Hello Straydog, Thank you for the information and advice. Your responses are always appriciated. I called the epilepsy hotline the other night and they recommended another epilepsy site for support....
Hello everyone, It was recently suggested that I consider a combination of drugs to control my epilepsy. The idea of combination control is a little new and unfimiliar to me. Any advice or...
Hello straydog, I do ! I found out that the doctor has been on vacation ! I figured I'd give it to the next appointment to see if it changes before I say anything. I'm hoping it'll work itself out...
Hello Straydog, It's good running into you again. I'm finding out the hard way that sitting properly was never really adressed when I was younger and it's a hard habbit to break. You do find yourself...
Hello straydog, It's always a help to have you pass by. I almost brought it up at the last appointment and now that I didn't I really wish I had. I always hoped it would never come to a portal but at...
Hello everyone, I wanted to check in and say thank you for all your support! Your support has made things more bearable and the advice was greatly apriciated. Although the INTENSE 24 hr. pain is gone...
Hello everyone, Have you ever heard the saying two's a party and three's a crowd? I'm having one of those problems! My doctor and I communicate fine, but her nurse! I don't know what to do! I've yet...
Hello Sometimes i am me, I've been waiting to hear if you had any two - cents worth for me. As always it's good to hear from you again. I appriciate the fact that you took the time to type. I invite...
Hello Mercy&Grace, I want to thank you for taking the time to write. I reported to the doctor about it but I might have to have a proper talk about it with her as suggested. If nothing else I would...
Hello Pitmom, I'm sorry for not getting back sooner but it's still been very good hearing from you again! My couch is now sitting empty for the same reason. I never thought about the adjustable...
bliss is on sale at way fair w/free shipping...
Hello straydog, As always, it's good to have you cross my path again. LOL ! To answer your questions, I'll tell you exactly what I told the chiropractor. I don't know what happened! I don't believe...
Hello everyone, My introduction to pain is similar to the story found in Irritating back pain by Sydney Black. The chiropractor explained that even though he found some scoliosis and stage 2...
Hey Epilepsy, My VNS days are over but my phantom pain days are in . My phantom pain simply feels as if my device has gone off even though it is no longer in use . When it happened with a mild and...
Hello Bnot Afraid, I believe that was part of my problem with this last long day. Along with everything else my transportation recently changed so I was also unable to have my day out to lighten the...
Hello pitmom, Don't you just love the insurance game ! The morning after I spent the day considering a second insurance myself. I got very lucky, my new doctor is very good and trains very well....
hello getting by, I messed my joke up . the answer was to get to the other tide take care and stay safe...
Hello getting by, I want to thank you for reminding me that I'm not alone. I had a similar situation happen with one of my doctors a while ago but luckily I wound up with a better one. I want to wish...
Thank you both for responding, I want to thank Buena 76 for the few but many words. You've reminded me that I'm lucky to have these days as only a terrible reminder of how bad it is when dealt with...
Hey everybody, Have you ever had one of those days where you just think to yourself "I JUST WANT TO QUIT SEEING MY DOCTOR !" Know what I mean ? You put it off as long as you can because you know how...
Hello ForeverPositive, Your not alone ! The pandemic has had the same effect on me as well! It took reviewing some future goals and encouraging music to get me back on track. A couple of old and...
hello forever positive, I'm usually in epilepsy! I've looked here before but never had the nerve to type. Your not alone! I could be wrong but your situation in ways sounds similar to mine. I am...
Hello everyone , It's Goldengirl43 back seeking advice . While in an appointment I was recently asked how many years by my neurologist ! After having to take a minute to count I suddenly realized I...
Dear , guyNeedEncouragement, Thank you for the information on testing both arms and for informing me of the reputable sites . ( I will try to make both arms part of my daily routine and visit the...
Hello Lanie G I will reconsider leaving the well , I just wish I had a better knowledge of how to use the well to get its full benefit . I am still however finding myself electronically challenged ....
Dear , guyNeedEncouragement , you sound like you might be very good at reading between the lines ! ( I at times need and appreciate people being straightforward and honest in their communication with...
To those of you who have viewed , I hope it might have been helpful to you . Some of you were helpful to me without even knowing it because of your posts as well . To those of you I gave a response...
Hello straydog , Thanks for stopping by once again with more advice ! Please know that every little bit given is greatly appreciated ! I'm going to do my best to put it in to practice . A good change...
Hello straydog , I was hoping you might cross my path ! Thank you for your response and words of advice . I saw my doctor in January due to a day of pain after Xmas ! (I never have had much luck when...
Hello everyone , I'm in need of some good advice . any and all comments are welcome . I still don't know how to use the web well and I'm having a really hard time finding information on this topic ....
Hello everyone , I understood discomfort after surgery , periodically while the device was on , and phantom pains when all was said and done . However some new VNS discomfort leaves me in need of...
Hello Straydog , I was hoping you might drift by . I get the impression that you're one lucky dog to have around . You appear to be very street smart . Thank you for advising me on the proper course...
Hello HT ! Please know that your advice has not been forgotten . I just always thought the primary had to refer one . I don't really know what to do to get one! I just never thought it might be the...
Hello richh ! Aren't black Fridays the worst and the greatest ! With help I managed to get a Fitbit inspire HR online . I'm still learning how to get the most out of it so if you find a good alert...
Thanks HT I'll do my best!...
I wanted to thank straydog and theHTreturns for taking the time to reply . I appreciated the much needed words of advice and encouragement from them both . straydog I will try to remember your words...
Hello, I've got a couple of years on you in this game but you sound like your pretty close to me. when you start mentioning your relatives along with embarrassing them and the family name I feel for...
Hello! I'm dealing with rapid heartbeat issues. Out of love and concern I have been told (not to do anything!) They mean well but such thinking leaves me feeling worthless! It also leaves my life...
Hello 321Bill, Sorry it took me so long to reply, still learning the web. However it's funny you should mention that because the last time that I was monitored that was the only supplement that he...
I'm considering a device to help monitor my non epileptic and epileptic seizures . If you have any suggestions on one that you would recommend: be it watch , band , or bracelet . Please feel free to...
Hello! I am new to the forum and seeking advice on the proper environment for living independently as a non driver with epilepsy. Any advice or suggestions on the topic are welcome . Thank you for...
hey chychy, I think both your doctors may be right on target . I've found myself falling apart at the seams while doctors played with my pills trying to find the perfect combo and though you don't...
I use to wake up in an ambulance and tell the person with me he never should have picked me up and then ask him to just drop me off somewhere and start crying because I know that feeling all to well...
Do you remember when you started your meds you said sometime for the past few years for the blank stare . your taking a pretty intense drug always remember to look at the side effects they can give....
you sound a little like me when it comes to the seizures ! make sure your medic alert is updated and consider wearing a fall monitor while your alone and walking . I know its not as exciting but...
you need a new doctor ! the sooner the better ! I remember going to a neurologist with a good name and reputation behind him but letting him have as many years of my life as I did wasn't worth it ! I...
try Zinc and Selenium !...
Hello Crowderm, I recently spent time in a monitoring unit due to a change in my grandmals and the same thing happened to me. In my epileptic grandmals I always pass out but with these nonepileptic...