I was diagnosed looong time ago with crohns disease but since ive had my colon removed....i have severe arthritis. My rhuematologist says its very common for ppl with ulcerative colitus to suffer...
Hi, I had tons of discharge too after surgery. (yeasty looking, no odor, just lots of it) I didnt see how bowel surgery could effect other areas? I panicked and got a pap test right away. The doctor...
Hi there, Im not sure if Im still partially blocked. I eat and get sooo bloated BUT Im eating. Gotta be a good thing right? My energy level is nearly back to normal. I still feel full hours (8-10...
Im am feeling better today. The watery liquid has a little substance. Im thinking its the start of the blockage being cleared? Still cant eat much. I didnt take anything but liquid for the first 2...
Ok..four days ago, I ate a roast beef sandwich too fast and caused a partial blockage. I have had tons of liquid coming out of my stoma but thats it. I have an illeostomy but its never been just...
I had my surgery last year. I suffered severely for 2 yrs before that.. I lost tons of weight then gained it all back from all the prednisone. I still have the moon face from that. I couldnt leave my...
Hi there, I am just here with another experience to share since we all have different ones. I had my surgery 9 months ago and still cant feel my bladder. It is numb? I just cant feel when it is full...
Remicade worked for a year then i became immune to it....
Hi there, I had my surgery done last May and Im in heaven!! It reeally is soo much better than running to the bathroom. I love mine and dont regret my decision at all. Im 38 and the happiest ive been...
Hey christine..Its been 8 months since my surgery. I still have some blood and mucus. Ihad quite a bit coming out months after surgery. I was going to see my g.i. but my body had its own plans....
polishdan..I think it had something to do with my surgery since Ive never experienced anything like this before, but the doctors dont think im right. Yet..they have no answers as to what could have...
I just got out of the hospital after 3 weeks. I went into emerg with extreme abdominal pain so they did a ct scan and found 3 interabdominal absesses (5cm.in diameter) swollen kidney, 2 blood clots...
I had the same experience as andorable...after surgery my arthritis kicked in full force, but my doctors took me off of all meds. I also got erethema nodosum all over my legs (sp?) I am taking the...
yuppers...if you type it under "search" you will see alot of us having success using them...good luck...
Are you using the sureseal rings? I have used them since day one and they are great. I havent had any leakage issues. Good luck and Happy (almost) birthday...
As much as I hate my moon face...I must admit that I look younger than my friends daughter...and she is 27. I am gong to be 38. I notice that all my wrinkles show up when I loose the pudginess. I...
Hey..we all fought the good fight. I just got tired of it. With the cronic ilness, Im never going to be completely healthy, so Im jsut making the best of a sh***y situation...pun intended...lol I do...
Hello, I dont know about it causing more problems?? since I already have the bladder problems? Mine is still numb after three months and I still have leakage problems. im just as frustrated! I still...
I had a hard few years with my crohns disease until I finally opted for the ileostomy. I cant say if it would be right for anyone else BUT oooohhh mmyyyy goddd!! I love mine!! I dont have to take...
Hey there christine.. I only bath. It does fray the edges of the wafer a little bit but nothing too major. I just blow dry when im done. Loooove my baths...
My ostomy nurse (both of them) said most people just use paper damp paper towels to clean around the stoma. I occasionally use the wipes to get adhesive build up off but normally... water and paper...
I would always get bad acid reflux when I would get backed up from imodium. Id loose my voice and my throat would be sooo soar. I went to my doctor sooo many times just to make sure it wasnt my...
Sorry to hear ....but I think most people with illnesses feel alone and misunderstood. I dont think anyone in my life understands what I go through. I just think it comes with the territory. I wish i...
There is a "depression" forum here too. I dont know if you could get some tips on depression there or if she wants to read a few threads.....
I give up!! I drove 2 hours to the city to see my surgeon ....just to find out he was called for emergency surgery. If I wanted to wait...there were 5-6 ppl ahead of me BUT it was already 1:45 and...
Hi christine...yes Im stilll having discharge. I dont know why but ive had the pap and the cup peeing and nothing showed up. The doctors seem to think my body is just trying to settle itself. I have...
Hi christine.. I was under the impression that my surgeon was sewing me shut and I dont know why he didnt? My crhons disease destroyed my sphincter muscle so ther was nooo reason to leave anything??...
hey there,, I still have mine too? I am having problems with hemmroids inside and he mentioned me having "another"surgery to remove them??? I dont get it either? Why not just get rid of what ever is...
Thank you soooo much for the support and ((hugs)) It has cheered me up alot....thnk you :) I saw my doctor today and he referred me back to the rheumy. Hopefully, I get back on the meds to ease this...
Thank you Becky and Gail... I try to see my cup half full but...hey we all have our off days.. I appreciate the time you took to cheer me up.... All the best Celine...
I had surgery done two months ago and now have a permanent ileoostomy. I was praying that my life would sort of go back to normal. Maybe go back to work?? Since Ive been sick...Ive lost my hubby, my...
The word "gasket" comes to mind...lol /community/emoticons/tongue.gif ...
My stoma sticks out quite a bit. I use the flat dougnut looking seals. I wrap it around my stoma and then use the wafer on top. My stoma nurses told me to cut the ring in half and put it on since the...
Hey there..sorry. Welllll...hehehehe I was avoiding this because I didnt really do what I was supposed to. Im a pretty stubborn person (lol) so when I didnt have any sharp cramping or nautia....I...
Not sure...but I think some people have used cooking spray like pam? to help out gravity... good luck...
Its sounds like he is looking for a happy medium? I hope he finds it but ...the odds are not in his favor. I had crohns colitus. My colon is gone and "good riddens!" Worst case senario...he has the...
I tapered to 20mg for surgery and then 5 mg a week but Im back on it due to my arthritis kicking up a fuss. I have always read and heard that most ppl do 5 but what is ur weight, blood work, health,...
This might not be helpful but I started out using the thicker ring that was sticky on both sides which irritated my skin and left alot of adhesive on my skin. So my ostomy nurse brought out another...
I had 2 GREAT ostomy nurses who gave me all free samples of things I would need in case I have any problems and I have had to use the powder for irritated skin around the lower part of my ostomy....
I just had a partial blockage from bbq pork chops. I "however" did NOT chew it properly and I knew it..hehehe It just tasted sooooo good. I got my ileostomy at the end of may....
Thnk u both. I called the ostomy nurse and she said go to the er. I guess 4 days and the heart burn are good enough warning bells. Thnks for your advice.. wish u both great lives. Celine...
Its been 4 days since I had a wonderful piece of bbq pork chop that I didnt chew properly. The next day , I had lots of tummy pain so I started the liquid diet and grape juice. I met with my ostomy...
I love the doll! It sounds like a great idea. After I came home from surgery I told my neice that my bum is broken and doesnt work anymore. She was sooooo curious to see what I was talking about ....
If you are going to be in a room with 3 other ppl like I was..you'll need ear plugs and maybe eye covers. I brought my music to listen to and my laptop to watch movies. Slippers that are easy to slip...
I have my follow up appointment next week. I had my colon removed and never thought id ever have to wipe my butt again but Apparently I stilll have to poop out the mucus still being made?? I am going...
I think my bladder is 90% back to normal now. Its been almost 2 weeks. The doctor gave me a choice of doing the disposable catheter or the bag..and I chose the disposable one. Twice a day I had to...
Well its day 7 since my surgery and Im starting to pee on my own. It seems to work if I wait till my bladder is full? I did get antibiotics from the doctor, and I am slowly starting to feel better...
Thnk u anthony. Wish u a great life... Celine...
thnk u soo much for ur response flchurchlady. I really have been giving my self anxiety attacks worrying about it. I am happy to be disease free andd medicine free too...yahoooooo! Have a great life....
I just cant believe how the hospital here (vancouver, canada) shipped me in and out soo quick! I had my colon removed on Friday and Im sitting here at home on Wednesday? I got an ileostomy and I DO...