Dorothy, I'm so sorry to hear about your dad. How are you doing? BIG HUG!! I totally understand wanting to put things on hold for a bit, you need some time to think about your dad and figure that...
My local epilepsy foundation actually has a support group a couple miles from my college- held at the bigger college campus here in madison. if all else fails, i might just join that group- i was...
Tracy, That is sooooooo great!! congratulations!!! I know school will be stressful (since that's what i'm doing now!) but you will do awesome- it's what you want to do so that always makes things a...
Thanks for the advice Glenda! Yeah, I'm going to try to "advertise" in a couple different ways from now on because many people at my school tend to not check their e-mail plus our bulletin boards all...
I hope everyone's anxiety is doing better. I too have bouts with a bit of anxiety- for me though this may be somewhat hereditary, my father has an anxiety disorder, and I'm sure a few of his siblings...
... So I posted a month or two ago that I was trying to start an epilepsy support group on my very small college campus. The first meeting was a flop- no one showed, except myself and the school...
Welcome aboard! I'm sorry to hear all your issues, just remember, we're all here for a reason- because we have seizures and want some support or have some support to give others. Feel free to vent...
Thank you guys so much for the advice. I've actually wanted to try yoga and someone suggested that I do that a little bit ago. I've been talking a lot to my parents and other good friends, it helps a...
Question for everyone- what things do you do to decrease your stress level so you don't have seizures? One of my triggers is high stress which I'm experiencing at the moment actually. Knock on wood I...
Good luck! hope everything goes well! I did experience having a Tonic Clonic after having my wisdom teeth out but it was probably because of the pain meds, it didn't happen till the day after the...
Hello Gonny, I'm sorry to hear you've experienced your first seizure. Have you seen a neurologist about it? I myself had my first seizure at the age of 7 but didn't have another one till age 13 and...
Jill and Niki, your story inspires me so much! I myself have epilepsy and in a few years, after I'm done with college, hope to help other children with epilepsy and seizure disorders. It's great to...
Randy, I actually live in Wisconsin. I know we have laws against that kind of discrimination which is why i was so confused as to why she got let go. I'm not sure if any thing we have in the US that...
Being a person around the same age, well, i'm 19, as your niece, I understand what she's going through. She needs to understand that drinking and smoking aren't the only ways to have fun- if she...
It's hard, having epilepsy and being employed. I recently heard a story (well, i think it's true but who knows in the world we live in!) about a nurse that began to work at the same nursing home i...
I would think keeping a journal or diary or something like that would be the best way to find a pattern. Also, let others you are around know that you are looking for what triggers your seizures,...
Thanks for the stories! I was really wondering more if people had experiences when loosing weight not because of Keppra but just because of exercising and such and then after your weight dropped, you...
/community/emoticons/confused.gif Hello everyone, I have a quick question about Keppra. I have been taking Keppra since this past August at 750mg twice a day. I've lost some weight in the past 2 or...
I'm sorry you had a bad seizure today, and then threw up- it's no fun being sick especially then having a seizure. I hope you feel better soon!~ Jessica...
Topomax was the first drug i was on and let me tell you, it wasn't good at all for me! I started taking it right before highschool final exams and I noticed a change in my ability to concentrate and...
I would have to agree about the meds. True, it does suck to be dependent on medications but if it's what can make your overall life better and safer, I think it's the way to go. I was on Lamictal...
Tracy, don't give up! I'm going through the same thing- epilepsy and trying to become a nurse. It's a struggle I'm not going to argue there but you shouldn't give up on your dream, if it's really...
Sorry the results weren't what you were hoping for. I know how that feels- everytime that happens to me. but it's good you have one eeg that shows abnormalities. did you end up cooking anything? it's...
I'm sorry your seizures have come back. has anything changed in your life recently that would make things change? That's good that you have an aura before and can do something before you actually go...
Chris, I totally know how you feel- I'm 19 and was diagnosed at the age of 15 although my first seizure was when i was 8. I had a similar experience about the doctor thinking i was just having...
I'm glad the MRI went well. I always got to listen to music when i had them and i'm not a big napper so i just kind of layed there. I hope everything turns out okay! ~Jessica...
Mary, I'm sorry you feel that way, sometimes when i make a comment no one responds either, I think it has to do with sometimes there aren't a lot of people on the forum or they don't necessarly have...
Thanks tracy and everyone else for the encouragement. I really needed it after no one showing up. I feel like I'm doing something good for other people as well as myself but then no one comes so I...
good job! I knew you could get through it. Yeah all that junk in your hair, that's what i hate most about EEGs. I'm glad you didn't have a TC. Sometimes I feel really tired after them and sometimes...
Hi, I just wanted to say that I know what your daughter is going through, I myself am 19, going on 20, and was diagnosed with tonic clonic seizures at age 15 although I've had them since i was 8....
I hope everything goes well! Sleep a ton afterwards, I never take naps or sleep much but boy do i ever sleep after a sleep deprived EEG. I usually don't feel well by the time i get to the hospital...
I was first on Topamax, ended up calling it Stupidmax because of the side affects I got from it... It got to the point where I couldn't concentrate or think properly. That is one of the side affects...
What they usually tell me is that I can sleep till about midnight and then your supposed to get up for the rest of the night. Like other people said, it's to see if being sleep deprived provokes any...
Tracy, I've had many sleep deprived EEGs to try to diagnose me. Basically all my sleep deprived EEGs have been me staying up until going into the doctor's @ 8am to have them put electrodes on me,...
Hey, just wanted to let you guys know how the support group went- well, not well, actually no one showed except me and the nurse of the college. I thought this would be a problem because it is a...
Wish me luck, I have the first meeting of my support group tomorrow! I am so nervous and scared that no one will show up :( I guess I can just hope for the best!...
I've been on Lamictal before, not while pregnant but I was on it for about 2 years I believe. I got off of it because it wasn't controlling my seizures enough. The only problem I experienced with...
Any suggestions on what I should bring to first meeting? I don't want to be too over the top, I mean should I just go and have nothing or should I bring some pamphlets? This is starting to stress me...
My uncle is a pharmacist and suggested I use Anefrin Nasal Spray for colds because basically all cold medicine has Sudafed (sp?) in it which lowers my seizure threshold. The nasal spray can be found...
I have recieved a ton of stuff from the EFA after contacting them and telling them I was doing a speech about Epilepsy in one of my college classes. thanks for the tips!...
Thanks for the tips, I was planning on setting up some guidelines and rules, thanks. Yeah, I have an Epilepsy Foundation in the city I live in, I haven't contacted them about it although I do know...
I am new to this site and group, I've never actually talked to other people with Epilepsy. I have a question though- has anyone started a self-help or support group before? I'm starting one on my...
Sorry, I'll change that it's a Simple partial seizure that always goes into a secondary generalized tonic clonic seizure. I just forgot to put that part in....
I totally agree Randy- staying on meds is always good even if you haven't had any seizures in a while!...
I know how you feel about being diagnosed and such. I had my first seizure at the age of 8 in a clinic waiting room with my mom who is a nurse and has specialized in neurology. I wasn't diagnosed...
I took Topamax a while ago- it was horrible for me. It controlled my seizures but I became sluggish and it really hurt me at school- I couldn't really think clearly. We nicknamed it "Stupimax" I've...