Thank you for sharing your Smarts !!! I really have alot of homework to do /community/emoticons/yeah.gif ... My goals are to feel good !! I am not looking to start trouble with docs... I just want to...
NSF.... Is : Nepronic Systemic Fibrosis..... I am not in the med field.... I have read, alot of crazy things about this fairly new dx... that people know about anyway..... Contrast companies are...
5 complex a week,...on average... I had a cavernous malformation [color=#0000ff> [color=#0000ff> [color=#0000ff> [color=#0000ff> Thanks] ...
Wow , I havent posted on here for soooo, long !! I always called my seizures " space outs " years ago the docs called them petit mal.. I can say... when I was spacing out I could not talk either.....
HI... I also, was already not living with my parents when I was diagnosed, but I was only 23... I was married, and having my first child... Yet I was being treated like a child again... I know where...
Ohhh.... Thank you all /community/emoticons/smile.gif .... I am OK... I will be OK...I am kind of just starting to face the truth....With all the commotion it does not absorb the first week, I am...
Hey.... Just wanted to check in... I have been away, my dad was really sick, Now he is gone.. /community/emoticons/sad.gif .. I am hanging in there... I didnt forget about yas !! I am cancelling my...
Hi there !! Thank goodness, I am not the only one !! Not that I want to see anybody else go through these odd experiences, but at least, it does make us all feel better /community/emoticons/smile.gif...
Yep.... Those words " BRAIN SURGERY " can give you looks.... I hate to tell anybody I am considering getting surgery..... they think .. I need a shrink instead, they say... Why... you have no...
ALRIGHT !!!!! Sorry to make a joke of this.... But I have to laugh /community/emoticons/smile.gif ... If I dont... I would go crazy !!! LOST !!! Been there.... Done that !!!! I dont want to bore you...
Thanks Cindy !!! I will probably take you up on that !!! I am going in in 2 weeks for my video... cant wait !!! I am hoping I am a candidate !!!! I want off meds sooooo Bad !!! I will write to u soon...
AHHHH !!! Head feels much better /community/emoticons/smile.gif .... Ohh , I hate to sound so forward !!! But oh Yes !! I know Hormones are a link !!! LOL !!! What to do about it , is another thing,...
EERRR !!!! It must be hormones !!! I cant write much @@ My head feels like it is going to explode !! But I am actually laughing... and had to write back /community/emoticons/tongue.gif .... You see,...
Hi Sheena... You are having some tough times there /community/emoticons/sad.gif ...Dont panic... I would say the same too.. When I was not having much control, I was having the same type of...
Hi all !! HOrmones ... Yes.. I have known about the level explaination and all, but I just still find it so odd.. how it affects us... I guess our brains are so strange...Also.. Yes I have had...
HI /community/emoticons/smile.gif Being a person, that has been on Seizure meds, a lot of different ones over the years... Tegretol the longest... I must say.. YES... Alcohol does affect your...
Glenda, Yes I did have an angiogram... that is how we diagnosed the angioma... I was admitted into the hospital, 15 years ago, after I gave birth to my daughter ... right after.. to have the AVM...
NOW !!!!! I know why we all got IBS... DuH... Chocolate !!!! I am a chocaholic !!!!! I eat chocolate for breakfast !!! Shhh... Dont tell anyone !!! /community/emoticons/nono.gif ........ OK..... We...
Glenda !!!! I forgot to ask.... Is your sister the Wicked witch ???? /community/emoticons/devil.gif .... He ehheheheh.... Sorry I couldnt resist !!!!! /community/emoticons/smile.gif ...
Wow !! You see it is common age... I know I met alot on another site in the past year also, that had their symptoms rise at this age... That was also my only Gran mal seizure that I am aware of......
Hi Glenda... I have to laugh, I still get a kick out of your screen name /community/emoticons/smile.gif ... I was telling my husband, and he says .. Well she has a sense of humor...
How is Life today ?? I also agree with everyones post... Some others just dont understand !! As far as you smoking Sheena... Whatever... You know... It is hard to quit... I am a smoker when I feel...
Add me to the list !!! We should take a poll, How many of us have IBS or colitis !!! I would bet most !! If not all !!! Hey we might as well add hemmoroids to the list /community/emoticons/tongue.gif...
ERRRR !!! I know !!! Sometimes dont you just want to grab the doctor and SHake him @!!! They just dont listen !!!! I dont understand !!! Dont they teach them that in med school, to listen to the...
You know... I really wish I was a doctor.. Or a genius, or just someone that could answer that question.. because I would love to know the answer !!! The dreams, and tossing and turning and waking up...
You go Girl !!! /community/emoticons/smile.gif ...
Phoebe... It was me that had spoken to family of parents of a 15 year old that had surgery by the neurosurgeon that I am looking to go to....The family was very happy with the outcome...
Michelle, I wish you the best... I know that stress of working in a brokerage firm !! AAHH !!! I worked on the floor where the trading was done, and boy talk about stress !! This was before I started...
Good witch /community/emoticons/smile.gif That stinks.. You have to go through all that again.. the video eeg, and all... Yeah I know, I was told last year, the docs wanted me to have 3 episodes...
Anybody else out there looking into surgery ??? Michelle some of this info, might be good for you /community/emoticons/smile.gif ...
I dont know if I mentioned this before, but there are docs that specialize in " Catamenial Seizure " disorder.. I went to one a couple of years ago.... She moved to California now... But if you can...
Hi Sheena ... I like your screen name... It reminds me of that Ramones song " Sheena is a punkrocker " /community/emoticons/smile.gif Now you got me singing that !!! /community/emoticons/redface.gif...
Hi Michelle, Glad you are moving forward... Your story sounds so much the same as mine.. 15 years, and here we are looking into brain surgery !! But I feel the same as you... I am tired of having my...
I can see how experiencing all of this, could make you so educated...I know I have learned so much in the past year, or so than I ever knew in 15 years...I take a list to the doctors office with me...
All info helps... Any experiences that I hear is a help... I like to hear the experiences directly from the patient..What the doc tells you and what we go through sometimes differs, this is why I...
Hi.. It sounds logial the explaination of the Lamictal, and not absorbing it.. and flare ups of the seizures... It took my docs about 2 years to realize, because I was having terrible stomach...
I have questioned myself so many times, wondering, if I am crazy or what... But .. I have to say .. All the types of seizure meds I have been on in the past 15 years... It seems Keppra is making me...
Good to know about the Wada.... Yeah, I could imagine it is going to be wierd !! Are you out of it, for a long time afterwards ? I was told I would have to be in by 730 in the morning and problably...
Thank you both for your Support /community/emoticons/smile.gif DBG... WoW... 2 Surgeries...3 kids also... It isnt easy is it.. But some how we do it !! It isnt easy if you have no kids or 10 !!! I...
Hi , I definetly am not a doctor, Just thought I would share experience about seizures during sleeping hours... I have just really found out in the past year, that I had activity at night during my...
Hi... Thanks for the info /community/emoticons/smile.gif ..... You seem to know your stuff !!! Yes a VEEG is very expensive !!! I had one done last year at this time, in Feb... and I had one Complex...
I have noticed not many on this board has , had surgery, But some have... Phobe... I read you recently had Surgery... I would Love to hear about it... I been researching Surgery for about a year now,...
Minnie, Please email me at [email protected] Thanks This is a support group and hopefully we can all get along...
That is a horrible feeling .... I think I slept for 2 years ... I can honestly say... before last Feb... I was out of it for the 2 years before that... I was on different meds though... I was on the...
Thanks for the details... I know when I had an angiogram done ohh 15 years ago... It was a bad experience... but that was because they screwed up the needle.. catheda... spelling?? anyway.. I...
Hi again... You know. I couldnt rest until, I checked my book about the meds... I know my doc told me the max for the Keppra would be 1000mg for me anyway... but I checked out my book I have.. a book...
Ruan... Welcome /community/emoticons/smile.gif ... I also have Complex partial, and I am currently researching surgery... I am also on Zonegran and Keppra... WOW... I dont know that just seems like...
Thanks Ruan, I can relate... I hate MRI "S !!! I am so Claustrophobic !!! I have to psych myself so much when I go for one !! I am not crazy about an angiogram either, but I guess, ya gotta do, what...
A MEG test is a fairly new test I am told, which is sort of a MRI/EEG combo... thats what it sounds like to me anyway.... It is supposed to define the location of the seizures, I think they use this...
Ohh, Thanks for your thoughts !! I am a fighter !! I am more in shock I think !! I just couldnt believe that insurance companys could get away with this... We pay thousands and thousands of dollars...