Della, welcome to HW. There is a type of epilepsy called catamenial epilepsy that refers to epilepsy that is particuarly worse around cycle and is hormone related. I am sorry to hear what you are...
Topamoax can effect vision, definately effects memory, and can make extremeties go numb. If you are experiencing these side effects and they are long lasting and bothersome you definately need to...
I was Dx'd at age 5. Was seizure free med free at age 15. Had multiple concussions playing sports over the years, and had a major head trauma at age 19... seizures returned. Was officially re-DX'd by...
Welcome to HW Braden'smom. Topamax and Lamictal are both very effective meds with comparitively low and tolereable side effects. Now, with that said, not all meds work the same for all people. Quite...
Chantelett, welcome to healingwell! I'm so sorry that you feel like you're getting the run around by your dr's. I know what that is like. You will find that the people here are very supportive and...
Welcome to HW. Keppra had me mumbling and stumbling arouna nd running into walls like I was drunk. Also, I was so tired I would either fall asleep mid-sentence or while standing up. Side effects can...
Welcome to Healingwell. I'm sp happy you found us. It sounds as though your son had some form of tonic clonic (Grand Mal) seizure. It is definately good that he has not had another one since that...
Mom, I certainly understand both sides of your situation. I had to move back in with my parents at as an adult due to my epilepsy after being discharged from the Army. I had been on my own for quite...
Welcome to Healingwell. It sounds like you might be having what are called Myocolonic Jerks. I would suggest talking to your PCP about this. They are not necessarily seizures but can be related to...
You're welcome. If I can find anything else...I'll let you know. In the mean time....hang in there...
bump...
Welcome to HealingWell! You have come to the right place. There are tons of people here that have gone through the exact same thing you are now. We are here for you. Epilepsy and depression are like...
For those of you who have firearms in your home or are hunters. It's time to think about epilepsy and firearms safety. I know....you're probably sitting there reading this thinking to yourself, "I've...
I have mood swings too. I'm usually very irritable for about 12 hours or so right before I have a seizure. After I have a seizure my wife always tells me, "I knew you were going to have one soon."...
Darren Have you been able to see a neuro yet? If you can't get to see a neuro very soon I would recommend you go to the ER and see them. Some treatment is better than none. I hope you are doing...
violarose, I am so sorry about your father. Has your neuro done an EEG? Stress is a very large trigger for seizures. Did you have seizures before your father became Ill? I hope that you find...
iowyth, Welcome to HW from me as well! Depression and epilepsy go hand in hand. So, it may be the Topomax it may not be. I have been on topomax for a little over a year now and have not experienced...
grew up in South Bend, IN and live in Wisconsin now...
[tr ][td class=msgThread2 vAlign=top height="100%"]Kateh, If you hit your head and have any type of funny feeling or people around you notice you acting abnormal. Stumbling, asking questions...
JayJ, Actually, counting days until or between clusters can be very stressful or depressing itself. Which can bring on more seizures. I understand how hard it is not to worry about when the next...
Hi Beth, Overcast days can effect our moods and our moods can have some effect on our seizure thresholds. I'm not a neruo by any means. This is just my personal experience. It sounds like Kimmy is...
Coach, I played soccer for 15 years with Epilepsy without a single problem. The key is education. The arents that are providing the negative feedback need to be educated about epilepsy and the fact...
Welcome to HW. I'm so sorry to hear about your son. Here is some information on some great seizure alarms. I wish you and your family well. Please keep us posted. You will find everyone here very...
Welcome to HW. I'm glad you found us. If you're concerned about the side effects you're feeling and maybe some potential drug interactions. Do not be afraid to call your neuro. That is the absolute...
Thanks Duck! It's good be home. I may not be on as much as I was before. I have some recuperating to do. But, I stop in as much as I can. Thanks again....
Hi eveyone! I'm just watned to stop in and let you know that I'm back. I'm sorry I was gone so long. I will let ya'll know what has been going on over the lawst few weeks in a little while. Right...
Randy, How have ya been? Haven't talked to ya in a while? let me know what you've been up to....
Congrats to both of you. Darren, I hope you are able to keep your stress level down and can regain your DL. Maggie, I'm so happy that your surgery was such a success. Good luck in school. I hope that...
Husker glad you found us. Sounds like a great start to your day. You'll find many people here that have lots of great support and similar feelings and situations as yours. Welcome to HW. If there is...
Well, the good news is that your med level is increased so maybe that will stop the auras and twitching and allow you to get back to your unit. Also, it's only a few days until your neuro gets back...
Good luck with the Dr. appt. be honest with them about the auras and the twitching. don't lie to them or hold anything back. Stay on them about the ConLeave. I'm really surprised he didn't give you a...
Hey, Duck, Just poppeed over from the Ep side for a moment and saw your post. 1. Sorry to here about your insomnia and Dr. problems. I'll jump on the anti-Dr. bandwagon with ya. Email me and I'll...
Brent, What Branch are you in? I was in the Army for 10 years. Before I get to the Dilantin issue. Let me give you this piece of advice. Get copies of everything medical for you 201. Now for the...
Hey everybody. It's time to check in and see who is around and how ya'll are doing. So, stop in and tell us the what your diagnosis is (TLE, complete Partial, etc), and let us know what you're up to...
Jaimes, I know how you feel. I am also adopted with no medical background. trying to get seizure control is basically a game of russian roullette. It's trying to find the right combination and...
How did you hear about HW? I just realized I hadn't welcomed you. I'm glad you found us. There are a bunch of very supportive and helpful people here. Let me know how things go for you in the forum....
Thanks Duck. You've probably worked on some some of the birds I jumped. LOL But a free ride back home would be apprediated. Too bad I couldn't just open the door and jump into my Dad's back yard. LOL...
Well, my Dad still lives there, and I still have friends there. But, unfortunately my business is on hold right now due to my uncontrolled seizures. So the fundage to get there is a problem. lol But,...
Jscott, I completey understand your concern about flying. please check out the Epilepsy safety post. There is a section specifically about how to be safe while flying....
Duck, Alieve has reactions with my AED's. I also cannot take Ibuprophen. It can cause severe brain hemorraging. I think I'll take a No Go on that one. I have talked to my PCP about my shoulder and...
Tag, First of all, welcome to HW. I completely understand how your daughter and your entire family feels. I was diagnosed as a child and dealt with epilepsy in school myself. Also, I had a difficult...
seizure dogs are not trained to be robots and not all dogs can be seizure alert s dogs. There are two types of seizure dogs. Seizure alert s dogs can alert you to an ancoming seizure usually by...
Pretty severe pain and stiffening with weather change, of course the recurring dis locations (which aren't any fun of course) lol...i can feel a grinding and popping when I move my arm. Some minor...
I had to have the Labrum (cartiledge capsule that holds the ball in the socket) in my right shoulder re-attatched about 2 years ago. Now, the rim of it is degenerating, causing it to dislocate easily...
I understand this forum has some healing to do right now. I feel like this forum has been ripped in half. We need to come together and support each other again. Afterall, isn't that what the spirit...
I know how the ER can treat you. Believe me I know. I've actually been told to stop pretending to have epilepsy and to take responsibility for my actions. LOL anyway, even though you're not actually...
Thanks Warren and Rosie. I had seen posts in the past on our forum regarding a possible link between the two or that people with Ep *may* have more of a tendency to develope BP. But, from what you're...
Jaimes we have all been there at one time or another. Feel free to ramble away. That is what we are here for. There are plenty of us that understand and have been right where you are now. Not sure if...