yes, it sure is emotionally exhausting for sure! I have been through this with my son for over half his life now. His sister is 16 and had smaller seizures for about 1.5 years and they both had it...
It is so hard for a teen who wants to be in school and should not. Is there a way to talk to the neuro about her being in maybe one class or activity? This way she can still connect with kids and...
HI Elisabeth I am glad you found us here. Hoping that it helps you to share your story and read what others have been through as well.... Ginny...
Great work! Have a good week at school! G...
Great work tracy! got it! Looks great.....Keep up the good work! G...
(((Rosie))) I am so sorry that your brother passed away! Prayers for comfort and strength! Ginny...
HI Teri, I am sure she will check in soon. She has a 2 year old and just moved so sometimes life gets a bit hectic. I am sure she will come in soon. Ginny...
I am so sorry you had an accident! Yes, it sure is possible that the accident was caused by having a seizure. As Mandi said, ANYONE can have a seizure at any time. Many things can preceed a seizure...
Lucia, I am so sorry you have started having seizures and now the meds are so hard to adjust to! It sure can take a long to get used to them. You can ask the neuro if taking vitamin B 6 is safe to...
((Tracy))) Can bringing a cushion help some to ease the pain of the cyst? Sorry you have that flaring up, too!! Hang in there! G...
Glad you are feeling a bit better! Hang in there! Ginny...
Dammy, this med does have that affect on a lot of people. I just heard a neuro in conference last night, Dr Elizabeth Thiele talk about even adults using Vitamin B 6 along with Keppra. It has been...
Did you talk to the neuro? Hang in there and take care! Ginny...
Not a stupid question at all!! There are many that are nice looking, too. Medic alert is wonderful, we have them in our family. I have also tried the http://www.n-styleid.com/ N style iD< Sam has the...
I am so sorry the side effects are messing things up. YOu are right about the time to have things settle down........Keppra can be a tough one to adjust to I hear other folks say. I agree that...
Sounds like it is going around! Hoping tomorrow goes better for you! GInny...
Can you call your consultant now instead of waiting to see her next month? I think that is wise since this one seems different than your typical! I have heard neuros say that even the turning blue is...
(((tracy)))) Upping meds can sure make you feel bad. It could also be a viral thing as well. If you feel better talking to him at an appointment before upping that is probably ok. I think he wanted...
Lynn, can you talk to the neuro to see if you can go slower titrating up? It is really tough to try and function with the word finding is so difficult. I have that with my migraines and it can be...
Hoping your weekend goes well with all that homework!! Keep up the good work! Ginny...
DEEP breaths, Tracy!! Hope the tests go really well, Hang in there!! Ginny...
Yes, I would call the doctor, too. Sometimes fighting an infection can make you feel woozy, but so many things can as well. I would talk to the doctor who is treating the infection. I also ask the...
(((tracy))) Hoping the EEG can show what was going on. Glad the thumb is behaving itself a bit more, though! Sometimes doctors will raise meds more during the day if seizures are suspected more in...
WOw Tonya, he sure has a lot going on! Have htey tried an add on med to help him get better control? How is the home bound going for him, has it been a help? Hang in there! ginny...
Not stupid at all!! I am so sorry it is still going on. If you feel more comfortable, call your PCP and ask what he thinks you should do or what it might be! ((((Tracy)))))...
(((tracy))))) I am sorry it is continuing! Hoping the neuro can help you out! Ginny...
Sounds so frustrating! I have had muscle twitches like that are intermittent but not non stop. I would call the doctor tomorrow and see what he thinks. It could be stress. I sure hope it just stops...
Rose, I am so very sorry that you lost two children so young! It is hard to know if it could be seizures or not. I know that SIDs can run in families as well and there are just so many times it is...
I hope the Valproate will help control your seizures Graeme. Thanks for your input, as well! Sorry that the seizures continued past that first one!...
It becomes diseased by not working properly because of stones from what the surgeon told me. The liver takes over the job of hte gall bladder when this happens. Surgeon told hubby that it was clearly...
This caught my attention today since I just had mine removed 3 weeks ago. I have had different pains and attacks for over 16 years. In my case the ultra sound done in the ER after a severe attack in...
YOu can also call an EFA affiliate or the American Epilepsy Assoc for names of board certified neurologist. They do not always comment on whether they are good or bad. It is not that uncommon to have...
Yes, Tracy this was for you! I goofed yesterday thinking I pushed the post reply and hit NEW post.....sigh....blushing icon! Proud of you for keeping on this track! Keep up the great work! Ginny...
So good to hear that the first day went well!! Hoping it all goes well!! Ginny...
HI frank, So sorry that your son had a seizure. It can be a good thing when tests come out normal! Hoping the EEG shows if this is a one time event or something that needs treatment. ANYOne can have...
Tracy so glad you had fun!! You will do great! The first day is almost here! HUGS, GInny...
WOW Randy. YOu might find that heat therapy, moist like a microwave herbal pack or hot water bottle can relieve some pain as well. I do a lot of that and have been off arthritis meds since Vioxx was...
I hope you can get some good answers and help for this! Ginny...
Tracy! HAPPY BIRTHDAY!! Hoping you have a really special day tomorrow and a quiet one today!! Ginny...
There is a good picture of a rash that turned out to be benign, The girl was taken off the med but later reintroduced it much more slowly and was fine. There is also pictures of the VERY serious...
HI and welcome Jo! I am so sorry your little boy is going through this! Try not to be discouraged about the medicine just yet. It can take awhile to see what dose might work for him or if he needs...
I am sorry you needed blood work and the increase. It is good, though. He can tell how you are metabolizing the medication to see if you need more to be at theraputic level! Hang in there!! It is...
Tracy! I am so glad you got a puppy! they have a way of being such a good distraction and a good source for giggles....JOY is so important! Thinking of you as you finish up work and get ready to...
I am so sorry you are having such a rough go !!! I agree that talking to your neuro and asking him to be very clear is good!! My son has both left frontal and either temporal or parietal based...
Dam, I am so sorry.You have had a lot going on! It is hard to stay on meds that make you feel bad and make it hard to think/. Have you talked to your neuro to see if another med might be better on...
Tracy, I hope this school year is great for you!! It is wonderful you passed the Phlebotomy, EKG and CMA certs!! You will do well, I am sure!! One day at a time!! HUGS, Ginny...
So nice to see you Dave! Wonderful that you are doing ok and have 3 great kids! Welcome to this place! Ginny...
(((Tracy))) So glad that you will talk to your doctor about it if it does not clear soon. Mourning is so tough on your whole body, emotionally as well as physically! I hope you can rest extra and try...
Randy, Thanks so much for sharing what happened to you...I am sure others will be helped by knowing they are not alone with this! SO good that you were able to prove that it is not faking, but so...
HI Polly, nice to see you here! Hoping you feel welcome and helped in this community Ginny...