So sorry you are having such trouble...since I wasn't diagnosed by blood tests, I know there's several threads on here dedicated to blood tests that help identify Crohn's markers. A sed rate is a...
Prednisone didn't work for me and wreaked havoc on my joints, so bad that i couldn't sleep. Ultram ER 100 mg once in AM and once before bed. Couldn't believe the difference in the joint pain! Also,...
My period comes only once a year if I don't take birth control. I've never been regular. I got my period at 16 and it would come only about half dozen times a year and last for at least 15 days. It...
I'm on remicade every 8 weeks, Pentasa 2 grams/day, omeprazole for GERD...I was on azathioprine for a year and a half and eventually replaced that with the remicade. Remicade is the only med I think...
I see that you have had two colonoscopies; when was the last one? That was the definitive diagnosis for me. My story started with pain on the right side of my abd., thought my liver was unhappy i was...
Oh yes, I believe there is a link! I suffer with sinusitis, and I'm currently dealing with it right now. about 18 months ago, I had a sinus infection off and on for 11 months; gross, thick, mucus...
Percocet and Ambien.....
white rice, white pasta......
The only that helps my "attack" pain, which is how I refer to it, is percocet. I've had the pain you are describing, it's happened to me while I was driving; this was before I was diagnosed and it...
artist guy-my throat gets swollen and mucous-y from constant sinus drainage in addition to Crohn's sores; my epiglottis gets stuck in the open position due to the mucous and sometimes fails to close...
That's odd for your GI to say since that's where my Crohn's pain is, ALWAYS, and I have severe Crohn's. It may be pain from your gall bladder if it isn't functioning at maximum efficiency. You can...
I was on it for two years, no back effects at all, which was sooooo welcomed after being on prednisone and getting all the nasty side effects and no relief! Takes 2-3 weeks for the med to start...
Sounds exactly like what I have. I notice it a few weeks before my Remicade infusion is due, which I'm actually getting infused at the moment so my mouth and throat are all erupted. I get sores on...
73monte said... Thanks PV, We'll definitely give the Vaseline a try. Sounds like the easiest solution if it works for her. Jenngrl81, Not sure I understand what you're saying. Imuran didn't prevent...
Diet treats symptoms of the IBD, NOT the IBD itself. Without Remicade, I would've lost a couple feet of my colon. I'm thankful every day for advances in modern medicine....
Having a day not going seems like it'd be heavenly, but I've never been on the other side of that coin. Hope things work their way out soon.......
I agree that diet is important, however it doesn't substitute for medication. You aren't treating the disease with diet, you are avoiding the ramifications diet wreaks on our system by treating the...
For gut pain, Ultram doesn't work. For joint pain, ULTRAM ER 100mg every 12 hours-once in morning one before bed. Percocet really doesn't do it for me as far as fibromyalgia-joint pain/issues....
NSAIDS are the types of pain relievers that cause gut probs: Aleve/naproxyn, aspirin, ibuprophen/Advil, etc. Tylenol is NOT an NSAID and will not cause bleeding in your gut. The only thing that helps...
Now that the H1N1 vaccine is combined with the typical flu shot you get annually, it is very common to have flu symptoms following the H1N1 vaccine. Low grade fever, nausea, and overall crappy...
Oh, send them in your last EOB from the infusions you just received. That backdated mine to the beginning of 2010. I enrolled in March I think......
I use the Remistart rebate program and it's awesome! I never received the "debit card". All you have to do is send in the original EOB (explanation of benefits) that you receive after your infusion,...
When i was first diagnosed I was put on prednisone 65 mg for 2 and half months, didn't help at all so we discontinued that. However, my stricture was 12 in. in length; just saying, just because the...
Start with the easiest solution, if it is iron-deficient anemia; pick up a 325 mg ferrous sulfate supplement, couple bucks at the pharmacy. Can cause nausea so eat something with it. Also, vitamin C...
Mesalamine is Pentasa, so you are okay with that one! It really sucks, my husband and I want to try after Christmas for our first child, but there's so many things to consider! I finish nursing...
Have your thyroid hormones checked: T3/T4. You are describing some symptoms of hypothyroidism. I have also had weight gain since my diagnosis almost 3 years ago, although mine isn't related to...
Definitely firm for me! I had a bilevel spinal fusion a few years ago so I've had a bad back for several years. When this Crohn's nonsense started up a few years ago my joints went haywire, I'm...
I was diagnosed with GERD a few years before my Crohn's diagnosis. I got the flu and then a subsequent, horrible sinus infection. I was put on Augmentin and getting horrible diarrhea from the med,...
It took about 4 infusions before I noticed a real change in my symptoms. It really took awhile for me, over 6 months to notice a significant change. Just got back from an infusion, actually, and July...
um....what now? Hmmm......
viv1123 said...I recommend the remicade and your Chron's will get better while you are pregnant. I got pregnant on 2008 and my Chron's was under control the entire time :). I was still taking...
I would DEFINITELY go the biologic med (Cimzia, Remicade, Humira) route before you even consider surgery. Once you have surgery, there's no going back, except to have more surgery. You only have a...
Avelox was the only antibiotic the worked for my awful sinusitis that lasted for 10 months. I finally went on Avelox after exhausting a long list of other meds. It took two courses and 20 days of...
I am due for a dental cleaning but my doctor didn't seem to think that was an issue regarding my bleeding gums. I floss daily and brush my teeth several times a day. I asked my husband if I grind my...
My gums have been swolllen and bleeding for a month now. Everytime I brush my teeth my mouth fills with blood. I have had bloodwork done, my iron is a bit low, but it isn't causing the bleeding. I am...
It does work for some people. You can make your own macaroons, it doesn't have to be a specific brand. Google it, there has been a lot of talk about macaroons in the IBD community....
I got sick 2 weeks after I met my husband, almost 3 years ago. He took me to my first colonoscopy. Even though I expressly told the nurse not to mention anything embarassing in front of him and to...
CBC/diff, AST, ALT- those are your liver enzyme levels since Remicade is processed by your liver. Unless indicated by your doc, it isn't necessary to have bloodwork done every infusion. I've been on...
Yes. It was the WORST day of my life. None of the suggestions you'll receive on here are going to make it any less nasty. You can mix it with sprite, gatorade, just not the red or grape i believe. I...
Well it could be that the sample for the biopsy was bad/lab error, or the result was inconclusive. Don't worry until there's something more to worry about. It could be "good" news for you. At least...
I get yeast infections a lot, not just vaginal. Countless thrush infections. Taking a daily probiotic helps keep it in check, as well as limiting your sugar intake. Yeast LOVE sugar so keeping your...
Anyone ever have a Kenalog injection for joint/arthritis or allergies? I'm due to get one next week and I've read some disturbingly scary side effects about it. I'm getting it in my spine, constant...
Prozac is in a different class of antidepressants than Cymbalta, they work differently on serotonin and norepinephrine receptors. It is normal to be switched from one to the other. If you want more...
The drugs you are on, your age, and your disease progression and diagnosis date is identical to mine! Welcome!...
Moving to Pittsburgh in August and I need a new doc. I'm currently in the Cleveland area. My husband currently lives there. We got married a month ago and he's been living there since last November....
I'm better than I was when I was diagnosed 2 years ago, I couldn't eat anything for 3 months. Now, I can eat most things on thhe list but red meat is actually good for me, I feel better when I eat...
I was sitting in class in Cleveland and I felt the floor vibrate a bit and then the table. People thought I was nuts! I didn't find out it was an actual earthquake until 3pm today when my mom told...
Depressedz- You aren't nuts and what you are feeling shouldn't be discounted by anyone. You will have people in your life to tell you "get over it", "stop whining", "snap out of it". What you need to...
I want to get pregnant within the year, but I'm scared because of the Remicade and Pentasa I'm on. Did you flare up at all during the pregnancy? I don't want the pregnancy to make my Crohn's worse,...
I'm 29, I've had eczema since I was 2. It comes and goes but gets really bad during times of high stress, flares, etc. Cortisone cream doesn't really help for eczema since it dries the area too much,...