Hey C2, been a long time....just wondering how you are doing these days. Did you make it down to the Horse Park for the WEG? pup...
Got me over my fear of needles!...
I take .5 mg each night. It helps me!...
Fistulas and fissures are awful! I've had three Fistulas that have abscessed. Remicade was just awesome for them until I reacted to it. I tried Humira, but it did nothing for me either. I'm on Cimzia...
Coloring Books for the kids that have this wonderful disease. Coloring Books for the grown ups that think they're still kids :) pup...
Lots of ice first! I remember breaking out in sweat when they mentioned the pens to me! Good luck....
As one who has had a HORRENDOUS abscess, I say go to the ER and let them take care of it. The last time I had one (not nearly as bad as the first one) I went to the ER so I wouldn't have to wait....
Fissures are common, so without further testing, it would have been unlikely your doctor from last year would have found Crohn's - the inflammation could have been just from the fissure. The way a...
Although not a woman, I've been on both. Remicade was a wonder drug for me too, until I had to stop taking it. I was in the Humria trial after the remicade. I didn't respond to it while I was on it,...
I've always gargled with Hydrogen Peroxide. Even had some burned off if they got too bad....
Sorry to chime in late on this one. I was given the choice yesterday to continue with Humira (but doubling the dosage), starting Cimzia, or starting Tysabri. I don't know what it is about Tysabri,...
Count me in too. Largest I've passed is a 5mm x 3mm....
I had a fistula for 18 months and a couple of weeks after my first infusion the fistula was healed. It really did the job for me. pup...
Well, he has since retired and is now doing work at the VA. I've mentioned to a few people that our service men and women have suffered enough without having "Dr. Fingers" working on them :) I have...
I told you I'd let you know about the Rolex event. I heard this morning on NPR that it will be April 24th - 27th. I don't know if you wanted to try to come down for it this year or not, but at least...
DragonFly... My GP Mentioned a cream that her practice partner had prescribed, but again couldn't remember the name of it. She was going to ask him what it was, so it may have been Betamethasone. I...
OK everyone, I will let you know what I find out. For now she's given me some Cipro HC drops to help. C2, as for the lung problem....It started about a year after the Remicade. I got a pleural...
I'll say I have the best GP in the world! The past few months have been awful - she's been off having her first little one. She calls me her case study - I think I amuse her. The whole lung thing...
So I went to my GP this morning because of some ear issues I've been having. My ears have been itching like crazy! I was telling her about these flakes of dead skin. I said it was almost like...
OK, I'm not doubting there are good results......I just want to know WHO sits around and THINKS UP THIS STUFF??? I just can't imagine a situation where I would be sitting around, most likely on the...
Ouch! Sorry about that. I can think of few things that compare to that "exquisite" pain....
I was put on it after getting off Remicade. Like tsitodawg, I didn't like it at all. After each injection (which I only had 2 or 3), I kept getting flu-like symptoms. I took myself off it. Shortly...
Matthew, I would recommend downloading Picasa - it's a Google application. The neat thing about is is once you plug in your camera and turn it on, then Picasa will start up automatically, show you...
C2, I haven't heard anything about the Apheresis trial. I still don't know if I was getting the real deal of not. I did reread my blog from that time - I couldn't remember what I went through:) But...
Well my crohn's and I aren't getting a long too well these days. I came out of remission (boy those were good times), have ANOTHER fistula, had an abscess removed, and feel pretty crappy. Not to...
Count my fingers in too. BTW, are we getting together this Rolex? And should we invite the others on the list to join us :)...
I hope it's OK to post these, if not, I'm sorry and will try to do better in the future. I thought this might be useful though: This site lists the Safe Gluten-Free stuff:...
Each time I got the ER about something Crohn's related, they ask if I've been bleeding. Then the next thing they're doing is sticking a finger up my bottom. They then put a sample on some type of...
Howdy everyone. It's been a while since I've had to ask a question, but I need some info now. I've been in remission for almost a year now, but I think I can safely say I'm no longer in that state of...
I hear lump and anal region I think rectal abscess. I'm on my forth one right now. My first 3 had to be removed (the last one just 3 weeks ago). I actually have another small one right now that my...
Indigosunrise, Firstly welcome and know that you are not alone with your feelings. Many of us went through the same when we first started getting tested. I will say this, the worst part of the scopes...
I was indeed in the Adacolumn trial. I still don't know if I was getting the real thing or not. You can read about it by clicking on the link in my signature. I was able to take 5 before having to...
During the trial, I was put on it weekly (after the 5th week I think). - pup...
C2! I wondered what happened to you. I haven't heard from you in forever. Next year's Rolex maybe we can get together. Maybe we should start asking the people on here to make plans now to meet us :)...
Two nights ago before going to bed, my two year old daughter had to go to the potty. She said "My bottom hurts". I said "It does". She started nodding her head and stood up so I could see. I...
I just happened to ask my niece something about this just yesterday. Both she and my younger brother are Optometrists - she happened to be online, so I asked her. Here is what she said: patients who...
Yes it's approved. That what ended the study I was in :) pup...
Jack - ugh! I really didn't like that one. I was on it between Remicade and Humira. I got really achy all over after each injection. Besides prednisone, that's the worst I've been on. Maybe someone...
Shannon, Since Humira doesn't have the mouse protein it isn't as easy to get anti-bodies built up, so I think I'm safe. I will say that I didn't use the pen. The stinging was better controlled, for...
glowmoment, Remicade was the best medication I was ever on. I loved it and really looked forward to the infusions. It surprises me that ginger71 keeps getting fistulas with it. I had a fistula for 18...
Do they give you any pre-meds at all? - pup...
I was on Remicade for about 15 months or so. I ended up with a lung issue. Since the doctors could only thing of Remicade that caused it, I was put into the Humira Trial. I stayed in it until the...
Danielle, Mine was doubled after a few infusions. It worked better after that....