Okay long story...Kimmy had a bad month over a month ago. first a status with diastat and ride to E.R. on 9-5 then a status/cluster about 5 days later and amitted to give ativan and watch. Then,...
Thanks everyone, just needed someone who understands. Kimmy had a great weekend, we went with our "sunday School" sommunity group to a state park where there was a craft fair. We stayed all weekend...
Thanks Mandi Ann, you're a dear person. Always know the right thing to say. Huggs to you from me and Kimmy! Beth B. in TN...
Kimmy's having more seizure since back in school. They were "short" and the doctor was taking her off zonegran and starting lamictal. She's also on trileptal. So this week she started one lamictal at...
Hello, Just wanted to say congrats on the graduation. You are truely inspiring. I'm gonna tell my Kimmy that you have managed to get through and she can to. She's just back to school after missing...
Wow! so glad to hear your celebrating such milestones. I was just thinking 2 more years and Kimmy will graduate (knock on wood). She's doing okay right now. No seizures since April 3rd and she just...
As a mom, you didn't ruin the day. As a mom, you can tell someone your not feeling well. I would rather myself, say take a break with my daugther, maybe even a nap in the van. Don't be so hard on...
I don't look on here for a day or so and look what I miss. Prayers are with you and your neice. You have to be brave, cause she is gonna it to be. One day at a time. Please keep us informed. I feel...
I'm such a goofball. I was trying to thank you Mandiann. Hope you see this. Beth B. in TN...
Hey girl, there have been times this year, when it was you who had the perfect hings to say to Kimmy or myself. You are a strong, brave and wise lady. I'm so glad to have you, and so is Kimmy. You're...
Jan Marie, So glad to hear she's going to be taken great care of. Keep us informed. You're in our thoughts and prayers. Beth B. in TN mother to Kimberly , 15 yr old with seizures...
Thanks everyone. Mandiann you're a sweetheart. You too, Edith. C&C I have wondered about flor. lighting. When she is in school she seems to have more seizures than at home. She once has one after...
Ya'll do think I'm silly and overprotective. That's why I need your help. I won't think your flaming me if you say so. Just tell me what if any accomodations she may need. I don't know what I'm...
Okay, so now Kimmy is classified as other health impaired at school. Which means she has an IEP along with the 504. You may ask why did it take so long, but...she hasn't been in school hardly this...
Huggs, Sorry to hear and yet answers are good to have. Hope all goes better. Keep us informed. Beth B. in TN...
My only advice is to take it one day at a time. Which is hard, before and after you find out answers. Sometimes you get an answer and then have tons more questions. HUGGS to your family. Keep us...
Mandiann, you're the sweetest. They took her off the adderall, it was for ADD. She she's adjusting to several things right now. My MRI came back normal, I'm still getting headaches for some reason....
Thank you, for the fact that you give us hope. Green beans? hmmm! looking back, I'm gonna have to start keeping better notes on what she eats. That's one of the veggies she will eat. So glad to hear...
Well, I got the school to jumping now. After I sent a letter to her guidance conselor with copies to the head of homebound and health services and her principal. She has gotten tapes of spanish class...
Hey there, Sorry to here of all your problems. I have no experience but am trying to get the neuro to refer my daughter for one. So let me know how your's goes. I didn't ever think to relate lupus to...
Wowsers John, we're all wondering what Mandi asked. Give us some more info about you. We're worried. Please take good care of yourself. Beth B. in TN mom of teen with seizures...
Hello There! Hi, from a fellow mom. My 15 year old daughter has mostly complex partail seizures with some generalized and some simples. From my experience with her, Not being able to speak for quite...
Daisy, Take care of yourself girl. You're so worth it. As a mom, whose been through the ringer, I'm just sttarting to realize at 35 that if I don't take care of myself I can't take care of others. I...
Keep on keeping on. We're all proud of you. Everyone knows how you feel. This is the worst winter ever for Kimmy. This weather here is weird, hot one day, freezing the next. They uped her meds last...
Welcome babybear. My daughter has complex partial seizures. We wish you well. I'll be praying the disability goes through so you have options for help. Keep us informed. Beth B. in TN...
Went to Kimmy's PCP today, told him the neuro was freaking me out with the VNS suggestion when she's only tired 2 meds. Also, he's never run a liver enzyme. I asked if that was okay? He took blood...
Thanks Mandi Ann, I thought it was extreme but he was really talking it up to Kimmy. There's only one other neuro in town who takes peds and it takes months to get into see him. I might call a neuro...
Okay my friend who I talk to about once a month , who moved out of town and wroks for a ped neuro says Kimmy's doctor is crazy and should not do VNS, she has only tried 2 drugs. He says she been...
The neuro upped her trileptal to 1 300 in the morning and 2 at night along with her 1500 keppra twice a day. Also gave her 10 mg lexapro per day. Gave her info on VNS implant. Anyone have this. She...
carrabbas I can't spell sometimes. Like right should have been write. I guess I can't think and type at the same time sometimes....
Thanks for everything guys. MandiAnn, you so may be right on track with the anxiety. I was thinking that myself. She really notices every little thing at school and does get afraid. There are times...
Kimmy had a "hard" seizure yesterday at school. Okay I'll admit she has more in school than anywhere else and I don't know why. I had asked to school nurse to call her neuro, because these hard...
WOW! so you've been around the block so to speak. It is so different from this point of view though. I remember when my brother woke up paralyzed when he was 12. It turns out he had a tumor around...
/community/emoticons/sad.gif So, sorry , I do know how watching this is too. Way to hard. Hope Joe's better soon. Please let us know how the appointment goes....
Sorry to hear the seizure news. I'm looking for more control for my daughter. She had a "hard" four minute seizure at school today. I've heard great things about the EPIs. We don't even have one in...
Jennifer, I can't get my outlook to email you right. Anywho, I have had several people right messages of concern to the website. Again I don't know how the managers are trained but this local guy is...
I did tell him that the girls had seizure and the lighting was a possible trigger for one girl (my daughter) and lowered the threshold for both. I was just thinking today, how much eating a good...
I did email the corporate website. It took till today but I got a call from one of the cooowners of the restuarant. He was so apologetic. Wants me to bring the girls back on him and says most...
Thank you Sweetie. We could have left but that would have upset the girls, and I was afraid the stress would have triggered something. It was a no win situation for us. I was so mad. It would have...
Okay, long story. We have recently began to see that Kimmy has seizures if she's in a dimly lit situation, and then looks at a light that's on, like in a theater, restaurant or such. She had one in...
Kimmy and I had a good day at school. We had to have a meeting to let her come back from homebound. The homebound teacher mentioned off the record that she heard the homebound coordinator say that...
Tracy, I'm wishing you well. don't stress. You've worked hard and you can do this. you've got the heart to do this. You're in our thoughts and prayers. Beth B. in TN...
I have no advice just Hugs and prayers. As I understand it, prolonged seizures can cause damage. IS the doctor a neuro , PCP or cardio.? Just checking Beth B. in TN...
Hugs and love, during this time. You are appreciated for all you do. You are a loving caring person. THANKS! Beth B. in TN...
/community/emoticons/sad.gif So Sorry to hear what you're going thru. It sounds so familiar. My daughter Kimmy has been having quite a few. They are shorter since they added trileptal to her Keppra...
Kimmy had a long hard seizure the Tuesday afternoon right before Thanksgiving break. They gave diastat and transported to the emergency room. The neuro started her on trileptal in addition to her...
Keeping meds down is hard. Should I call her PCP or neuro for a suggestion?...
HUGS! I'm just a concerned mommie. Please take care of yourself dear. YOU ARE WORTH IT! I can only tell you you are loved. Put one alarm clock on your purse and one on your wrist. Another in your...
Hi Its me again. My 15 year old Kimmy was put on teileptal 300 mg 2x a day along with keppra 1500 mg 2 times a day. They added the trileptal last tuesday. Anywho, I think she is getting s touch of...
They put the meeting off till next Monday. So, I have a week to pray, think and inform myself. Thanks for the support! BUNCHES. Beth...