Re the hormones, Estrogen lowers the seizure threshold making one more vulnerable to having a seizure. Progesterone raises it giving some protection in that you can tolerate more activity before it...
I take Keppra now even though I have had surgery. Th length of time between dignosis and surgery allowed kindling and another focus to form on the other side. Either that was the cause or the "day...
You prepare for it by becoming very educated on all aspects of the process. If you were taking in your only car to have the engine modified, you may want to know that the one doing the work had done...
I have a question. I am reading that you are seeing a neurologist. I am not seeing Epileptologist. There is a difference in those two. Since your seizures are caused by the angioma and not an area of...
Hi there. I am not in the Medical field although I am in healthcare. I also have experienced all I have described here. I also can teach well although I am not a teacher as such. I have done this for...
I really understand about the memory problems and decreased cognitive abilty on the meds. Trust me! The seizures and the meds can cause impairment of cognition and memory. If seizures continue over...
Hello, yes I did have surgery 6 years ago but not the procedure you are going to have. I am assuming that they plan to remove your angioma. I had the Anterior Temporal Lobectomy. I am a bit surprised...
A PET scan (Positron Emission Tomography) is one of the tests done in determining candidacy for surgery. It is not a test done routinely for seizures unless the doc thinks there may be a metabolic...
You may be aware of this but maybe not, so I will explain. Seizures that are not stopped but are allowed to continue, can and do worsen over time. That is called Kindling, just like the word sounds....
Dori, I encourage you to read about the laws in your state. They do differ. You will find that people with heart conditions and other medical problems who do lose consciousness at the wheel are...
Hello, Kayakmom is right in that one seizures is just that, a seizure. I would thnk of one seizure as a symptom of something going on. Many people have pne seizure and never have another. It takes...
There are lots of people who have done really well with the VNS. They go about their lives so they do not post on boards like this. I would hate to see you stop and not seek proper care. Until you...
I had the typical epilepsy surgery and haven't lost consciousness since. I was not aware that after Gamma Knife surgery that you would continue to seize. I didn't know that Gamma Knife didn't wipe...
I relived a little of my own story when I read yours. I was a child too and was wetting the bed every night non stop. That continued into adulthood until I tried one AED, Depakote. It seems that if a...
Hello, I wrote you an epistle and it got lost! I will get back and try to rewrite it but for now I want you to know there is hope. Never give up on that. I also want you to do a Google search for...
Hello, What kayakmom wrote about the Epileptologist is great! Since the meds have not stopped your seizures, there is little chance that any of them will based on the statistics. Once one med fails...