I don't know if this helps, I had terrible drainage to the point where I needed to spit up and couldn't get it out. Went to ear nose and throat doctor. He checked me out I had Gerd and it put a scab...
I have had Crohn's disease for 45 years, now. I have been diagnosed with idiopathic pulmonary fibrosis with in the last year , has any one contacted that disease . I'm not on oxygen yet, it was...
Thank-you so very much...
I thank you for your kind words . I'm doing well for now . I have been very blessed my doctor has been on this before it really showed up she really thought this is what I had and now proof positive....
I have Crohn's Disease for about 45 years, ick, There have been issues with my lungs or at least the left one at the moment. After time and CT scans etc. I have Idiopathic pulmonary fibrosis . I just...
hi I'm Joy , I've had crohns for 40 years I have had several bowel resections, and fistula surgeries along with other complications. I strongly agree with everyone else know your disease as best as...
Thank you very much...
This is Joy, my problem is I have very loose bowels. I don't have cdiff, I believe I need to replace my gut with some probiotics so I did the one I had is 30 billion and I eat yogart. It has help...
I was just diagnosed about 1 year ago with Pulmonary Fibrosis, I'm told they haven't had a Crohn's patient with it, usually people with Lupus or Rheumatoid Arthritis. All of it even Crohn's is Auto...
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Joy 47 here, Well the fever's seem to have stopped and the headaches as well. I have been doing a bit of research and really paying attention to any and all my symptoms I didn't post everything that...
Thank you so much for your replies....
Hi Joy 47 here, I have pretty blessed the last several years, other than my fistula that likes to make its appearance , but the Humira has really helped with that. The last several months it has come...
Hi I'm Joy47, I have Crohns. I also have fistulas..yuk :( I started getting it about 20 years ago they came a couple times and then they went away for a long time like maybe 10 years. Then all of a...
I'm so sorry to hear what your family is going thru, and for daughter to be so young I know it must be so hard for her. I was 16 when I started having symptoms, it wasn't until I was about a month or...
I don't have much of a problem with chocolate. But then again I don't eat or drink much of it. What I have found out is that caffeine will make me go a lot so I try to avoid a lot of caffeine. Which...
You just go right on ahead and vent your little heart out, its good for you to do that. Stress is not a friend....
Hi , I'm Joy47, I have crohn's disease, I have been doing fairly well so far, trying to reduce the stress and for the most part its worked. But it seems that last month I've been hit with SSI telling...
Hi, I was 16 when I started getting sick low grade fevers my stomach felt like there was a burning match and then it would cramp so bad not to mention I couldn't keep anything down lost 50 lbs in no...
hello its Joy 47, I've been on humira for about 2 1/2 years. I only had a really bad sinus problem once I was given a shot (cortisone) and I've been fine ever since. It really seems to be working for...
Hello Joy 47, I would like to hear how this plug works as time goes on. I suffer from fistulas on and off every month. So far the Humira has helped alot with it. But I don't know for how long so I...
I'm so sorry for your situation, I was 16 when I first got it. When I became an adult with 2 surgeries (resections) the 3rd time was the charm. Anyway I had been on social security disability twice...
Thank-you...
Your most likely right. Drug abuse here unfortunately is terrible :(...
I found out from my pharmacist That for Xanax there is no law. It"s just my doctor's office. I don't take pain pills unless I'm in the hospital usually, I've been very blessed as late. As far as...
This is Joy47, I called my doctor on a Friday for Xanax, I got a script last month, it was called in and I picked it up. Well I called in another script for this month. I was told they can't call it...
I was 16 when I was diagnosed with crohns all thru my small intestine. I had upper and lower GI s like crazy. They (doctor) still couldn't figure what I had. I went from a 155lb. kid to a 105lb kid....
Thank you for your input I'll look for the slippery elm. Also I'm not sure what the smooth move tea is but I'll look for that too. Again thanks so much....
this is joy 47 , I've had crohn's since I was 16 Had 3 bowel resections among other surgeries for the complication of crohn's. So thru all that time I would go anywhere from10 to 20 times a day to...
Thanks for the input everyone....
When the crohn,s is active , for me , I eat whatever I crave just to have some calories I get very thin. And its no fun being thin when you are in your late 40's. It shows every wrinkle, no boobs and...
I just seen your topic I love it. For I just had a 48 birthday. Yea the breast seem to want to go east and west when i lay down. That tire that hangs around my mid waist just wont deflate even tho I...
Hi Staci100, Sorry to hear about your problems with crohns. I know to well what your going thru. I've had it for 32 years. All you can do with your husband is talk to him or go to a counselor...
Ive never used the levsin, but i have used bentyl it really never did much for me. Im like susans53 the heating pad is the best for everything. I dont leave home without it. Also hemmys the sitzbath...
Ive had fistula's on and off for 20 years or so. When I was younger I would be put on flagyl and do sitz baths in about 2 weeks it was gone. This happened a couple times I did the same thing then it...
Thank you so much for all your input. I finally got ahold of the doctor he told me to go on Miralax twice today untill my first , then once a day. But if it doesnt work i will try all the things you...
about month ago i was told the Humira was really working, that were my small intestine hooks to the large, he said looked better than he has ever seen it. Okay a month later I'm dealing with...
hey amy, ive taken b-12 injections for 30 years its no big deal. Also i know when its time cause im so tired. HOpe everything goes well for you....
Hey piper, Sorry for all your trouble. I agree with talking to the teachers and all. As for crhons not being a disa bility well it can be. Ive had crhons for 30 some odd years and im on disability....
hey gatorbites, Mild crohns is nothing to laugh about thats for sure. I didnt take any meds for a few years. I was having the D all the time bloating and what not. It was mild but it hurt. Later i...
hey joy47 here just thought i would share i had a colonoscopy done today. I have crohns all thru my small and just at the edge of where the small and large meet. Well the doctor and i thought it...
congrats on your wedding. I have found stress good or bad gets my stomach juices going and therefore bathroom time. I would suggest a low mg of xanx. And maybe some bentyl for abdominal spasms. I...
my whole family has been big people. When my disease became active at the age of 16 we didnt know what was wrong. I weighed 155lbs with in a year and a half i lost 50 pounds. I couldnt keep anything...
i feel for you and your pain. im no doctor but i dont think fistulas are just for crohns. but i could be wrong. you just have to go with your gut when it comes to all these doctors. You are in my...
Hey, Fistulas really suck Ive been dealing with them for 9 years. I had to have one drained in the hospital when i was young. It came back one other time, but i took flagyl and it went away for about...
I usually tell people its a digestive disorder . I dont really get into it unless someone is really interested. And even then i leave some out its embarrassing.I tell them to pull it of the web too....
Ive noticed thru some of the post that some people are put on way more than 40mg of predisone. I was put on 80mg at one point in my life, of course it created a lot of other problems. I had to take...
i agree with everyone about tapering slower. I really feel your pain. When Im on predisone its like im in my own little world of hell. Im usually put on xanx cause i get the shakes i brake out with...
Gumby Im really sorry about your retriever they are such good dogs. about 8 years ago I had a blk lab and a brown lab they were good dogs. It takes a little time but you'll get over it. And your cat...
oh gosh ,when I was really young .in my twenties, I went on a date and when we got back and he took me home my stomach was so loud. I was so embarrassed it wouldn't stop. He thought I was hungry. Its...