Hi Ally, I have deleted this post too as you have it in duplicate. Thanks, Susie...
Hi there, :-) This condition has similar symptoms as LPHS. If the kidney moves more than 5cms then surgery may be possible (Nephropexy). I had this surgery with instant resolution of symptoms. My...
Thanks, Where do I buy this from? How does it stop the strictures?...
Hi Sugar NJ, I had Butrans patches for renal pain & hated them! The drug is an opiate & an opiate antagoniser which is crazy! hence it nulled the effect of the other opiates I was taking & put me in...
Hi Chutz, Well done you for keeping going with the job of Forum moderator for so long! There are now over 150 of us on the lphs FB sites. Personally I don;t think it is as rare as we think but it is...
If you had lphs the pain would be horrible. Re the anxiety I found that Traumatic Incident Reduction (TIR) helped me. See www.tir.org for details. It is very good for anxiety & depression. I had...
HI, Hydronephrosis means 'water on the kidney' & is simply when the urine cannot drain out of the kidney for reasons already mentioned by KaraJO. Mine was caused by a kink in the ureter preventing...
Hi Hibee, I read your postings & wonder if you may have Loin Pain Haematuria Syndrome. Please see the LPHS support group on Facebook or email me at [email protected]. the symptoms are...
Hi Mary, Do you have kidney pain? If so please join us on the LPHS support site. I have a rare renal condition called Loin Pain Haematuria Syndrome (LPHS) which was caused by having Nephroptosis...
Hi, Anyone with renal pain may like to meet others with the same. We can be found on the LPHS support site on Facebook. Renal pain my be due to a condition called Loin Pain Haematuria Syndrome or...
Hi, anyone with this condition or symptoms of severe loin/groin pain in the absence of stones, please join the LPHS support group to meet others with the condition. The symptoms mimic those of lphs....
Hi, Anyone with this condition or who has renal colic type pain with no stones please join the LPHS support Facebook page for daily contact with others....
Hi, I too have urethral strictures caused by having a hypermobile kidney (Nephroptosis). The kidney dropped 5cms causing renal colic type pain. It was not diagnosed for 5 years as the condition is...
Hi 'Oceandale', You ask if there is anything else in the way of treatment. I have acupuncture which find helps with associated problmes such as lack of appetite. You mentio you are allergic to...
Hi. We have made contact via Facebook & hope you feel happier now you know ur not alone....
Hi, I too go into urinary retention & have to self catheterise if it gets to the end of the day & I haven't passed urine. I have strictures of the ureter which hold the urine in the kidney...
No way. I just found it worked so well for me that I was interested to learn as much as I could. So I did the course for interest & use what I leanrned to help family & friends for no fee....
Hi all, I must share with you about a treatment called Traumatic Incident Reduction (see www.tir.org ) 10 years ago I was depressed with panic attacks & anxiety. Over a year, about once a month,...
Hi all, 10 years ago I did a technique called Traumtaic Incident Reduction (see www.tir.org ) I was a real mess psychologically & having panic attacks & constant anxiety. After working over a...
Chutz, Thanks for that info. I personally don't think it is rare as a Urologist who is aware of lphs diagnosed 5 new cases in his first week in the UK! You were on healing well when I used to post...
Hi, I have LPHS, a rare kidney condition that causes severe renal colic type pain often requiring huge doses of opiates. I have had it for 10 years & learned to live happily with it. Anyone wanting...
Chutz. Do you know is it's possible to put LPHS as a main section in the main menu rather than a sub-section to Chronic pain?...
Hi Jake, I wonder if it was you who contacted me. I have LPHS & anyone can email me on [email protected]. Chutz, It's autotransplant that you refer to where the kidney is moved down into...
Just wondering if anyone has tried a splanchnic nerve block for renal pain & colic....
Calling All LPHS sufferers! I used to come on this site a lot but now there are 4 Facebook pages. I wanted to share that some clot busting drugs that I was given in A&E for chest pain helped my...
Hi to all of those who suffer severe renal pain & colic on a continuous basis. I have read some exciting research done by Dr. Ahmed Ghanem that shows a link between LPHS & hypermobile...
What a great forum moderator on this site. I suffer with severe renal pain/colic continuously firstly due to hypermobile kidneys & then to strictures in the ureters. I just wanted to mention that...
I have in my hands research that took 10 years for Dr. Ahmed Ghanem to do, that shows that there is a link between LPHS and symptomatic Nephroptosis (SN). The latter is the medical term for...
The reason you were told not to chew them is that slow release morphine is coated so that it is released slowly over 12 hours. If chewed or cut in half (as one nurse did for me) a sudden release of...
The research papers aren't on auto-transplant but the link between hypermobile kidneys causing LPHS. Alys...
I also meant to say that a doctor at Guys & St. Thomas specialises in auto-transplant but the success rate is poor for LPHS as I understood what he told me. I looked up urologists at above...
Dear Tracey, Until Dr. Ghanem's research is published i cannot share it. However he told me that I can always share his email address and he will help anyone he can with either LPHS or Symptomatic...
My dear feloow sufferers. I had hypermobile kidneys for so long that it has caused Loin Pain Haematuria Syndrome. I have a research document in my hands done by Dr Ahmed Ghanem who has found that the...
Dear Chutz, I got his research off the internet but he hasn't started at his new place of work yet. He & Peter Thompson have written re Nephroptosis & ? a link with LPHS. I will let him...
I have great news. A Dr. Ahmed Ghanem is a urologist from Saudi who has been working in King's Lynn for the last ? year. He is moving to work at King's College hospital in London on 22nd June as a...
I suffer from chronic kidney pain possible caused by loin Pain Haematuria Syndrome & a hypermobile kidney. Recently during a 3 week hospital stay on hourly Diamorphine/Oxynorm I was offered a...
dear 2Mom, I had anxiety 5 years ago & depression 15 years ago & 4 years ago did work over a period of a year (one session a month) with a lady trained in TIR ). I was not well received Happy...
Happy New Year to you all from Allys from the Chronic Pain site! One moment at a time is what keeps me going, along with support from others & knowing of God's love for us all. Best wishes to you all...
Working with therapy is what cured me. I used a tecnique called Traumatic Incident Reduction. Once every 2 weeks for a year I sorted through all the past events that led to anxiety & depression. I...
The point about checking thyroid function is very important. Also food intolerances can cause depression, the commonest being wheat....
Yes I too had traumatic events as a child & absolutely agree with what you say. It is called Traumatic Incident Reduction precisely for that reason. Trauma as children is often the root cause. I...
I know because I have been there but my conscience would not let me keep quiet about something that helped me & thousands of others to get better. Alison...
Dear Tase, Just to let you know that I am not a paid facilitator & certainly not drumming up business! I am a Mum & housewife, educating our son at home. I facilitate TIR for friends & family in my...
Dear wmnak, It's a pleasure! I could not fail to share the success of this procedure. It was first used in the treatment of war-related mental health issues. One case study tells of a lady whose...
Dear wmnak, So glad to hear a positive comment! I am so impressed with how TIR works that I am now trained in facilitating it! The success rates are awesome & i would recommend it to anyone who can...
Absolutely but don't know of anyone who has tried TIR & not found it worked. All the best on your healing journey. Alison...
Why would you believe that you can't get rid of depression? It was 20 years ago. Was on this site answering a question on chronic pain & thought I must tell you all. Have you tried Traumatic Incident...
just want to share that I cured myself from depression by using a technique called Traumatic Incident Reduction (see www.tir.org ) Alison...
Dear All, I want to share with you that I used to suffer from anxiety & panic. I worked for a year with TIR (Traumatic Incident Reduction see ) & have cured myself! Alison I edited this a wee...
Just had to mention it. It's hard to keep quiet about something when it helps so much. Alys...