I would definately do what you can to go see a neuro. It all sounds too familiar to me, I was dxed late in the game for not recognizing symptoms. You definately have to get the ball rolling. Also the...
Thank you so much Mandi ann your GREAT!...
I get night sweats all the time. I am 26. I even get them with the air conditioner on. I have to find out. I am interested any info is great....
Okay I will send you them you can't post them though..............
Oh Beth how nice of you & great to hear from you! Glad to hear Kimmy is doing better...she can email me if she ever wants to :) Much better to have the smaller seizures with less of that knock out...
hmmmm maybe she can just stay inside most of the day where it is cooler. We got the dogs one of those kiddie pools for hot day for them to go play in. But it is sad and strange to see especially...
PS HELLO JENNIFER WHERE ARE YOU???????? I know you are hear just wanted to say hi to you specifically busy do gooder...
Okay Miss Mandi I will email them to you if you really want to see them. My cap is HUGE!!! LOL...
OMG sorry to hear about Daisy!!! I luv her... anyway one of my dogs Jessie started having seizures toward the end of her life. I have to ask my mother what the vet said about it but it was very sad...
Hi GIRLFRIEND!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Why didn't you email me also?? LOL Okay well I had just a horrible adjustment period to my meds and DX. But I don't find anything different with my...
I ALWAYS ALWAYS ALWAYS believed that my first daytime Grand Mal was due to hypoxia (low o2 levels). The neuro said no way. I had my first daytime seizure after being on a plane with low levels of...
I have luckily been able to go to casinos still since my dx. It is a very stimulating enviornment so I could see it being a problem for alot of people with epilepsy. Everything is always such a...
Randy is right, just keep up on those labs. It is all about quality of life. It is a hard toss up but it takes alot of thought and decision making. Talk to your doctor about your fears. And never...
Hi and welcome. Thank you for sharing your story. Sometimes it just takes that one special person like your teacher to notice and make things turn around. You have a great attitude and I agree with...
Hi Babs. Long time no see! So sorry to hear about this. This is what happend to me to. But I didn't drive that far to go see the guy. I am sorry and sending you HUGS> take him up on that EEG if you...
I love you guys so much. Thank you so much for your support. I have a feeling the neuro may try to take me off my meds. I am not mentally ready yet. I still think I have occasional partials and...
YAY! So happy to hear from you!!! I think of everyone all of the time. School takes all of my energy, but I can't believe it is over. I am seeing the neuro in a week. I am scared he is going to try...
Do you guys remember me Mandi, Jen, Randy and everyone else........... /community/emoticons/tongue.gif ...
Just wanted to stop by and say hello to everybody. It has been a while since I have been able to get on. I am super busy with school. I graduate exactly one month from today (which also makes one...
Oh gosh my eye just isn't catching the thread. Sometimes I feel like a moron!...
Hello. I had a Grand Mal seizure that is what helped diagnose me. The neuro and EEG showed I was having some seizure activity in my sleep. Since I started treatment I haven't had any daytime Grand...
Hi How is everyone doing? Is everyone enjoying spring? I hope everybody is having a great weekend. Does anyone have any cool hobbies? I don't really. I am crafty. But with school I don't have much...
Hi I had sort of the same problem. The hospital neuro told me I had a grand mal and wanted to do eeg's and had a bad bedside manor. The second opinion had the nerve to tell me I only passed out and...
I would be concerned about a rash that is still on and off with the benadryl. There are alot of different meds you can try. I would wait a while until the dilantin is out of your system. Dilantin is...
The stigma is there and that is why it is SO important to push forward and show and amaze everyone...anything whatever it is. sounds like you have been through alot. But through the junk must come...
I think it is important to never let epilepsy get in the way of your dreams. Everyone is different. We all have different seizures, thresholds, triggers ect. But fear is a horrible thing to carry...
Hi. I haven't had the surgery but I know there are a few on this site who have had it and don't post as often because I think they are out living happy lives. Glenda has surgery hopefully she can pop...
Welcome to HealingWell. Good luck with everything Jennifer I just read all of the posts. Keep us updated if you can. We are happy to help. Take care, Tracy...
Hello Jan. You have already gotten great advice so far. I just hope that the testing will show something so they can get some kind of treatment going soon. *Hugs* Take care, Tracy...
Hi. It took me three months to adjust to the mood swings from Keppra. My doseage is 500MG twice a day. Maybe since you started therapy two months ago you still have some adjusting to do. Talk to your...
Hi. That is annoying that she wasn't very specific. I guess from seeing these posts a "regular" seizure is an NES. Well hope your follow up appointment goes well. Take care, Tracy...
Hello and welcome to healingwell! Maybe you can talk to your neuro and see if you can have some testing done to see what exactly is going on. Maybe you just need a med adjustment or something. It...
The only way to drive with confidence is to stay off the road for a while until you acheive seizure control. Then you will be more confident once your situation is under control. I didn't drive for 6...
I second the wedding picture!!!! /community/emoticons/smile.gif /community/emoticons/smile.gif /community/emoticons/smile.gif ...
Hi Randy. Glad to hear your EEG went well. It must be such a great feeling. I hope your follow up visit goes well. Take care, Tracy...
Of course I was sincere, I am a student nurse. And I care about all of you. I will check my drug guide, but many meds have dual purposed or off label affects. I would talk to your neuro about all of...
Thanks Madipy for the welcome Yes I have been here well over a year now. I love this support group the best I have joined yet. Even did a community health project based on online support groups...
Hello Uhura Sorry I wasn't up I would have chatted with you. IT is so hard with those sleep deprived EEG's. I hope all went well and you are probably getting your rest now?...
You are silly Jen No it is cool to see how far I have come being I am 6 months away from finishing Nursing school. I love these boards and the support they offer. Thanks Jen, you have always been a...
Hi. Healingwell is the most friendly non confrontational board I have come across. I think we have a wonderful little community here. I don't know why you feel slammed, but I know it isn't a good...
Hi Beth. Sorry to hear about your grandmother, I also lost my grandmother in July. That lift is great. I know I have to rest well and eat well. I require alot of rest to stay healthy. Thanks for your...
Hi guys. Glad to hear you are all doing well. I have been running around like crazy in this medicine rotation I am in. It is alot of fun but very tireing. I think I had a sz in my sleep the other...
I myself had a sleep deprived EEG done. It wasn't much fun trying to stay awake a full day then that night into the next day. But I had a friend hang out with me pretty late into the night or morning...
Hi! /community/emoticons/smile.gif If his insurance will cover him seeing and epileptologist he should go. A Neurologist is good, but and epi is just so much more educated on epilepsy. I hope that he...
((((((((((Beth B.))))))))))))))) Good for you mom. Ignore the morons! Take care, Tracy...
I am behind you 100%. Good for you that you are getting in contact with the corporate office. They were all lucky to have you there with them. I would be mad also and that manager deserves to find...
HI. Did they give you any reason that you would need to be in the room. THat doesn't sound right maybe there was some kind of misunderstanding of something. I would speak with them again and find...
No I was not required directly. But when my physical had to be turned in they knew. All of my instructors so far have been great about it. Nothing but supportive. They told me I couldn't be...
Hi Donna, Thanks for the update on Alaina. I hope that the new med change will be better for her. Please update us after you see the Neuro. Sending you two ((hugs)) Take care, Tracy...
Hello! I am so happy for Kimmy. It is so nice when things do seem to work out. Good for you. Thank you for the update also, it is always great to hear good news! Take care, Tracy...