That happened to me too, and my infusions were moved up to every 6 weeks. Good luck!...
I guess I am now officially off all of these types of drugs, since I've had so many side effects with Remicade and Humira....but I wonder if anyone else has had bone pain on Humira? I've been on it...
So I thought I'd update.... The headache is still going strong. I passed out at a family BBQ on Saturday, how embarrassing. The ambulance took me to the hospital, none of which I remember. I got lots...
I have Celiac Disease along with Crohn's, and I'm also allergic to eggs. My GI has told me that this happens often in Crohn's patients, and that likely more allergies will develop as I get older,...
I've used Bentyl and Levbid in the past, and they do help. I'm also on Soma 3 times a day for the pain in my belly as well as the wonderful joint pain and muscle spasms I've developed over the years,...
I called my GI, she happened to be on call. She said she suspected a bleed, and had me go back to the ER. Anyone I spoke to could not believe the doctor last night didn't do any bloodwork. The took 4...
I actually went to the ER last night because I passed out again, was at a family BBQ and went out like a light....the doctor was useless, asked ME how I wanted to be treated, should he treat my pain...
Well, I haven't gotten the occult blood test or done anything, today I can't go at all, and I need to....it's just not working. Never been in this predicament before. Did you have any constipation...
Randy, I've been feeling very faint and dizzy and actually passed out a few times 2 weeks ago, been close again the last few days....I assumed that was going along with the migraine that I'm on day 6...
This headache is still going strong....and getting stronger. I've been vomitting all day, which used to give me some relief.....but not anymore. I took my last 2 Frova, and have been taking Vicodin...
Hello! I don't know where else to look or ask...so I came to my old comfort place. :) I have had diarrhea for 6 years straight, with the exception of when I was pregnant. Once the baby was born, the...
I take 300mg 3 times a day, and 600mg at bedtime. It hasn't done anything at all for my headaches. It's helped the neuopathy inmmensly, but nothing for the headaches. I hope you start to feel better...
I use the pens and really like them. They're very convenient and simple to use. I haven't used the syringes and don't plan on it, since I do like the pens so much. I have also found though that it...
Ry, I kept my ovaries, but testing showed that I am in menopause. I use Premarin, I do 0.5 every 3 days. I never thought about that....perhaps I should make an appointment with my gynecologist too!...
Hello all! I had to come here and post, I really need some answers and opinions on this. I've suffered from migraines since my teens. After trying many different meds, including Imitrex, Maxalt, and...
Thank you so much! My hair is black, but thanks for the offer! I will definitely look those products up NOW then, and maybe I can start them and be able to do something with this hair, or...
Ides, I'm taking 1000mcg of B12 and 800mcg of folic acid....2 a piece per day, she never really gave me an exact amount to take, just said, read these and take this please lol. I've been on Asacol...
I didn't have to do any prep before the capsule, just clear liquids after 6pm the night before, and actually, I messed up and had a bowl of blueberry ice cream around 9 that night, and it still...
My GI has me on VSL3, zinc, iron, B6, B12, D3, folic acid, and calcium. I also drink Dannon Activia and whatever the other one is in the green package....can't remember at the moment, all recommended...
Hello all, I have been losing my hair since starting steroids 5 years ago, and it got worse for the 2 weeks after my Remicade infusions, but now that I'm on Humira, it's falling out constantly, in...
His bedside manner did stink. He is a pain management specialist and neurologist. I asked the office when I called for the appointment, and he prescribes. My husband is coming with me next time, like...
First, thanks to everyone who responded to my original thread. Your opinion and support were very helpful! I went on Thursday to the pain management/neurologist, armed with a list of my issues, and a...
I was able to keep my cervix and both ovaries (wish I had them out now with the new evidence of the link between anti-TNF drugs and cervical cancer), and my GYN insisted when I asked prior to the...
Thank you guys all so much for the advice and prayers. It means so much. We just got back from camping (never, EVER fun when you can hardly move), so tomorrow morning I will start a pain journal. I...
Thank you guys for making me feel like I am not alone! Your stories and support mean so much! PaLady, I have spoken to my GI about seeing a pain management doctor, and she was concerned because at...
I had the same reactions during my infusions...hives, sweating, extremely high pulse, high bp, chest tightness, tongue swelling....insane. I was getting 60mg of pred, solumed before the remicade went...
This could be long.....I'll try to give the shortest version I can. I've been battling Crohn's since I was about 18, diagnosed at 25. The diagnosis expanded to Cohn's Colitis with IBS. I've been on...
I just posted a similar quetion, I hadn't seen this one. I just had my first 4 injections last Friday, and I haven't seen any improvement at all. In fact, I've felt worse! I'm the first patient in...
Hello! After a few years on Remicade, many bouts of serum sickness, and reactions during each and every infusion, I'm finally on Humira. I had my first dose of 4 shots last Friday, and I'm due for my...
Thank you all for the replies. I ended up going to the ER. I had a cat scan, which showed a lot of inflammation and quite a few kidney stones, one 3mm stone in the left distal ureter, many in the...
I have Crohn's on both the left and right sides of my lower abdomen, diverticulitis on the left. I've been in the bathroom much of today, not feeling well. My bloodwork has been really a mess lately,...
I have been lucky enough to have Crohn's and Colitis, as well as celiac disease, and we're looking into RA now....I've had some x-rays and have a referrel for an rheumetologist. Colitis isn't a...
I up my pred to 40 mg a week before, and do 60 mg the day before, day of, and day after my infusion, then taper back to my normal dose over 2 weeks. I take 2 Tylenol, a Claritin, 2 Benadryl, and 150...
16 Asacol 1 prednisone 3 Entocort 2 Levbid 2 Lomotil 1 HCTZ 1 Lisinopril 1 Cymbalta 2 Aciphex 3 Soma 1 Multi-vitamin 1 B-12 1 Vitamin A&D 1 Zinc Pain meds and NuLev as needed, Remicade every 8 weeks....
I was given a free bottle, trying to be convinced to become a distributer. It tastes horrible, coats the inside of the cup (which to me doesn't sit well lol), and did nothing at all for me. Everyone...
You know, i don't know this yet. I'm jumping to conclusions. I called the office back and the nurse didn't know what to tell me. She's going to try to have my GI call me today, and try to squeeze me...
Yesterday I got a call from my GI's office...my bloodwork came back, and it showed an allergy to wheat and egg whites. I was supposed to have an appointmnt yesterday, but had two of my kids home...
Hi Chris, I have, unfortunately, been on prednisone for 4 years now. I started out on Entocort, and then it wasn't working as well as it should have....prednisone was added for what was supposed to...
I get something similar, not sure if it's the same you have...I get them on my arms and legs mostly, sometimes on my chest....they look very scaley, they're round and itchy, but don't hurt. They're...
Good luck! Please keep us updated on how it goes. My GI is trying to get me into a trial....
Ahhhh, so much yesterday. I lost 2 more pounds, which shocked me, since I had all those steroids. My GI wasn't happy that no one let her know what happened. She seemed a little annoyed that a doctor...
Hi Robert, I have suffered from insomnia for years. I started out taking Tylenol Simply Sleep, then found out it was just Benadryl...much cheaper to just buy the Walmart brand! It worked for awhile,...
Wow skeptical, 2 years?!?!? That's a long time, you poor thing. I have been on prednisone for 4 years now, and I have yet to be successful in getting off of it...I need to see an endocrinologist when...
Yep, that's why my GI has said it is. In fact, my poor husband has gotten it from me. :/ I've been on a 7-day course of diflucan twice now, and it hasn't helped. It's worse now than it's ever been,...
Excellent. I wondered the same, if the difference in the type of proteins would make for less instance of reactions. I also wondered about the difference in using the syringes as compared to the...
Has anyone developed a hairy tongue from their medications that they just couldn't shake? I got it maybe a year ago, a mild case, but every time I was put on antibiotics, it has gotten worse. I've...
Thank you all for your input. Remicade doesn't seem to be working as well as it used to for me either, so I'm really wanting to give Humira a try. I appreciate everyone's stories. Pup, congrats on...
The doctor I had in the ER yesterday knew a bit about Remicade, and being that it was slow, we chatted a bit about what was happening to me and the terrible things the drug does to people. He told me...
Thank you for the input, Judy. I don't think there is much else for me. Like I said, I'm allergic to 6MP, so I can't take that again. I've been on prednisone for 4 years non-stop now. I don't...
I am presently dealing with my second bout of serum sickness from Remicade. I got it 2 years ago after 10 months off of Remicade during my pregnancy. It was horrible. I have had reactions during...