I don't know maybe it is just a quiet time for this forum. But I have noticed when i reply to a subject then it seems know one else does. I guess it is just me seeing into something that probably is...
/community/emoticons/confused.gif I am a bit confused with this forum. I feel like I have hurt or offended someone. No one replies to me anymore. If that is the case I am very sorry. I did not mean...
Jennifer, I live in the United States and went on mdeicaid not to long ago. I had to change neuroligist but that was mostly do to my seizures increaseing. It is a little different being on medicaid...
Randy, You should consider yourself very lucky that you have only had 2 seizures since 1979. I know going without driving can be a real pain in the butt. Then again for us out here who's seizures are...
Waiting is always so hard whaen you have seizure going on all the time. The MRI was not bad. The man doing it told me to take a nap. Right with all that noise a nap would of been just the thing. But...
Hi! I am getting ready to go for the MRI that the EPI Clinic schedule for me. Needless to say I am a little nervous.I raed what the place sent me and they said it takes 48 hours to read but the EPI...
How do you do a google? mary...
Beth I am so sorry for what you have gone through. But it does not help yor stress level to go back in the past and think if only. Been there tried that. You can only go forward now with your husband...
I have had seizures since 1997. My Neuro. has sent me to a EPI Clinic. They are running test on me so I guess It is a second opinion I should of got A while back. Second opinions never hurt. Good...
It is so nice to have people understand what you are going through when no one else seems to. But I still have a very possitive attitude. Even with my family. That is my sisters. What they can't and...
/community/emoticons/smurf.gif I am just so confised with this doctor changing. But my attitude is still good. It just seems eveything takes so long. Yesterday I had some pretty bad seizures so I...
I am so sorry no one showed up for the support group. How frustrating that must of been. It is good to hear you are going to try again. Good Luck Mary...
Thanks for the imformation Tracy. When I have had med changes it was because I was having to many seisures so I did not realize that when you get a new med it could cause them. I guess even if the...
Tracy, It sounds like your appt. went good and you have DRs that will work with you. That is so important. This EPI Clinic I have started to go to seems like they will work the patients. I've only...
I have tried writing to one sister. She totally ignored me. I know writng things down like in a letter can get a lot off your chest and then just rip it up. Oh sometimes it would be so nice to be...
Well today I found out that my sisters all took a trip tp Ohio to visit my niece. And quess what ? I was not even considered to go. To think we all were so close growing up and raiseing our kids. Boy...
Leave NOW and don't look back. I stayed and ended up having seizires that are now poorly controled by medication, while the one who did that to me is living a nice life. I am still suffering. Please...
I quess I really just need to vent. ifeel so alone with this Epilepsy.We were going to start gonig to a supot group but the weather was bad and our car is good around town but any further it is nit a...
Tracy, I truely hope you are feeling better. Time does have a way of working thinks out.Even when things seem so overwhelming now. I am keeping you in my prayers. For me praying helps alot. I might...
Tracy, You got to understand One thing about mothers. They one eveything OK for their children. All the time they are pregnant with their child they try to do all that is right. Once that baby is...
Hey Tracy, You got to calm down. I'm not going to give you any advice excecpt to calm down. I'm so sorry about you and your boy friend. I also am a mom and personally I do not want to know what is...
Jeff, Thank you for replying. I don't no what I would do with out this forum. It is a mind saver. My dad use to say until you walked in someone elses shoes do not dare to judge them. I certainly know...
Michelle, I was not happy about changing DRs. at first. But I was having way to many seizures and still am. My NEURO. reffered me to this EPI> Clinic. I had finally gotten medicaid But it messed up...
Tracy you are just to nice. I hope you are ok. You take care of your self.Thank You for always taking a minute and letting me know your thinking of me. Mary When we have to deal with hard stuff it is...
I would think you could just cover the very basics at the first one and find out what others who come are needing support in and then take it from there. Get their needs and ideas also and then...
Randy, It is not that simple for me to educate my family and close friends when they say I scare them. Deep down I know they mean well but it can hurt. And yes I wish so much that I could work. I did...
jacqueline, I am sorry about your friend. I did not mean to sound so abrupt. My husband is Bipolar and takes meds. I have epilepsy but visit this forum sometimes. It just scares me when people take...
/community/emoticons/smile.gif I received the pamplets today. Thank You. That's alot to go through.I started my AM doze of Zonegran today.It really seems to have knocked me out. But I am not crying...
Nancy I hope you are doing ok. Just checking.Have some faith in your self. Try to relax.People are just ignorent when it comes to seizures. They get very frightened I quess. That is what I have...
The DR. called back and increased the Zonegran to 100 mgs. in the morning. He did make sence and said that the object is to controll the seisures. That he really did not think it was why I was crying...
I can hardly believe it . The EPI. Clinic called me already the nurse said I was supose to be taking the Zonegran 2 timems a day now . That would mean 200 mgs. in the AM and 200mgs in the PM . I told...
Nikki, I have been on dilantin since 1997. When it is toxic in me I walk very bad bump into things can hardly talk can't pick things up like a pen or pencil. My problem was that I would get diarreha...
/community/emoticons/sad.gif I Am just wondering if anybody could tell me the side effects they have had on Zonegran.When the DR. at the EPI. Clinic put me on it it seemed to really slow my seizures...
Thanks Tracy you are a very understanding person. I take Keprra too,but I do not remember it effecting me in such a way. I do have alot of other things on my mind, so that does not help. How are you...
/community/emoticons/sad.gif Well today is my granddaughters 1'st Birthday. My son clled to ask us to her party. I have decided on not going. When we were there on Xmas I had a seizure. His mother-...
It sounds to me like you want to self medicate yourself. That is one good way. Smoking pot is another. So why don't you all just have a party?You all have a serious illness, which you are on...
Tracy, Sorry things are so hard on you. You are in my prayers. It is easy said then can be believed but when one door closes God has another one for us to open. We just have to find it and opening...
Sherri, just checking and hope you are o.k. Mary...
Randy, I am very gald the two work for you. That Penobaebatal I could hadly function. I went to see my PCP and acd\ked hime if he thought I might need hormones. He adviced against it. I talked to the...
Nancy, You sure have been through enough. Sometimes mom's have to be else where when we need them. We are here to listen and care. We may not be your mom but we really do care. Mary...
Randy those are the two oldest antiseisure drugs on the market. I have been on Dilantin since 1997. The only sie effects that I really feel is when it becomes to toxic in me. I was having my blood...
Randy Thanks for caring,I started out with areally good morning. It has been 1 week since I had a seizure. Now I'm just scared waiting for it to happen. I just feel all alone except for my husband....
Sherri, you have alot on your plate.My husband is Bipolar and it is nothing to be ashamed about. Don't try to figure every thing out at once. ( 1) Find a Dr. that will treat your Bipolar. You may...
It really can stink when your doctor is giving you mixed messages.I understand the increase in seizures and finding it impossible to have gainful employment. I did go through a period were I thought...
Irina, Yes I have been going through some very major changes in my life I'd say in the past 6 months.And yes I want many ,many more tomorrows for me. I had a son that at age 20 comitted suicide so I...
Scott, This Epileptic Clinic that I have started to go to do have studies that hey do. It is at a teaching hospital.I will say that the past six months I have been on alot of meds. When my hhusband...
Jose this is a great forum. Both the males and females are helpful so much. I just became a member this past Nov. they listen to you give you some good ideas and really let you know they care. Hope...
I am just so tired of eveything. Since Semptember I have been in the hospital twice due to my seizures. I know I sound like a big grown up baby and even if no one reads this or replies to it I have...
Randy here in the U.S.A. they have the American Disability Act. When I started havinn seizures I was working at a place that was very accomodating to my needs.I could not drive,work alone or operate...
Randy, you are so right. When I was able to work I never missed any time. I was always willing to work over time. If I worked a double shift I worked just as hard on that second shift. But I was like...