I'd say it possibly sounds like a migrane. But I'd say more definitely, go to your doctor. They're paid to listen to 'weird symptoms'. If you're having something possibly related to a head injury,...
I've been on Lyrica for a while. Like most meds there's been no side effects; on the other hand there's been no positive effects either. I have been spreading outwards around the waist lately, but...
Keppra seems to have a remarkable variety of effects on different people. Its impact on me has been... nothing! No side-effects, apart from a few days of drowsiness when I first started taking it....
Monte, To answer your original question: I have after-effects up to an hour after partial complex seizures. At first I can't remember any words at all; and even when I can, it's a while before I can...
Thanks for the replies. Cutting down on the booze seems a sensible idea at least. Got another blood test next week. So I'll see what the results are, what my GP says and try to make some sort of...
I try not to use this site to unburden all my problems. But events over the past few months have become baffling, basically, and any advice would be appreciated. I've had epilepsy for about 8 years....
Not sure I'd have the nerve to do a presentation about my epilepsy if I had it when I was 14, Danni. Don't care who knows now, but most of my school years were spent trying not to be noticed. But...
Totally the right attitude, Scaramoche. Making dark and occasionally tasteless jokes about epi is one way to survive. It seems to be making dark and occasionally tasteless jokes at our expense, so we...
Just a few crumbs of comfort, Darren, while you're waiting out the next year: 1. You get to feel smug about reducing your carbon footprint 2. You can get a disability railcard knocking a third off...
As a cause of epilepsy? Wow, this just gets more and more baroque. If any of these sources are on the web, I'd love to see some links. Especially if the writers are pre-20th century. They might be...
Parasites??? Good lord, I haven't heard that one. We're probably at greater risk from paranoia and panic attacks, especially if someone mentions parasites. Can't help, I'm afraid, but let us know if...
It took a few weeks in my case. Though I'm not sure of the exact timescale because the hospital wrote to my GP but neither thought to, you know, actually write to me. So if you're anxious, you'd be...
Elizleigh, I take Tegretol and do occasionally get palpitations. I'd not linked the two before but maybe there is a connection. Having checked the long, scary list of possible side effects, "changes...
Blimey, Carla. I thought some of my tests were weird - especially the ones which involved about 30 sensors superglued to my head - but you've got me beat. What's the point in asking people about...
CZ1, Some of these seem like classic seizure symptoms; the loss of focus, the spacing out and of course, everyone's favourite, the shaking. Not had the smell of burning myself, but a strong smell or...
Ann, In case you login again before going into hospital: As Darren said, the monitoring unit is nothing to be scared of. It's just dull. Make no mistake, you will be bored. On the other hand, it's a...
Sorry to hear about the mix-up, Ginny. You seem to be taking it remarkably philosophically. My reaction in your situation would be to be rage about hospital inefficiency and generally get into a...
It does sound like you've got a great support team there, Carla. It must help a lot. A lot of people get to see a consultant once every few months and have to cope alone in between. So well done,...
I get the slurring too, Ran Man. I also do a certain amount of mumbling. I wasn't aware of either, incidentally. But the hospital recently asked someone who'd seen me having a seizure to write down...
That sounds like a nightmare, sparkelz. At least the police finally showed some reason. Is there any way you could talk to Robert's parents? Or maybe get your parents to do it, if they won't listen...
Hello Ginny If I get a simple partial, I can't speak or even form words in my head. This seems to be the main symptom - my body operates OK otherwise providing I'm not doing anything too complicated....
My deepest condolences, Rogue. It must be one of the hardest times in anyone's life. We'll all be praying for you to give you and hope that gives you the strength you need....
Thanks for replying, Positive. Not sure if I get a button to press. If so, it should complete my transformation into a lab rat. Though I know all about the 'glue in the hair' experience from past...
Finally they've booked me in for an Ambulatory EEG in a couple of weeks time. I get a load of metal discs glued to my head for 24 hours, attached to a tape recorder the size of a walkman. They're not...
Seems a bit hard on the pigs I agree, Rogue. Still, they'd probably only have got eaten by someone otherwise. I must admit, if anyone offered to cast out my epilepsy and dump it onto some passing...
Judging by that peal of demonic laughter, it seem that Mandi is the subject of a genuine possession. Anything you'd like to share with us, Mandi?...
Isn't it people filled with the Holy Spirit, rather than demons, who speak in tongues? I seem to remember a religious gathering once where they all started doing it. Maybe the Bible guy would have...
Ye gods, C&C, that sounds a horrendous experience. Nice to know your doctors failed you on every possible level - from initial diagnosis through quality of emergency care right through to the lack of...
Recognising an aura's a pretty important thing. I sometimes think the aura's the one compensation we get for having this damn condition. I live alone like you, coffee 'n' cigs, and can usually tell...
It should also be pointed out that casinos often bring on a condition called 'Suddenly Having No Money At All' (or SHANNAA). And certain ones in Las Vagas can cause 'Tom Jones-itis.' You're carrying...
Totally in sympathy with you, Jaimes. Epilepsy's an odd condition in some ways. We're totally OK almost all of the time - and then barely able to function the rest. Throw in the fact that most of us...
Has anyone any stories they'd like to share about the most memorable, embarrassing or just unusual places they've had seizures. My most distinctive is probably the main courtyard of Harlach Castle,...
Julia, As RanMan says, people have had different experiences. I know someone who had a lot of seizures in his late teens but has them so well under control that it's been years since he even bothered...
Yeah, that sounds like the sort of atmosphere you might want to take the occasional break from. Talked to someone recently who says calming themselves down when they're having an aura helps them as...
I've not considered chilling out, or whatever, as a way of warding off seizures. Have you found that works? I've not noticed a direct link between stress and attacks, but then I deliberately spend...
Andorea, Different people probably need different levels of support. As a epileptic myself, I simply ask that my friends do the following: 1) Listen to me moan 2) Endure me making the occasional...
Hi Mystic Dreamer, Welcome to Healingwell. You'll find everyone here really friendly and full of good advice. (Except for me. Nowadays I'm just bitter.) Sounds like you're having a bit of a rough...
Hi Kenny, Glad you found us. This is a great place to get advice or just have a moan to people who'll understand. It can be frustrating, I know, to not have many around you who really know what...
I'd just like to share with everyone what happened to me today. Warning: some of the below makes me sound like a wuss. This morning I had a fairly major seizure at my desk. After taking a while to...
Stace, I'm on Keppra and Tegretol. The Tegretol stops me entirely losing consciousness when I have a serious attack, which is handy, but that's about the best you can say for the lot of 'em. I...
I was never 100% diagnosed with epilepsy either, Stace, I kind of got it by default. The symptoms seemed to fit and though the specialist couldn't find any trace in my brainwaves (which is fairly...
Never quite experienced that, Dimples, and couldn't say whether it was the start of a seizure which then went away or not. But it's perfectly normal to feel frightened if you think you're getting the...
I was responding to your post when it happened, Dimples. Maybe it was cosmic revenge for rather clumsily labelling you 'an epileptic'. Apologies for that, it was just a sloppy piece of writing. And...
Hey, guess what? I was posting a reply in the epilepsy forum a minute ago - and I had a seizure in the middle of doing so! Only a petite mal 'pause for a minute and wait for the darn thing to pass,'...
Dimples, Glad to hear the Keppra seems to be working. I've been on it for ages with no noticeable benefit but drugs work differently for different people. No weight gain in my case, which was rather...
I just Googled aspartame and it led me to some of the scariest sites I've ever seen. Seizures seem to be the least of our worries. I'd never even heard of asparame until Houls' post. Now it appears...
I had a sleep deprived EEG when they were still trying to figure out what was wrong with me. The idea (I think) wasn't to induce a fit, more to monitor your brainwaves when you're asleep. The...
Molly, Got a lot of sympathy with you here. I've found I can miss at least 1 round of meds without any effect - which is lucky as I'm forgetting them all the time. One negligent morning did seem to...
Hello Tony, It's not exactly insane to be concerned about siezures, especially if you've had one very recently. They're no joke, as we all know, and seem to strike whenever they chose. So don't worry...
Thanks for the advice, MandiAnn and Kayakmom. You're both right of course, I should see the doctor asap, I'm just not sure what good she'd be. But you don't know till you ask, I guess. The seizure...