Thanks for trying :). And yea I'm thinking of just ditching my surgeon. Might need to find a new GI in my area who are good at doing dilations. Clo Seeing how you were actively inflamed i could see...
Charleston South Carolina...
Did your stricture ever get to the point it was obstructed? Was it a GI dilating your stricture or a colorectal surgeon? I don't know why this surgeon isn't more keen on dilating this stricture he...
I have a few strictures in my colon. One in my rectum and one in my sigmoid. One in my sigmoid is 2 inches long. The one in my sigmoid, I believe is giving me issues, unless there is one further up I...
Nobody in my family has any stomach problems. I think there are a multitude of different environmental factors but the primary one I believe is vaccines. The spike in autoimmune diseases dovetails...
Of course they will do many $tudies trying to prove all these autoimmune diseases have a genetic cause. That way nobody has to accept culpability for what theyve done and there is no disruption in...
Crohns is not caused by genetics lol. It's completely environmental in my opinion....
Do you take the uceris pill or the foam? How long would you say it takes to kick in?...
I am just curious, are you a male? And if so did you have your rectum taken out? I am worried about the fertility problems that come with that procedure. And it's not a cure. I believe in God, I...
Thank you for listening to my vent, friend. What you went through sounds like hell. It's ridiculous the state of things in this country. Everything is so backwards. And nobody does anything so these...
The cost of these medications should be outright criminal. They hike the prices to such an extent on these drugs because they know we need them to survive and live a somewhat normal life. Stelara...
People have just moved to Facebook....
Have you been dilated before? Unfortunately i have a pretty much complete obstruction right now due to The dilation done during my colonoscopy which has closed things up almost completely. In...
WorriedUCer, How did the tranilast work for you?...
Thank you for these website recommendations. I've already started using them....
They take your rectum out and give you an ostomy bag is what they do. I am going through the same thing right now as an inexperienced doctor dilated my rectal stricture and now im almost completely...
I don't think the procedure will be of any benefit. The best I can hope for is for things to settle down to what they were before I had the procedure. In theory, it makes sense that this would...
EruditePaul, Thanks for the detailed response. I am very frustrated about this so its partially me just venting. But I am unsure of how to check his past claims. He is young, about 38 years old so i...
This doctor extorted me into getting a colonoscopy i did not want to get before he would allow me to switch drugs. Then, even though I have active inflammation and i repeatedly told him not to go in...
Nicotine made my illness worse. But I have Crohn's....
Will my results be useless to me? I have Crohns only and no heart problems. I bought the hs-CRP test off of Quest's website because it was labeled "CRP" test. I have read a little bit and found out...
You should have rejected the balloon dilations. This is the problem I have with conventional doctors. Always looking for a quick fix, never thinking long term. Balloon dilations help short term but...
Yes, I took the required antibiotics for the TB for 6 months. Now it's just a case of doing chest x rays every year to make sure the TB doesn't become active. I also should say that I have been at a...
I went down to every 4 weeks for almost 10 years. I developed latent TB though about a year and a half ago. So I've pushed it back out to 6-8 weeks and now I'm looking at other treatment options....
I've been on it for close to 20 years. Every time I try to get off of the drug I fail. It used to help immensely with rectal pain, but doesn't really do that anymore, so I am in a weird phase where I...
but when you go off these enemas, does the inflammation come back? I'd assume it's like prednisone....
Does pentasa even help? I've had Crohns disease for 25 years, been on multiple Crohns forums. I have never read one anecdotal piece of evidence that Pentasa actually did anything for anybody....
Stuff is just gonna make you worse man. Get your blood levels checked. What's your CRP? I wouldn't take any of that crap if my inflammation levels were ok. I would take glutamine, Boswellia, or some...
Was just about to post this. Seems pretty cool!...
Does the CBD oil get you high or anything like that? I like to be able to use my brain and have energy and not just sleep all day. https://www.youtube.com/watch?v=5ybu-_tDXb8...
Thanks cupcake girl. I was bracing for the worst and its relieving to know my liver is in good shape....
I had an mri done on my liver 2 days ago. Results came back clean. There is nothing te wrong with my liver at least. My alkaline phosphatase is still elevated though, and from what I have researched,...
Thank you cupcake. That's why I love these forums. Just curious. What were you alkaline phosphatase levels reading when they were high?...
Hi cupcakegal. Thank you for your response. Yes it was my GI who ordered the test and he is aware of my rising levels. I think I will call them back tomorrow and ask if we can do one of these MRI'd...
Looking to see if anyone might have an idea of what is going on, or has had a similar experience. My alkaline phosphatase levels continue to read high. My most recent reading was 192. Up from 185...
Do you mean raw or organic? If it is in fact raw be very careful. I took a class in food safety and HACCP and we learned how dangerous raw milk can be. It is very prone to foodborne illness. When...
Are you on anti map therapy?...
Do you have any history of crohns in your family? Do you have any health issues?...
nm, I don't mean to offend....
I have a rectal stricture too. It's pretty bad. But I'd honestly rather be dead than have a colostomy bag. Seriously. That will be something that I will NEVER get....
Not yet....
Not everybody gets MAP because some are more resistant than others too it. Some can clear it while others can't. This is where genes come in. Just like in herds of cattle. The whole herd doesn't get...
I'd look into trying some type of diet void of grains and dairy. Ever since I started avoiding those two things my energy level is so much better....
That's the thing, this theory has actually been around since Dr. Crohns himself came around and named the disease. He thought it was probably caused by some type of Mycobacterium. It is time to put...
The vaccine still has to go through human trials. If it can get the funding it needs it is still 2-3 years away from hitting market, unfortunately. There are many clinical trials going on currently...
Wrong thread guys. We're all on the same team here....
There seems to be some politics going on with the vaccine. The government in England is not helping with the funding of the vaccine even though it's worked in both mice and cattle. Makes sense, the...
Yes. You are. You're the final decision maker not your doctor....
http://crohnsmapvaccine.com ...
Could a vaccine help Crohns Disease? http://www.dailymail.co.uk/health/article-15442/Could-vaccine-help-Crohns-disease.html You guys/gals may want to read this.......