hunan" and real, the better chance I have of getting help. THank you so much for your support...
thank you being there. i am hoping that this appt will help me plan out a strategy. it has been difficult with my other docs- it is more along the lines of "try this and Iwill see you in a month-two...
woudn't they be able to tell with a ct scan, or an exploratory laparoscopy? i have had both. Interestingly enough, the exploratory procedure was done with a laparoscope and general anesthesia, and...
i see a gi doc- i am on humira and entocort. I have failed most 1st line therapies. I hve tried acupuncture, heat/ cold, any variation in diet that exixts, i wear a lidoderm patch and take...
whAT about PAIN MANAGEMENT...
I have a relatively "mild" case of crohn's as per a pill cam. No strictures, no blockages, no surgeries. I have pain every day, beginning early afternoon and winding up to the crescendo at about 4....
What about those little self warming heating pads. I wear them daily to help with the pain in my abdomen....
My GI was kind of the same way- she said that she did not like to prescribe pain medicine because it may "Mask" something. I had to ask this woman to feel my abdomen- she had not touched me since the...
It is a nerve block that deadens the nerves of the celiac plexus (look on google images). THese are the nerves that are responsible for the small intestine. It is normally used for intractable pain...
after 2 years of daily abdominal pain, I am going to be evaluated for a celiac plexus nerve block. I am praying that this works....
I went to see a new pain mgt person today who says that he wants to wean me off all narcotics, and use trigger point injections. He agreed to a celiac plexus block but did not feel that would be all...
ask to have a capsule endoscopy...
i developed lupus like symptoms on remicade- i couldn't use my left leg. my ana was 1:640 and speckled. i am now on humira and have a malar rash. appt with rheumatologist in am...
i would try a non-spermicidal condom and a gel such as astroglide- lots of it and go slow...
that is where my pain is- i have it almost every day, and it is not crampy, itis just steady and burning. it starts to be really obvious around 4pm and does not go away until i go to sleep. i wake up...
sometimes as many as 10-12- usually in the am. usually 4-6....
i think that this happens to a lot of us- it is not just the scope, it is the air that they use- it is too much for our aching little intestines...
i have crohn's in my duodenum and jejunum as well as my proximal ileum. no terminal ileum. that is supposed to be weird as well. my symptoms are frequent thin yellow stools and intractible pain. so...
is there a target near you? there always seems to be a need at the target store...
lmills if you are interested in keeping in touch, sendme a pm with your email address and i will write you bacc. i hate to lose touch- esp since we are kindof in the same boat medically...
what are they like? can you tell me briefly what to expect?...
i was colonized with MRSA as a result of 2 years of working in an emergency dept. i nicked my underarm while shaving and it turned from a little irritation to a huge cellulitis. really scary.re:...
that is celiac plexus block- i mistyped...
bump again- thanks gail...
I think that i had a serumn sickness reaction to the humira. i called my gi and she said that she wants to give me one more dose and if i do the same thing or fail to show improvement, she will take...
may be from the prednisone- get your blood sugar checked...
i broke down and took 20 of pred. i need to start a PPI- is opemprazole helpful? my ulcers are in the duodenum, jejunum and prox ileum. i found a lactose free cottage cheese which i eat with...
i am not sure about the fever. teh other stuff sounds like pain med withdrawal. fever is a red flag- you should get checked....
i have crohns and the pain does not respond to narcotics. i havfe heard of celiac plexus blocks- has anyone else heard of these?...
thanks for your support- i went to the er and they found....nothing. I think they thought i was making it up to get drugs (which did not really help anyway). that or it was a reaction to the humira....
if so, did it work? where is your crohn's? where did you got itdone. I am pretty desperate. Thanks in advance. /community/emoticons/cry.gif ...
i am going to the er in the am if it is not better. i don't know how i work either- i have no choice- no family or other means of support. i have a job with a bathroom close by- it is a low stress...
what is weird is that i have been having drenching night sweats for the past 2 nights and the pain is really intense. I am working again today but am considering going to the er after work. this pain...
i am having a horrible time. i hade the humira 3 days ago and i have had nothing but abd pain since. last night i went to bed at 6 pm and didnt get up til it was time to go to work this am- i had...
where is the pain? right upper quadrant pain that worsens with respiration may be gall bladder...
happy new year lmills how are you feeling?...
My pain usually makes itself known around 3-4pm and gets gradually worse until I go to bed. My best time is in the am and the afternoon. I have posted the question "when is your pain the worst" on...
i haven't had it but i have seen and treated a lot of it- it is definitely making its rounds...
they last anywhere from 24 hours to a week but most of them are 24-36 hours. I have seen a lot of people with this lately. Sheer hell for a 24 hours and then it goes away. It is just that we all...
perhaps it was an old fashioned gi virus! keep me posted- there are a lot of people out there with this virus, maybe you picked it up and it has nothing to do with crphn's...
you are right- it is a constant up and down with these symptoms lately. Nanners, thanks for any input- i am trying to do a low residue as well. if you grind nuts to a powder or paste, are they...