Ok. I hesitate to even post right now. Warning: Lots of venting about to occur. :shakehead: I just can't get it together. I am falling apart. I'm a mess. I can barely function. I am only 29 years old...
"I've been chasing answers for awhile now, and it's really just come down to it almost has to be neuro in nature. I'm afraid the MRI will show something, and then, in some ways, I'm afraid it won't -...
I read somewhere that this helps with all kinds of things including mouth sores which is why I decided to try it. Oh my goodness!!! I have not had a mouth sore since. I get them horribly twice a...
So, I had to get one. I hate them!!! Oy vey! I got results back saying that I had atypical cells, but that they tested for HPV and I didn't have it. I've never had an irregular pap before. Is this...
Good Luck! That husband of yours is a very lucky guy! I hope he realizes it this time and makes good on his promises. If you ever need to vent than vent away. It will be difficult to overcome and you...
I already gave up! lol Actually, I took my son off it because he kept saying, "My tummy hurts" all day and would hardly eat anything. I wanted to make him understand that his tummy hurts because he...
That is exactly what I mean by sore throat. It is like I have a lump that I can't swallow. It's more annoying than painful and it doesn't always occur. For me lately, I have "flares" twice a month (I...
I'm glad you came to a decision. Although, do read what Nancilee said. She is right. Distrust will eat away at your marriage. Don't expect it to go away, it will stay with you for a long time. I'm...
I do not have a dx of Lupus. I am however waiting for a Rheumotolgist appointment. I do have something. Still in limbo though. But my rash is usually on my face and looks more like a sunburn. I get...
I was just curious what a typical flare was like for others? Does anyone get a sore throat with the mouth sores?...
My family and I are going on a gluten free diet. I've read some articles that suggest that this can be beneficial to people with auto immune disorders or joint pain, seizures, etc. Does anyone do...
I'm so sorry!! I've been in a similar state. I always trusted my husband blindly, never suspected anything. One day, I came up behind him on the computer and he closed out of it really quick. But, he...
I have considered this possibility as well. I've tossed it around with so many things. My husband and I were just discussing putting the family on a gluten free diet. I just found out that my son's...
My son hasn't really had a lot of infections either. Most of his symptoms are cognitive. He was having probably 50 or more myoclonic seizures a day before he began taking Keppra. It seems to control...
Quick question for you all- I just found out that my son's IGG is a little low. It was 433. This was discovered through different genetic testing that was done to test for possible reasons for his...
Okay, so FINALLY I got someone to speak with me from the genetics in pediatrics. We took my 3 1/2 year old in for testing to try to discover why he has myoclonic seizures and other issues. I wanted...
(((I found this on another site, I hope it is what you are looking for- the bartonella and babesiosis symptoms are below after the lyme disease symptoms, I added that for other people just incase...
Has anyone experienced this. I've been thinking back to some of my first problems. I remember (before I was pregnant with my first son), I lost my sense of taste for an entire week. It was really...
It is interesting that you brought this up because I haven't really thought of this as a symptom and haven't brought up to my PCP. It is an odd feeling. It is soreness towards the top of my throat...
I am really starting to think that if the doctors can discover what is wrong with me, we can diagnosis my son as well. I just have this feeling that it is treatable and that are conditions are...
I get a sore throat often. It always feels like I have something in my throat that I can't swallow. Almost like I'm coming down with a cold but the cold never appears. It never gets worse if that...
Thank you pcpc for this article. It really really reinforces that my son and I need to be tested for lyme disease. I am going to insist on it when I see my rheumotolgist at the end of the month. Good...
My son has OCD too. We do not know if he has lyme disease yet. It had never occured to me until a few days ago to test him for it. He has sensory issues, OCD, repetitive behavior, myoclonic seizures,...
That is sweet! What a good husband you have! Cherish him. :-)...
daking769, I experience similar things as well. I have not been diagnosed with Lupus as of yet, but it is suspected. My PCP is sending me to a neurologist because she is concerned that I might be...
I was reading your post and I thought for a minute that it was my husband in disguise writing about me. Ha! Wild. I am a stay at home mom. I have a 3 1/2 year old and an almost 1 year old too. (he...
What are you taking dviflx? I can relate to your post. It doesn't seem that anti-depressants are helping my anxiety much either. I feel a little happier after I take them for a short while. I don't...
This is Jenna by the way! I changed my name because I read that you are not supposed to use your real name....
So, I've been on the hunt to find out what it is wrong with me! However, it isn't just me that has undiagnosed health problems. My 3 1/2 year old son does too. About a year ago, he started having...
Congratulations!!! :smilewinkgrin:...
I don't know if this is important or not. I will assume it is because anything could be a piece of the puzzle. I have developed a strange feeling in the right side of my face near my ear. It hurts...
My first ANA was 1:320. My PCP said that it was probably false because the anti DNA and another lupus specific test were negative. I don't understand that really because you would think with my other...
I recommend getting a gym membership and exercising. It is the most natural healthy way to improve mental health and as a bonus, you improve your physical health and looks as well. I always feel...
I will add a psychiatrist to my list of my doctors for sure. It's difficult talking to my husband about it because he immediately takes offense and believes that I'm not happy because of him. Why do...
Lupus is a very serious disease. I am shocked that a doctor gave you an option to be treated or not. I've never heard of a mild case of Lupus. I was under the impression that you had it or you did...
It makes me sad to hear you say that you try to be "normal" for others. Please don't do that. You are suffering and you do not need to add to that by worrying about being a "downer". That is the...
Have you seen a personal care physician. Sometimes we are depressed because we are sick. It is good to rule out an underlying medical condition that might be causing your depression. What has...
I have that same paralyzing fear of death ((( I like how you put that))). I'm even super uncomfortable around old people. My anxiety has turned towards paranoia. I'm always scared that someone is out...
I'm so sorry you are going through this. I take Lexapro also. It might not be the meds. It is unfortunate that there is no drug that will take away heart ache. However, that pain is what makes us...
That's great! I'm so glad your day went so well. I tried this too about two months ago and mine didn't go so well. In fact, I felt worse afterwards then I did before. Just my luck. ULTA was having...
Thanks! It helps to know that I'm not a nut job. I don't feel completely comfortable with my PCP to be honest. Not enough to tell her that. I have some very twisted things that go through my head at...
That's a fantastic doctor!! I hope my Rheumotologist takes me that seriously. I would love it if they would test for everything all at once and get it over with. I don't know why some dr's are so...
Okay, what is an example of a psychotic episode? I'm confused when I see that in the list of criteria along with seizures. I have panic attacks and weird crazy scary thoughts sometimes. I also am...
Okay, I'm adding a couple of pictures. First one is me looking normal, the second one is me feeling terrible and with my face rash that my PCP swears is Rosacea. (((terrible picture by the way))))...
My son is taking keppra. He is only 3 though, so I don't know how much that will help you. It causes behavioral issues for him, angry outbursts, etc. I've heard it is good because your liver doesn't...
I understand. I love to work in the garden. I love landscaping, beautiful flowers, etc. I do what I can, but an hour out there doing that work feels like 6 hours. My heart is always beating really...
Thanks for all the wonderful advise. I did have a great time with my husband. It was actually overcast and rainy most of the time. A lot of people were bumming that, but NOT me. lol I managed to find...
Thank you so much AlwaysRosey for your advice and encouragement. I appreciate your thoughts. I will definitely try the long sleeve white shirt. :-)...
Thank you Gretchen! :smile: I don't think it is MS either. But, I think I will do an MRI anyway just in case and for peace of mind. Each negative brings me that much closer to what the true ailment...