Hi Cindy, Like you my memory is shot!! Dr told me it is from long term opiate use. My screen name was either DMO or Painisreal. I honestly cant remember. I do remember a bunch of us always talked all...
Hi again SC, Sorry I have not gotten back with you. I sometimes loose track of what I am doing. I am not so sure the surgeons have our best interest at heart. They cut for a living and they do make a...
Hi Jdfan and N2Braves. I also take pain meds and know what its like to come up short. Sometimes the pain will get bad and you take an extra pain med for a few days and before you know it you are five...
Good to read you are using less meds as you heal. Falling on the ice could have been horrible for your fusion. Hope all is well now. I have adjusted to the fact I have chronic pain. I am in pain...
Scott, I have disregarded the advice of second and third opinions of different drs. I will put off fusing the two levels below my already fused vertebra until I just cant stand the pain anymore. The...
Hi again SC, The advice Susie gives is very sound. Try everything and maybe something might help. I have been down that road and am here to say post surgery is the pitts. I get pain relief with...
Hello Bright, You have another post on this subject which I gave a bit of advice. Usually the stress affects the levels above or below the fused section. I am living proof that this happens. Only...
Took me forever to heal from neck fusion. I was tired for months after surgery. Susie is right in that this surgery makes you tired and it just takes time. Plan on three months depending on your age....
Hi Bright, Having a four level ACDF is quite a surgery. I had C5-C7 done years ago and now need C3-C5 done now according to my surgeon. I know all about sleepless nights and pain. I was in pain...
Hi All, I had a bit of trouble swallowing for quite a while after surgery. Being your own advocate is really great advice. You know your own body better than anyone. Also I have noticed when...
Hi SC, Hope you are still checking this forum. Most forums on the internet have slowed with the advent of facebook. Not sure why as I cant stand posting there most of the time because forums like...
Miss Stephanie, My wife and I have a friend who was just diagnosed with liver cancer with mets to the lungs. He has lost considerable weight and looks really tired. This diagnosis is both shocking...
Jim, thank you for your thoughts on the seed migration. I know sometimes when I write comments I do not always include all the information that is needed to understand my problem. I did have imaging...
I am surprised really that the Uribel med is not working to help with the burning feeling. When I initially had the seeds implanted Uribel saved my life. The burning was horrible to the point I hated...
Here we go with an update. I saw my RO today. He had access to my Urology records because both he and my urologist together placed the seeds. We went over the things my urologist has done and the...
I was given three meds for OAB. Oxybutynin, Trospium and Myrbetriq. They all work for OAB but all have side effects. I am so glad I have the best possible cancer in the world to have--If you have to...
I had the spacer Gel placed before having LDR seeds implanted. Because my PCa was detected early I chose the seeds over other treatments. I was told the Gel would be absorbed by the body but I cannot...
Just wanted to say my heart goes out to everyone suffering on the forum. I hate PCa and all the side effects. I have not felt the same since my treatment either. I have both reflux and ibs. Hang in...
I have seen three urologists all within the practice of Urology of Virginia. All of them have been great and listen. I ended up changing so much as one was not a cancer urologist. The second one only...
Hi Ken, I had LDR Brachytherapy seeds and the day after had the worst burning of my life. My urologist sent me home with NOTHING. I called the dr on call and he sent in a script for Uribel. Worked...
Hi Groundhog, I had LDR Brachytherapy. The urologist measures your prostate to make sure its not overly large. If its under a certain size then you can have the seeds or short term high dose...
I chose Brachytherapy because I thought the side effects would be less than RP. Cwrkr, as with everyone here choosing a primary treatment plan involves much soul searching. I had the SpaceOar Jel...
I would like to update my situation and ask for opinions and guidance please. I had my Urologist appointment a few days ago. I went in to discuss blood in semen and continued burning or what I...
Miss Stephanie, I have read many of your messages and want to say how incredibly lucky Jeff is. At this point in Jeff's life he needs someone of your caliber by his side. What a terrible disease PCa...
Well thank you Gentlemen for confirming my fears about the Shingles vaccine!! A few others also said how bad it was. I am in my fourth week of my shingles outbreak. Sucks is putting it mildly!! I...
I have read many messages here where RP resulted in complete cancer remission. I have also read where Brachytherapy and beam radiation were also successful. I do not wish to start any discord about...
Thank you both Fauntleroy and CaliJR, I have taken all my antibiotics but no joy with ending the burning pain. I was scoped but my dr said things look well except maybe a little cystitis. He said it...
Bosnt, I can see no reason you should be sorry and you have not offended me at all. I was just remarking we both must live in the Tidewater area and see the same group of drs. As all the others have...
Hi Bosnt, I have been a patient at Urology of Virginia for about thirty years. I am now sixty three but have had prostatitis many times over the years. Yeah, I know, just lucky I guess!! I have seen...
Thank you Mumbo for the reply. I am so sorry to hear about your dad and his post op issues. I read all I could find on Brachytherapy and concluded that having issues after seed implants was almost...
That is a very informative response IsitSerious. I had many many seeds placed in my prostate about two years ago. Let me ask you as well as anyone else here who might know--Are not the seeds placed...
I am waiting on a call from the dr to see about getting in a bit quicker as it seems to take six months to get an appointment these days. Sorry for the exaggeration it just seems to take forever. No...
Hello All, Rather than adding this to my already long past thread I just wanted to recap and add this new symptom to my three month long burning when urinating problem. I have had a scoping by my...
I want to thank you Cyclone for your support and caring thoughts. I have been experiencing burning when urinating for a good three months. My in office urine test was I assume a simple strip test...
Had to laugh at your comments JNF!! Funny thing my urologist never said a thing about burning pain after the procedure. Considering I came to him for burning pain during urination you would think he...
Hello to everyone and an update on my scope procedure. I have been dealing with burning during urination for about three months now. Urologists office called close to a month ago with a positive...
Thank you Sr Sailor for the info on cancer cells being more sensitive to radiation. It would seem there is much I just dont know about Pca. No surprise there!!! Yes I have a UTI and of course the...
Hi Groundhog, lots of great advice here. Having gone through this myself I can say its overwhelming at times. Deciding on the right course of action can be daunting. You are early in your journey and...
Again thank you all for the replies and your genuine concerns. I am taking Uribel daily which is prescription strength. I would hope it would work better than Azo if I am not mistaken. As for the...
I really want to thank all you wonderful guys for the sympathetic words and thoughtful responses. I had no idea two years out from all this Pca-- the side effects would reach out from the grave and...
Here it is maybe two years after my seed implants were put in and now I am wondering about radiation side effects. Honestly I did not think much about it till I read Pratoman's history. Radiation...
Just a quick update. My urology appointment today was with the PA. My urine analysis came back with hematuria. PA will discuss my results with the dr on monday, she said he would surely schedule a...
Urology of Virgina is a big practice. Loads of drs and PA's. I cant complain as they have always fit me in when I need to be seen such as this time. I like both my Urologist and my Oncologist so I...
Just a quick update, Urology of Virginia called and moved me ahead a month. So glad to hear this. I get to see the dr this Friday. I was thinking also it might be a good time to add an anti anxiety...
Miss Stephanie I am not a long time poster on this forum. I consider myself to be in poor health and have delt with my share of pain and suffering. I have read many of your threads and consider Jeff...
Hi David, I had seed implants about two years ago. I considered beam rad, HDR and seed therapy. In the end I chose seeds because of my oncologist and urologist. The seeds are supposed to be smaller...
Thank you Mumbo for the link. That is the thread I had found when I first started searching for similar symptoms to my own. If anyone has read through the thread they can see others have had burning...
Good day to Everyone, I had brachytherapy seeds implanted about two years ago. The first few weeks after seeds were implanted I had horrible burning during urination. Urologist prescribed Uribel and...
Susie is right on the money with her thoughts on pred. Since you don't say why you are taking pred and for how long or what dosage its really hard to give advice. I will say this--it works well for...
Hi All, Just wanted to update and say my prayers are with you all. I am now tapering my pred. I am at 9mg per day for the next month. Dr wants to get me off pred asap. Overall I am not so sure the...