Hi Debs, I did not get a headache with mercaptopurine, but it did cause pancreatitis as a side effect. Upper abdominal pain(as opposed to my usual lower abdominal Crohn's pain) which went though to...
FYI--Might find this interesting. Researchers using whipworms show 70% remission in small study of 100 patients. Link: [b]I edited out the link do to the amount of advertising on the site and I do...
I had sores in the mouth also which occurred during my main onset of CD symptoms and prior to a final diagnosis. I read a post on here about using Listerine and swirling it around your mouth whenever...
I love this forum! It's nice to know that when you have a question or just want to vent, this outlet is available. I was about to ask a question about entocort, but all I had to do was browse through...
FYI: Found these interesting articles on MAP and its link to Crohn's http://www.liv.ac.uk/researchintelligence/issue33/crohns.htm...
Thanks reef08. More nice info. Be interesting to see results after study concludes in March. Ivy-you're right, a million dollars doesn't sound like much, especially since the medical costs and lost...
Nice links. Interesting and scary to say the least. Dr. Taylor makes a compelling case for MAP as being a trigger if not a cause of Crohn's combined with a genetic predisposition. He states that 87%...
I know I usually feel better when it is warm and I am working outdoors in the sun. Is it because the body makes its own vitamin D from the sun? Was it a coincidence that I got sick with this disease...
I thought that one of the good side effects from my being on prednisone for a short time was that the joint pain in my knees and lower back went away while I was on it. Having been off of it for...
I work with 2 people who have been diagnosed with sleep apnea and swear by the CPAP. I was diagnosed as having sleep apnea towards the end of 2006. Never felt like I had it in the first place, but...
Do you sit for a long period of time? I get that feeling sometimes from sitting too long on the pot with my elbows on my legs while leaning forward and possibly just pinching a nerve a little bit....
Sorry about your difficulties and wish I had some advice, but all I can offer is emotional support. I know how the prednisone can affect one's mood. I hated it but was glad that it worked for me. I...
Seems like you've tried quite a few herbs Lancelot. Too bad none have been completely effective for you, yet it is nice to hear that some helped. The reason I brought up cat's claw in particular is...
Thanks for the explanation pb4. Mine is in terminal ileum, so I don't want to start again and risk making my symptoms worse(or have my wife kill me for it) plus I have gotten over all the urges. The...
If the current professional opinions on Crohn's are shifting to include the possibility of it being an infection and not an overactive immune system but a deficiency in the immune system, then would...
I used to smoke but quit 2 years ago and then developed CD afterwards. From what I understand from my GI, smoking is said to be a possible contributing factor to Crohn's and its recurrance in the...
I agree with HabsHockeyFan. Have your vitamin levels checked. As I was first being diagnosed, my doctor found somewhat lower than normal levels of iron and B-12. Not terrible, just on the low side of...
I also have low back pain. For me, one of the few good side effects of being on prednisone was that it helped to alleviate my low back and knee pain. Like Wrangler and my orthopedic doctor said, it...
Welcome heavly. Have not had experience with your prescription either, but you have come to the right place. I am so glad I found this forum. It is full of great people with lots of information and...
Gum usually does not bother me either, be it with or without sugar although sometimes cinnamon flavor gives me a bit of a problem for some reason. I have heard that some of the sugarfree ingredients...
I wonder if that helped to contribute to my introduction to this wonderful disease. 2 Years or so ago I hurt my rotator cuff, and the first thing my primary care doctor told me to do( along with an...
Happy Birthday!! I'm somewhat jealous of all of you-lol. Last time I had shellfish, I had a date with a nice dungeness crab and couldn't even finish what I had on my plate before I had to run to the...
Kind of new here, so I did not know, but congratulations. What a beautiful Thanksgiving Day gift for you....
Had the night sweats when I was first diagnosed also. Think they may have been due to the prednisone the doc put me on. Went away after I tapered off ....
40 mg for 2 weeks, then tapered down. Side effects started after began taper. Very happy it worked and made joint pain go away also....
Not exactly sure myself what a clinical definition of remission would be, but for me it is limited abdominal discomfort with days and nights that do not require the bathroom to be within 25 feet of...
Nice to see how strong you are in dealing with this illness. Wish you the best of luck. After I was diagnosed with my CD, one of my doctors told me that he had a friend in medical school who also had...
Smoke free since 1/1/06 after 20+ years, but I know how it can take your breath away. Now all the smoke is exhaled out the other end. Glad your test went pretty well....
Survived my diagnosis with Crohn's in March after being scared and nervous from not knowing what I might have. Survived my successful treatment with prednisone and its nasty side effects and haven't...
Hi -Crohn's, sore knees(Crohn's related?), partially torn rotator cuff, migraine-once only and that was only after I was started on Pentasa and tapering off prednisone(Treatment related?)....
Before I was diagnosed with CD, I found myself extremely tired all the time. I thought it was just a bad case of the flu until it never went away. One of the blood tests showed I was anemic(from the...
I understand how you feel also. I know that I am nervous whenI do go to the doctor and have to describe in detail all of my symptoms, but I make sure I am as specific as I can be with my symptoms and...
I also had some mouth sores before I had a positive diagnosis of Crohn's. I also had a constant dull aching pain in my lower right quandrant by my appendix. (Still do almost constantly ) My Crohn's...
I also started Pentasa shortly after starting to wean off the prednisone. My only side effect from the Pentasa was migraine headaches which I had never had before(and never want again). My GI said...
I had many nasty side effects including night sweats, insomnia, muscle cramps in hands, dizziness, confusion, difficulty speaking and maintaining a thought without having my mind wander, and...
Hi Gumby, I'm pretty new to all of this too. I guess I have been luckier than some others on the boards here and seem to be(more or less)in remission-I think it's all relative. I got sick with what I...
When I first was diagnosed with Crohn's, My GI started me on 40mg prednisone. Within a week, the severe diarhea I was experiencing diminished greatly. I went from being constantly living in either...