Hi Joy, thanks for responding. That's what I thought too about the pressure but my PCP says no. I've been having issues for months with throat clearing, swallowing difficulties, etc. Chalked it up to...
I had an ultrasound of my thyroid, the results are: The right lobe of the thyroid measured 6.4X2.8X1.7 cm. It demonstrates a heterogenous exhotexture and a hyperechoic nodule in the mid pole that...
I've been on 200 mg doxy about 2 1/2 weeks now. I must say physically I'm starting to feel better. Not as tired, achey, joints don't hurt quite as bad, maybe a little more mentally alert (but not...
Yes!!! I feel the same way....
Today is just a really bad bad day with the kitten and stuff. Almost feel like my world is falling apart. I envy those of you who have strong support systems. My husband was one of the first to tell...
I'm not even sure lyme depression is a word but I was wondering what is worse for you, the anger or the sadness? Saturday was horrible angry. I took 2 ativan and it still didn't help so I more or...
Lets see, a few weeks ago I went out with a friend and her husband to a fundraiser to support where another friend works. That was a Saturday night. Had been feeling awful for about 6 months,...
I am the exact same way! Doctor refuses to do a western blot because my Elisa was also negative. My fatigue, brain fog, dizziness and all my other symptoms are caused by a recurrent sinus and ear...
I still work, unfortunately. I was off for 5 weeks but according to my doctor I'm not sick enough to be off being all my test results came back normal. I went back this week. Anyhow I work as a...
Hi Carrie!! Have you checked out the lyme disease forum here? Alot of good advice there too. I am fairly certain I'm battling lyme even though my ELISA test was negative. My PCP sent me for a thyroid...
Thank you! Sometimes I feel like I'm loosing my mind and am beginning to think it is all in my head as I've been told. I only had the Elisa test done and that was negative (of course). My doctor...
I posted on another thread about my doctor's appt. on Friday(with my GP). All my tests came back normal except for the nodule in my thyroid but he doesn't think that is anything to worry about (I see...
I know what you mean. I saw my doctor on Friday. My ELISA came back negative so in his eyes that means no way in he double hockey sticks do I have lyme. Am trying to find a close LLMD that takes my...
Also a fairly newbie with lots of questions. Sometimes I feel bad asking so many but I'm trying to understand this horrid disease. Hope everyone feels better soon!!...
Thanks!! Don't worry I will keep my appt. once I get one. I just wanted to see if there was any relation....
Had an MRI of my head (normal) and ultrasound of my thyroid last week. Ultrasound came back with thyroid nodules. Is this something that may be related to lyme? Been off Bactrim a few days and...
Anyone try these? Anyone have any luck with them? I was in a local store today and they had a pack of 4 pads for 1.00. I got 2 packs, figuring if they help I'll go back for more and if they don't I'm...
Negative of course. Doctor said he'd retest me in a month if I want....
Only had the Elisa test done by my family doctor. I'm not working right now and can't afford Ignex, plain and simple. I go back to see my family dr. after my MRI tomorrow so I guess we will see then....
Yes I've always had ear infections but never like this. Usually one or 2 a year if I'm lucky. Past 8 months have been one after the other, always on the right side. Feel a little better this morning...
I hope I'm not annoying anyone with my posts/questions. My Lyme brain isn't thinking clearly. Anyhow, negative ELISA test, doctor doesn't think I have Lyme but I do, started on Biaxin a few days ago...
Can you email me with some other forms of treatment? I certainly don't want to self medicate but don't know what else to do right now....
I've thought about it, believe me I've thought about it. My doctor wants to "rule out" everything else before he considers it to be lyme, even though I have tons of symptoms. I currently am on...
My doctor wants an MRI of my head. Was supposed to go today but ended up with a sick child home from school. Rescheduled for Tuesday. A little nervous about what it is going to show as alot of my...
Hi!! I'm not ready to go through menopause yet. I also get those crawling sensations and hate them. I'm really not sure how I manage them except to itch or rub the area. I work overnight shift and...
Thanks! My back does hurt but I assumed it was from all the shoveling and ice chopping I did yesterday....
Thanks for thinking of me. Helps to know I'm not alone, even if I feel like it at times. Feel a little better emotional wise today. Just have a headache, shakes, and some other strange feelings....
Ok what does a herx feel like? I started on the Bactrim on Monday and Grapefruit seed extract (1 250 mg pill a day). Today I woke up feeling absolutely horrible. Sweating, shakes, tingling in legs,...
feel better soon!!!!...
My question is why test if Lyme is supposed to be a clinical diagnosis? I've got more Lyme symptoms then lupus and RA but my doctor is convinced I have one of them instead of Lyme. Just really really...
Morning everyone! Not sure if it's the weather with snow and ice yesterday or what but I just feel horrible today. Not too bad with the exhaustion but lyme rage has a hold of me today. Screaming,...
Yes, I got the list, thank you very much. In the process of going through it and deciding who I want to try....
Thanks HH!! Not going too good so far lol Hope you have a great week too...
I also am very sorry for your loss. Even though I am new here, I feel very welcomed as we all navigate through this thing called lyme. I hope we can be there for you, and you for me, whenever need...
Thanks for the email! Don't mind emails from anyone so feel free! It was funny, when I showed my doctor my list of symptoms that I printed from the PA lyme site, he asked what was most bothersome....
Would love to own a horse but that's not possible right now. I agree that sometimes we get so desperate that we don't think clearly. I actually have ordered fish antibiotics from Amazon and have...
I am working on finding a LLMD. I emailed ILADS yesterday and they emailed me back with the name and number of the Lyme Advocate in PA. I left a message for her. I am also working with the Lyme PA...
If it causes me to herx, I'll know I'm on the right track. All he seems to think it is is lupus or RA. I know it's not but try explaining that to him. Just getting so discouraged and starting to 2nd...
don't have horses so how would it be possible for me to get this and try it, if I get the courage?...
Hi everyone! Happy Friday. Of course the doctor doesn't think it's lyme especially since I don't remember getting bit or getting the rash. Figured that so it didn't bother me too bad or it was the...
Hope no one minds I brought this back. I am also in eastern Pa and looking for a LLMD. Can someone please email me the list? Thank you!...
I think Donjoe was referring to me with the emails being we both live in PA. Unfortunatley he doesn't have his email listed so I've got to hope Donjoe sees this and emails me back....
I will post results tomorrow after my appointment. I will get a copy of the results, don't you worry. This was just my family doctor. Was hoping he would be more sympathetic but guess not. He worked...
I am sorry. I deleted my post. You didn't come on too strong so no worries....
Lucky you. Mine were negative but I am 100% convinced Lyme is what I have....
Of course with the flawed testing I knew they would be but hearing it from the doctors mouth makes it so much more real. I'm sitting here crying uncontrollably and can't stop. Feel like everyone...
Helps to know you aren't alone even if you feel that way at times....
Best of luck to you too!! I understand the scared worried part very well. I feel that no one understands, no one cares, I feel people think I'm lying about feeling this way to get out of work. I just...
Thank you! I will get a copy and post the results here. The only joint pain I had before this was my left knee. I've injured that knee too many times over the years to count LOL But recently my other...
Hi! I'm not even sure where to begin or what to say/do. I have been feeling horrible the last 6 months or so. It's been one infection after another. I went to the ER back in May 2010 thinking it was...