I was on remicade for the CD and i truly think as much as i hated it, it did help the pain. However, i am not going back on that again. I tried acupuncture but maybe i didnt give it enough of a...
I did see a rheumy and she basically ruled out it being anything other than chrons related. My GI doc just suggested trying azulfadine instead of colozal. Said that it could possibly help the joint...
Hi guys, Its been forever since i have written here. My chrons and its effect on my stomach has been much better since my 2 weeks on iv steroids in the hosptal in January. But man what a roller...
AAAHHHHHHHHHHHH, im so not myself! I feel like im living outside my body. I hope i can get thru this!...
So i was in the hospital for 2 weeks on 40 mg iv pred and 2mg of ativan evey 6 hrs. THAT is what got me by. I was also taking restoril sleeping pills and still am. I just dont do prednisone well, to...
So ive bee in the hospital a week now on a 40mg 24 hr pred drip. Things are way better. Im having another scope tues or so and if all is good im out of here, i hope. Otherwise my next step is surgery...
Well doc this morn says he will do another flex syg Wed or Thurs so guess what that means? Im here til then! In the meantime i am not able to eat much still and im not sure why. I have no appetitie...
Oh one last question...Is there ANY trick to tapering off pred faster and easier? There is no way ill make it the way the doc suggested. PLEASE tell me there is....
Sugar, I had an endoscopy, colonoscopy, and cam capsule study in June 07. (However since July i have gotten 100 times worse) Earlier this week here at Hopkins i had a flex syg and they did biopsies....
I do think its getting better in general. The trips to the batroom are way less. However, for some reason i have no appetite and i am barely eating. I am on a thicker concentration of iv apparently...
I havent written for a while. Well i had enough and was admitted to Hopkins via my old doctor here. In short here is my history. Diagnosed 20 years ago with colitis. Took azulfadine here and there...
I mix my cap and a half with a drink!...
I take a cap and a half full of Mirilax nightly. Its now sold over the counter and they say it is not habit forming at all. Good luck to you. I KNOW its no fun living constipated!...
Anyone have any opinion or suggestions on these drugs? Nothing that i have been on for 2 years has helped my rectal crohns and they are now suggesting these. I likely will start Humira soon as well....
Hi, I am begging for suggestions of new doctors. My current doctor is out of options. (His last suggestion was TPN and i think i might try it but i want to be in a good hospital and he is just at...
I dont have time to write much now but i will later...As i read your post i couldnt believe how much i could identify with the dry heaves of the rectum comment. Thats what i tell my doctor everytime....
I have slow transit too but only know from my small bowel series taking 5 hrs. What is this ring test youre talking about ? Are you being treated for it at all? I am currently sick with crohns of the...
Hi, Well over 2 years later nothing is working. Ive tried it all. My disease is currently limited to the rectum. No canasa, rowasa, cortifoam, prednisone, remicade, 6mp, or anything helps. I couldnt...
Thanks! Malak, i have had this disease for 20 years now but only got real bad the past 2. I overeat alone often but occasionally discreetly in a group setting too. Fitz, Yeh im afraid its more a...
I have created a monster in me with eating. I dont know what exactly it stems from but i contribute it to many things. First of all, often i am so sick that i have no appetite so i eat the bare...
Oh and i forgot, im on mirilax also. But i have been on that for a few months. Right now my belly is so distended its tough to breath!...
Well the one im attributing it to is flagyl since that is what i just started yesterday(500mgx3) and the gas has just started. I am also on 125mg 6mp and cortifoam....
When you guys have that full of gas/bloat feeling (i mean up to your chest full) do you feel like your insides are bruised? Sometimes i get it so bad that any movement at all kills. I feel like the...
2. I have a big getway weekend planned with lots of neighbors. Were going to a resort for the weekend. I want to be able to drink in the hot tub and have a good time! Could i take the flagyl thru...
Please let us know. I have PKD (Polycystic Kidney Disease) and can relate to your concern. I DONT think thats what its gonna be but ill be thinking of you. You have been so helpful to me!...
Hi, So 4 months on 6mp (now on 100mg) and no help really. I have done 2 remicade treatments during that time also. Just did a few weeks of cortifoam. No real relief. Im so inflamed that even air is...
Im so bummed! How can doc not know this first of all? But really, i am afraid of needles! Guess i need to suck it up huh? Not worth risking getting something from the live virus or getting the real...
Ok so heres the deal. I take 100mg 6mp and had my last remicade 2 weeks ago. My gastro told me it was ok for me to get the flu mist and therefor also ok to be near my kids who will be getting it too....
OMG i have the same thing. I started at 50 mg 3 months ago, then about 6 weeks ago switched to 75, and just 2 weeks ago switched to 100. The rash became noticable about 6 weeks ago Its my entire...
Its just seems to like im inserting air as its so foamy and fluffy. Air is NOT what i need! It makes me feel full of it all night long too!...
Anyone????:)...
I was put on cortifoam and am supposed to use it morning and night. I was on the a year ago or so and went of it without it helping for some reason (of which i have forgotten). I have severe rectal...
The results of the ct scan were no fistula, no abscess. I do have thickening in the wall of the rectum. What exactly does that mean? Could that be causing ALL of my symptoms? I am so fed up, really....
Ok done! So i walk in and they insisit i drink the barium too. And im like, ah no my doc specifically said do not drink it. Last time i did for the small bowel series it was a nightmare. So they kept...
[color=blue>HI, Today is the day! Im hoping they will either find or confirm that i dont have a fistula, an abscess, or a partial blockage. This rectal crohns is now impacting my pelvic region so i...
Ive had a colonoscopy. This i thought was better for showing fistulas and abscesses. Is it not?...
I had remicade done today. Also, talked to my doc. He is now sending me to have a ct scan with rectal and iv contrast. You guys ever heard of this? Hopefully rectal contrast is easier to deal with...
My doctor just gave me a referal for a ct scan with rectal and iv contrast. He said its given in an enema vs the drinking barium which gets too diluted (as he put it) Ever heard of this or know how...
Well, last night i felt the worst i have ever felt. I was at the beach for a girls weekend and we shopped alot of the day. I kept feeling this major swelling EVERYWHERE down there! I had awful urges....
Please help me!!!! For a few years i was on one or more of the following: Pentasa, collazal, rowasa, cortifoam, canasa, and prednisone (but i cant tolerate pred). I have been on 6mp for 2 1/2 months....
Thanks for all your replies. I am now having a ct scan on Tuesday. I already picked up the 2 bottles of chalk to drink! (I didnt know that was part of the ct scan as well as the die). Im a little...
I was on prednisone and it didnt help. It just made me a monster! I admit i am not too open minded with some medicines and im not willing to try entocort either. Flagyl i have never been on. I...
Btw, i have been running on and off a slight fever of maybe 99. However, my blood work shows i am fine so i think thats why he doesnt suspect infection. I made an appointment with my gyno. Maybe he...
The doc was hoping for one dose of remicade to get me over the hump til the 6mp kicked in. I go back to him in a month and maybe will start the real deal of remicade or humira. I did the rectal meds...
pressure has an effect on my urinating and at times i have a [i]painful sensation inside my vagina. Again sorry if too graphic, i just wanted to get out all the facts out there so i could get your...
Hey] a month ago also, and felt better for 2 weeks. My bleeding is better but not gone. What i still have is mucous and loads of air. I also have the immediate urge to go about 15 times a day (down...
Does anyone know if/when my body will get used to the gas that mirilax causes? I sure hope it goes away soon or i wont be able to stay on it. Thanks....
I weigh 110 and i have been on 50 mg for just over a month. No blood work yet. I was tired at first but now im ok....
Good to hear all, thank you! I am very familiar with it as my son has been on it for years. I cant stand the difference in doctor opinions tho. My sons doc wanted him off it so he wouldnt become...
The tables have really turned in my world! I started 50 mg of 6mp a month ago and a week ago had my first remcade infusion. I do feel somewhat better, and i am thrilled. However unlike how i used to...