Hi Nanners, Your, randynofuts, and nicecupoftea posts really helped me out when I was on here in 2007 when first diagnosed. I wish you the best. Thank you for being you...
I just finished my prep yesterday and had the colonoscopy today. It was not as bad as when I had to do the golitely prep in 2007. this time I had something called half litely. It was 1/2 the amount...
Hi, I'm glad that you are going to go to the doctor. I want to warn you to make sure to advocate for yourself or bring a really good friend or family member with you. Sometimes when one is sick,...
thanks for the info stripey. Much appreciated. I'm sorry that humira did that to you. HUGS...
Hi, I have crohns and just got one last Wed. I started flaring in mid Oct and then wound up in the ER on Nov 2 and 3. Since I was diagnosed with Crohns I have had side pain (normally 4/10 to 5/10 but...
yep... just keep working at it and even then, sometimes weird things will happen and it'll just not work for some reason. I would say that miralax works for me 90% of the time and then the 10% I just...
@ monkiray, no I haven't had an MRI. It's so frustrating. They won't do another colonscopy (even though my last one was in 2007) they won't do a pill cam nor endoscopy and now as of 10am this morning...
@gumby 44--the only thing I can think of is that a couple of weeks ago before thanksgiving I ate a 1/2 piece of sweet potato pie and 12oz of potato leek soup and wound up pooping 12x (which for me is...
@ CRPSpatient - thank you for the advice. hmm. anti depressants to treat pain and it seems to work for your friend's daughter. it's worth a try. I just am afraid to become physically addicted to the...
Hi all. I initially posted this on the crohns forum but since it is related to pain, someone suggested I put it on here too. Please see the questions at the bottom of the post, I have been in a full...
thank you for the tip ivy. will put it on there right now. =D BTW, "chronic abdominal pain syndrome" is basically like the same pain as IBS/IBD but the person does not exhibit the bowel issues that...
Hi, I have been in a full on flare since 11/2. They put me on 40mg of pred taper and tripled my asacol. Last Tuesday night I had the equivalent pain level of my chrons flare sideache 10/10 and went...
my pain is about 6 inches to the right of my belly button and then about 3 inches down....
I would also like to thank Nanners and Ivy for their contribution to this site and for being so supportive to me when I first joined the forum in 2007. It was such a rough time and they made me feel...
@calypso.... I didn't realize how food oriented our society was until I couldn't eat food especially when I first flared and could only stomach 1/2 c of food every 2 hours. Just think about it: the...
@ stripey, I think the sieved soups and ice cream is a good idea! I think I may do that for christmas. =D @ firecracker, I think that is nice that you can have the mashed potatoes and turkey. That is...
thank you all for the moral support. so I wound up going to the thanksgiving party anyway and it went better than I thought. My cousin and his wife were totally cool. When my boyfriend and I arrived,...
thank you for your kind and helpful words. it means a lot. have a great thanksgiving. =D...
I feel so conflicted. I have been flaring now since the end of October and am just sick of being sick. I am normally the nicest person and try to not bug people about my disease but I think because...
I take Miralax on a regular basis since 2007 and yes, that is how the stool is for me too. I personally like it that way (even tho it is messier) because at least I "go". You may want to try a half...
I am sorry they did that to you. Yeahhhh There is no way around it. I was doubled over crying at the beginning of this month and once they saw that my lab results and CT were "Normal" they treated me...
straight up... you might not want to take them. I used to sneak them in when I would have really bad knee pain (because it was all swollen) and tylenol was not cutting it and I had the bleeding thing...
@jen and @novice... thank you also for sharing your stories on here with me. It makes things more bearable to know there are other people with "strange" cases even though we have to go through it. I...
these were great. thanks for sharing. =D...
I definitely get yeast infections when I'm on antibiotics and have noticed that I also get them spontaneously when my body seems to be fighting the beginnings of a flare. I take acidopholus (nature's...
I have been off and on pred since 2007. My usual dose is starting on 40mg x 7 days, 30 mg x 7 days, 20... then 10... This time I am going to be on it for 14 days for each dose. I normally get the...
thanks. I see the new GI tomorrow morning. I'll ask if they can do that. At this point I'm up for anything to isolate what is wrong with me. I'm just worried that they will be mad that I went to the...
thank you nanners for sharing your story with me. I will keep the pill cam thingy in mind. I also emailed Dustspeck and she said the same thing. They asked her how could she feel pain when her...
Thank you Tsitodawg for sharing that story with me and for validating that I'm not just imagining things. wow you went through a lot. You are right, I will set up a complaint to protect those of us...
Have any of you ever flared and been in a LOT of pain and have gone in only to find out there is NO COLITIS found in the CT and that your test results were normal? I wound up in the ER on Wed and...
thank you guys. yeahhh the fat going to my gut is really getting to me because I'm an apple shape to begin with and now it's like I'm the female version of santa claus! haha. hearing you guys...
I tried to use the search bar here and didn't come up with this specific information. I feel ashamed asking because I should be thankful I am in a pseudo remission compared to the times where I was...
i had a bad reaction when I took my 1st 4 humira shots (i got a really bad headache the day after) but he wanted me to try it a couple of more times before he took me off. Well, the 2nd time I took...
@ funguy - yeah it would have been against the ADA but my professor was a jerk so that is why I had to get the director involved. He is the first professor i have ever encountered that was like that...
=) Please do. I know some of my friends feel the same about my complaining. I don't complain about my crohns that often, but when it rears it's ugly head, complaining for a short while makes me feel...
Thanks for replying. I read a post from someone this week on grad students and I wonder if I will ever get there. I'm on imuran too. yeah my professors this quarter are much more understanding than...
I just got into a university as a transfer student (Junior ranking) this past Fall quarter and was doing sooo well until the last 2 weeks of school and then I flared to the point where I had to go to...
I get constipation and bloating more than diarrhea. What I do to remain regular is drink 1-1.5 capfuls of miralax every day or every other day with juice. (Don't do what I did and drink it dissolved...
I go to an acupuncturist every week for pain relief from my crohn's and it's worked for me but it doesn't work for everyone. I agree with everyone on here though about the GI doctors not helping out...
I agree with Nanners on continuing the maintenance meds. One needs to keep taking them AND taking care of their body (get adequate rest, food, etc). Not everyone has the same level of crohns and not...
I have felt despair ESPECIALLY when I was first diagnosed and I read the information on it, or during flare ups when I am reminded that it is a permanent disease and I have to learn how to control...
thanks for sharing your experiences with me. Yeahhh the headaches I have weren't just geeze my head hurts and I'll pop a couple of advil kind of headaches. They were let me stab you in the temples...
ZenaWP - I searched high and low for this post... My vision IS changing. I am going to make an eye dr appt. I normally wear glasses or contacts and at first I thought that my contacts were old or my...
definately french fries, thai food and chocolate. Yesterday I ate phad thai, with a little bit of pineapple and chicken fried rice and I feel as though my intestines are on FIRE! (even tho it was...
I was on humira from Mar 12 - Apr 14 and was part of the 10% that developed Migraines/headaches with them. I separated the 4 doses into 2 doses per day. 1st shot sat - 2nd shot sun - headache mon....
when I'm not flaring, I drink 1-2 drinks a month if there is an occasion for it. I can't drink beer anymore so my drink of choice has vodka in it. when I am flaring, I dont touch the stuff except I...
Welp.... I officially had to say humira wasn't for me. My last humira shot was on Apr 11th and my first one was on Mar 12th. I have had a headache now since Mar 12th with no end in sight. I guess I'm...
I started on 50mg of imuran 3x a day + the asacol 400mg 3x day and then I lost 40# so after about 8 months he changed it to 50mg 2x day for the imuran and asacol 400 mg 2x day....
I was put on pred unfortunately for about a month with just the asacol. Then after 3 months, because the asacol wasn't cutting it by itself, they added the imuran. It took about 4 more months for the...
good luck to you. I'm sorry it didnt work. Isn't it amazing how much hope we put into these meds and when they fail it's like what now. I'm on my 2nd dose of Humira and the side effects are kicking...