Well I had the test done yesterday...what an experience! Everything went ok for about[b] the first 5 minutes I would say then the rest is bizarre....I can remember the neuropsychologist yelling at...
thank you for your kind words...it makes it not all seem so scary! /community/emoticons/smile.gif ...
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Hi everyone! I havent posted in a long time...I finally got to an Epilepsy clinic for 2 and a half weeks and they took me off my meds to study my seizures. Turns out I hve seizures coming from my L....
Hey AmandaJane How is everything going with you? How are you feeling? Hope things are better! /community/emoticons/smile.gif (((Sheena)))...
Hi ....I just thought of another big trigger for me lately...the weather! I live in Canada and when the barometric pressure drops ie (snow storm) I feel way off for a few days and have seizures...so...
Hi Jessica! Sorry to hear you are under a lot of stress. I too have found that stress is one of my triggers and I am going to try yoga as well....I agree with Glenda and the others it is supposed to...
some people shouldnt even be called human beings....disgraceful behaviour but hold your head up high and know that you are the bigger better and WISER person...sending you positive thoughts,...
Hi everyone....I too have noticed an increase in my seizure activity around my period. This cycle I actually had 3 CP's...the first I have had in a while and a vicious migraine which my neuro says is...
Mary....peas are yucky and sometimes people act like peas and we dont want to be around them either and thats ok...be PROUD of yourself for following through you are the BIGGER person remeber that....
Michelle...hope you are feeling better...please take care and call your Neuro and tell him/her what is going on that was very wise advice given! take care of yourself!(((Sheena)))...
Hey Glenda! love the story! sorry.....hate peas LOL! but the moral is awesome!!! thanks for sharing....think Ill go have some chocolate lol!! /community/emoticons/tongue.gif (((Sheena)))...
Hi all...all I can say is that I feel like I am entering the twilight zone almost every day....LOL I just hope for a good episode!!! and am thankful that I have not lost my sense of humour (nor have...
Good Luck Christie...hope it goes well! Sheena !!...
Glenda....aka....Goodwitch! Good morning...glad you found a trigger thats awesome! Get some cool shades! Maybe I should too and that would help my headaches.....The advil is obviously not helping the...
Minnie! How is your aching head? I hope that your advil worked because mine took forever to work I thought it said extra strentgth on the bottle???? You guys wont believe what happened this...
Hey Mary....I read your story and may I say that I am very sorry for what you went through in the past, but am very impressed by your attitude and courage and determination. I am Canadian and all I...
Hi Goodwitch and c. michele--sorry it took me so long to reply--I have been having wicked migraines/seizures lol!! Gelastic seizures eh? I will mention that to me neuro next time....get this...
Jeannie...interesting point...however ..using vicks on your chest for a cold or tiger balm on your muscles to relieve a headache is a far cry from using herbal remedy instead of AED's to control...
Goodwitch-your welcome - just make sure not to get it near your eyes or near your mucous membranes it will sting/burn like crazy!! But it does wonders on the shoulders/neck for the tension/migraine...
Hi Minnie66; thanks for your help! What you described is how I felt like I needed to lie down and keep my eyes closed...they couldnt stay open by themselves....lst night after my hubby came home I...
Hi Goodwitch! Sheena here...I use Tiger Balm the rub on my neck and a teeny weeny bit on my temples for my headaches I am in Canada I am not sure if it is available in the US ....and DO not get it...
Goodwitch-hi! thx for reply so quick...you think just a cp then cuz I was semi-consiocus? wow I am scrambled....sorry...my hubby be home in an hour or so then I will feel much better! thx for...
Hi everyone...me again you hve all been so patient with all my questions so thank you here I go again. I just had that weird feeling you get before big seizure liek i have before CP very shaky...
Hi Lyme Girl I am sorry to hear that you are going a similiar situation, not much fun is it? I am sure that it could very well be a combo of all the things you mentioned that are causing the...
Having2leftfeet-Hi -yes the seizures are nasty! The thing is right now I am not sure what is upsetting me the most the seizures the meds the diagnosis the lack of sleep the IBS the stress the...
Good day ! Unfortunately I do not own a copy! I will have to go out and get one so I can join you! Do you watch CSI, SURVIVOR or ER? Those are my weaknesses I will admit to you....especially CSI and...
Hi Gordee Start keeping a seizure diary every time you have a seizure that can be very helpful in letting you see a pattern in the triggers...good luck!!...
Hey Goodwitch! Love your name by the way! I think lately I am the scarecrow I cry so much at anything! I love chocolate too....unfortunately the IBS doesnt let me enjoy that so much right now LOL!!...
Hi Donna! Thanks for the info and support I really appreciate it...no I have not always had mood swings and depression. I have always had worrying/anxiety issues but not depression by any means or...
Hi Minnie 66! Thanks again for all your help and support...I just put a post above and rambled on and on to another wonderful supporter about how my day was so will not repeat myself and bore you!! I...
Hi Goodwitch! How are you today? I a feeling a little better today...called my mother in law and she is going to take me for my appt on the 28th if she is not working so I will not have to go with...
Hi Mary...you are right I should not take to heart when others say negative things you are so right thank you for understanding....you make me feel so much better ! (((SHEENA)))...
Hi there. I am new in this forum. I am newly dx with Epilepsy. Right now I am off on medical leave from work, and taking 3 different anti-seizure meds. I just started a new seizure med Keppra about...
Hi Goodwitch! You are back! and with more kind and good advice as usual --thank you! I should know better then to even discuss my health with this person....I try not to....today couldnt avoid it...
Kayakmom--thank you so much for your kind words and understanding. He made me so upset today and I felt so badly about myself.....now I dont feel like such a loser. Thanks! Take care...
Hi guys....well I posted yesterday about how I was feeling depressed. Not going to bore everyone again with the repeat details. Anyways today I made some positive steps toward healing myself as my...
HI Randy! Yes I am from Canada--Ontario actually too--and funny enough I just applied for EI benefits (medical) on-line yesterday myself. I also have CPP package and need to take it back to HRDC...
Hi Randy and James I am recently diagnosed with CP seizures and I have had IBS for many yrs. However since the E...the IBS has become much more severe, and the more stress I am under the more severe...
Hi Goodwitch Daisy and Minnie66 --thank you all you all lifted my spirits today when I came on here--thank you for that and for the good advice!! I will keep on top of the doctors and when I see...
The IBS is horrible isnt it?? I agree with all of you....it is a vicious cycle between the meds...the stomach issues and the stress....also the emotional issues with the medications .....I am on...
Hi. Tough day. Called neuro re bizarre night happenings I posted about earlier. All he seemed interested in was asking about how the Keppra was working. Well, I said....I am not having cp's ....but...
Hi Phoebe....thanks for the info---I am still having trouble sleeping...I am going to call the neuro tomorrow...as this is out of character for me since starting the other 2 aed's...also it does feel...
I think the topomax for sure decreased my appetite now I am on both ??? I dont have much of appetite...when I do I get full really fast. I have been starting to try and exercise to relieve some...
Minnie 66 do you reckon it is recurring dreams or deja vu? (aura's or sp's seizures?) cuz I can't figure this one out or do you think its the meds causing the dreams? I can only remember little bits...
I have cp seizures in tl---lately have been having more sp's in strings of deja vu like auras where I stop and stare and freeze---i take topomax tegretol and Kappra.....I get a feeling come over me...
Minnie 66 --would love any info about Keppra and/or weird/bizarre night dreams or seizures. I have been having strange night time occurences thanks so much!!...
I think I will be asking some more questions when I go back to see my Neuro. on the 28th - thanks so much for your help Goodwitch! Take care!...
Hi Mary! I too take tegretol topomax and Keppra...hard to find an appetite but hot turkey sandwich does sound really good right about now lol! take care...
how do you mean depressed? Are you crying a lot? Are you under a lot of stress otherwise in life? You should talk to neuro, right away about these side effects if this is so "not you" call his office...