[b]Update As I mentioned back in 2015, I was on Dilantn fore 40 yrs. I've recently found out that IT SHOULD NOT be used " long term" , b/c it is so harmful to the body. My Neurologist of 40 years has...
Hi Porkythepig Re: Dilantin, I read in a medical journal that Dilantn should NEVER be taken " long term" because of the damage it causes to the brain (Cerubellum)and the bones. After 40 years on...
Porkytheplg Sorry to hear of your dilemma with dilantin and your Doctor. I'm in the same situation, (with an old school Neorologist, set in his ways) I've been on dilantin for 39 years. My...
Hi machz, This is a side effect of the Dilantin and something you'll have to live with unless it's so bad that it's causing Probs. But then you have to ask yourself, would you rather have seizure...
Hi Peugeot, It sounds like you are having Paranoia and anxiety as a result of long term use of Dilantin, Paranoia is a known side effect of Dilantin. You may also notice jerry movements and/or...
Hi cake girl and welcome to Healing Well. Yes, other illnesses can be detected through EEG such as Sleep Apnea (which can cause nighttime seizures) Sleep Apnea can also effect headache in the...
UA The MAIN problem is HE REFUSES TO SEEK HELP b/c he doesn't believe he has a problem. Meanwhile, he has destroyed our family, and being caring parents, it's hard to disown your child. (easy to say...
My son was dx'd with BP when he was 12 yrs old. He's now 30 yrs old and living with his girlfriend. But what I find MOST frustrating is when he has an episode (manic) he gets into trouble with the...
I have had UC and Epilepsy for 38 yrs. Epilepsy first, then a few months later came the UC in the early stage called "Mucus Colitis" and then, full blown UC. My Neurologist says that both conditions...
denalee, Have you gained any weight or have a 15" neck? If you lay down or bend, the added weight will close your airway and causes a lack of oxygen to the brain, hence causing night time seizures as...
iPoop, Thanx for your reply, however, I take 1 tea spoon of metamucil every nihgt before bed for the laet 5 yrs. and 3 days a week I would have Bran cerial in the morn. I was sure that this would...
I've had UC since 1979. I was told by my then G.I. that I should stay away from dairy products. I still have milk in my cerial and cream in my coffee and sometimes I have icecream. I havn't had any...
Hi Brad, My name is Randy, I've had a "seizure condition" for 36 years so I think I have enough experience to give an opinion. (I prefer to be called a person with a seizure condition rather than an...
First of all, I've been on Dilantin for 36 years. *** This is just my opinion,you may be different.*** My balance has been effected severely by this drug as well as my gait, short term memory and...
You may have a form of sleep apnea. Maybe you should speak to your Neurologist about sending you for a sleep study to determine what's causing you to feel this way. Have any of your seizures happened...
Sharsy, You may have a form of sleep apnea. Maybe you should speak to your Neurologist about sending you for a sleep study to determine what's causing you to feel this way. Have any of your seizures...
Stresshead28: You may have a form of sleep apnea. Maybe you should speak to your Neurologist about sending you for a sleep study to determine what's causing your snoring. Have any of your seizures...
On a related topic; Another bad side affect from long term use of Dilantin. I don't know if this has been posted before but here it goes anyway. I've found out several years ago that I can no longer...
SWEET POISON! A MUST READ! In October of 2001, my sister started getting very sick. She had stomach spasms and she was having a hard time getting around. Walking was a major chore. It took everything...
Meena: Most of the symptoms you've all described in this thread, I've had. Your son may have a form of sleep Apnea. This could explain why all the tests are coming out normal during the day but show...
JungRulz 1) My Neorologist keeps telling me that (as you've suggested) my "balance and coordination" issues are a side effect from long term use of Phenytoin (dilantin). BTW ~ I now take 300mg per...
Is anyone else having these types of problems? I have a "seizure condition" (epilepsy). I've been on dilantin and pheonobarb for 44 yrs and now, as a result of the long term usage of the MEDs I have...
SunnySkyJan: That is exactly the same dosage of Pheono and Dilantin as I am on since I was 21, I'm 57 now. Also, if I try something new, I also have seizures, more frequent and severe. I'm not sure...
IMO ~ Don't keep switching Doctors. If you have a seizure condition, Please be sure that you are seen by a NEUROLOGIST or EPILEPTOLOGIST, not just your family doc. who may not be to familiar in this...
I went 34 yrs seizure free and I was of the strong opinion that if I were to have an "aura" or get that feeling just before a grande-mal while I was driving, I would be able to pull over in plenty of...
quincy, Correct assumption. I have been on a maintenance dose of Asocol for 34 years and in remission with the odd minor flare up (maybe about 6 or7 over 34 yrs. that only last a couple of weeks)...
lacaille, Hi, my name is Randy from Canada. I have been taking 3,000/mg of Asacol now for 34 years (with other antiepilectic meds for my epilepsy) with NO or minimal side affects.(for me I get...
To m counihan, I've had Epilepsy now for 34 years and speak from experience. Maybe you should speak to your Neurologist about sending you for a sleep study to determine what's causing your night...
zdrast, I also have the same symptoms as you and my brain scans all look normal. Hi from Ontario for everybody reading this post. I've had epilepsy since 1979, controlled by meds. I get a form of...
DangerDash, I did not quit my seizure medication. I was just responding to "Flowmaster00" post from 2009. I have no issues with dilantin. Randy...
Flowmaster00 You have been off the dilantin for over 4 years now. Was it worth quitting? Your quote: "For all of you out there I was taking dilantin for 26 years and dilantin causes so many problems....
Cardinal33, I've been on dilantin for 34 years now and I've never heard of it causing constipation. Randy...
It could very well be that the Dilantin is what is keeping your seizures at bay. Some medications do work for people with seizures, others do not. The EEG could have shown seizure activity 14 yrs ago...
Jimmy Cee, Are you on any medication? because that can bring on all kinds of bad side effects. I'm not a medical person but I think I can answer your questions based on 33 years of Epilepsy. I've...
I was concerned about long term effects of anti-epileptic drugs and Multiple Sclerosis so I contacted the NMSS of Canada and here's my reply: The risk of epilepsy seems to be three times higher in...
Acheybody(Debbie) Maybe you should let your daughter read these posts and then she will see how serious this is, and if you still have a problem with this, as mentioned above, report her, you could...
I went 23 yrs seizure free and I was of the strong opinion that if I were to have an "aura" or get that feeling just before a grande-mal while I was driving, I would be able to pull over in plenty of...
Elijah said... I went seizure free (we think) for 34 years, then out of the blue had a grande mal. The doctor said I couldn't drive for 6 months and it has been absolutely terrible! Usually when a...
Acheybody, Sorry, One more, O K, so you choose to drive. Now try to get insurance. If the insurance Co. finds out that you have/had a seizure condition, your premiums will sky rocket or if you should...
Acheybody, You could go several years seizure free, then all of a sudden something could trigger another one without any warning. This happens all too often out of greed and the need to drive....
Acheybody, This is a topic that REALY BOTHERS ME. Most people are of the opinion that "that will never happen to me." Well it seems to be happening more often than ever. It seems that the Ministry of...
Acheybody, I went 23 yrs seizure free and I was of the strong opinion that if I were to have an "aura" or get that feeling just before a grande-mal while I was driving, I would be able to pull over...
litcome, If you've had an EEG and/or MRI and they showed no seizure activity and you are also having nighttime seizures, you could have "pseudoseizures". They are psycilogical seizures that don't...
litcome, You should consider having your Dr. refer you to a sleep specialist, where a overmnite sleep study can be performed, an EEG is done on you while you sleep and it shows if/how many seizures...
O K, so IF you choose to drive. Now try to get insurance. If the insurance Co. finds out that you have/had a seizure condition, your premiums will sky rocket or if you should have a minor mis hap ~...
jesimae, I went 23 yrs seizure free and I was of the strong opinion that if I were to have an "aura" or get that feeling just before a grande-mal while I was driving, I would be able to pull over in...
Hi Rebecca, I've had epilepsy (seizure disorder) for 31 years. I'm not a professional in this field but I'm speaking from experience and pieces of info. I've gathered along the way. 1) - After a...
mktggurl Your husband's actions immediately after a seizure are a normal reaction after a seizure. I t's called the "Post Ictal" state. It usually lasts a few mins. It causes confusion, delerium,...
kat10 I get an "aura" before a seizure comes. This is a warning for me that a seizure is comming. Some ppl just have an aura and no seizure. If you are on meds and just have auras, that's usually a...