Hi! It has been awhile since I posted on this forum but I wanted to let you guys know of a new website just for cf. This website was created by a very dedicated mother of a 2 year old son with cf....
I am not sure exactly why some sweat test come back with borderline numbers. It is true either you have cf or you don't.....cf can sometimes by so difficult to diagnose. There are thousands of...
I am not sure exactly what borderline means. I do know they call it the gray area..I would assume that means that they cannot say for sure if it is positive or negative. Was the test done at an...
Why is the dna test taking so long? We had our sons back in just a couple of weeks. If you dont mind me asking why was your child tested for cf in the first place? Is he having symptoms? I know the...
First of all did you have the sweat test done at an accredited cf center? Second of all I am pretty sure that a sweat test with 52 as the result is considered borderline and not necessarily positive....
I dont mean to sound ignorant but what is UC?...
Hi! Sorry to hear of your daughters diagnosis of cf. I know it is hard at all the new information they give you in the beginning can be quite overwhelming. Glad that your daughter is feeling better...
Sorry to hear about the diagnosis of cf but glad to see that you are feeling better about the whole thing. At least you now know what you are dealing with. My son was also diagnosed with cf (at 2...
I have been selling on ebay for a couple of years. I am a stay at home mom and my husband works...so no it is not my only source of income. I mostly do it for my own spending money!! Plus I think it...
Have your ever tried selling items on ebay?? I buy quality namebrand used clothing and resell it on ebay. It is pretty profitable. If you dont want to sell clothing items you could choose something...
How could anyone think that smoking is not bad for someone with cf? Smoking is bad for people without cf. I cant stand to see people smoking and damaging a perfectly good set of healthy lungs. The...
Hi! If I were in your shoes I would probably have your daughter tested just to be on the safe side. Failure to thrive is a symptom of cf although it could be symptoms of various other things as well....
Sea 2, I wanted to respond to this one also because I know how your daughter feels. There will be days when she is down....after all this cf can be scary stuff. Plus it is very overwhelming and...
Hi Sea2! I think it is wonderful that you are there for your daughter and grandaughter. I have a 2 year old son that was diagnosed at 2 weeks old. I dont think I would have made it thus far if not...
Dear m&ms, Hi! I just wanted to tell you about our experience. When my son at 2 weeks of age tested positive for cf we had my then 5 year old tested the same week. He had already had several...
Max's Mom, How far along are you in your pregnancy? I just read your last post about how you found out your baby and your son both tested positive for cf. Isn't is amazing how just a routine test can...
Hi Again! I just wanted to add that I know it is overwhelming at first when all of the info. is being thrown at you at once. But you will get into a routine of what to do and when to do it. Life does...
Hi! I am sorry to hear that your son and your unborn child have both been diagnosed with cf. I have a two year old son that was diagnosed with cf at 2 weeks of age. I know it is alot to just have one...
Hi! First of all I was wondering if anyone knows what I can give my two year old son for upset stomach due to Tobi and Cipro? Please keep in mind that he is allergic to milk. He has been on these...
How old is your daughter? And what kind of reaction does she have when she drinks milk or something with milk in it? My son is two years old. He breaks out and before has even had trouble...
Kathy...Thanks for your reply and yes it did make sense. From what I have read about the hypertonic saline I had the idea that it was basicallly without side effects. That is why I thought it would...
My two year old son went to clinic today. I asked the doctor if he could start the hypertonic saline. He said they did not give it to children who were not old enough to take a lung function test...
Does anyone else have a child with cf and milk allergies? I am desperate for some high calorie food ideas that do not contain milk. Thanks!!!...
Heather..Thanks so much for replying. I think it will do me good to talk about all of this with people who understand exactly what its all about. My son weighs approx. 25-26 pounds. I will know for...
Hi! I am new to this board. I have been reading for awhile and finally decided to join. I have three sons and one daughter. My last son was diagnosed with cf at about two weeks old and he is now 2...