Taz, I'm glad you found this site. Many of us go through similar stuff, and the rigamarol of testing is one of the hardest parts of having seizures. Often times docs can't find a specific reason for...
I owned a cat for seven years who was able to pick up on when I would have a seizure. I think it was harder for me to pick up on her cues that I was in trouble, than what it was for her to pick up on...
Apparently this is a common problem. What I hate is when I come on here, and I can't remember which topics I've put a post on, so I don't remember to check back. I had a horrible time in school with...
I'm back on dilantin for another go around. I ended up in the ER again Sunday (good grief, it seems like I type 'I ended up in the ER again' an awful lot). I hate it, and I think I really would...
The lines are still open/ Anytime you want to talk, anything you was to talk about. It really is why we are all on this forum. Hang in there! I'm going through the SSI app for the first time now, and...
Beth, I think with kids it's always the hardest. I often wonder how my parents (or now just my dad) cope with what goes on with me. You sound like an incredible Mom, Beth. Switching meds is always a...
I'm glad I've stopped taking it. I feel the same way about seizures being like diabetes. I very much dislike being treated differently. You don't lose a job b/c you have a problem with your sugar...
Mandi, Yeah, it made me smile too. My brother and I went to the mall together to specifically pick out what we were going to wear, and the whole time we kept asking each other, "would this make Mom...
Thanks again, guys. I went yesterday to blow bubbles in the cemetary. My dad gave me a huge bottle that my mom had, and I figured that was the best thing to do with it. Another thing that was cool,...
Debbie, I've gone twice for monitoring. The second time I wasn't expecting it, it just happened b/c I'd had about three days of non-stop seizing and they couldn't figure out why. It was soooo...
Thanks guys I haven't come on here for awhile - just a lot going on with family being in town, and trying to make arrangements and stuff. /community/emoticons/sad.gif Everyone left Sunday, after the...
Just wanted to update you guys that my mom went home to be with the Lord on Sunday, August 27th. She died from complications with Leukemia, and my dad and I and one of my brothers were able to be...
I stopped taking it two days ago. I'm much more like my own self. I usually don't tolerate any meds well, even if it's Nyquil, so I wasn't too surprised I was miserable for the week. It's been a...
Yeah, dilantin's not going so well. It's making me lose coordination, so I'm walking around like I'm drunk again, and nauseaus and light-headed all the time. State disability went through, so I can...
Katie, That's why we're all here. Going through something alone makes it so much worse, b/c not only does no one else understand, but you don't really understand. Just b/c someone hasn't gone through...
I was a senior in high school and still taking the bus. Talk about embarrassing. I never explained why to anyone. But I did meet a girl who is now one of my best friends - pretty much my twin. We've...
Well, I officially lost my job yesterday. I had to call in, b/c I was really unsteady on my feet, and throwing up most of the am b/c of the dilantin they gave me at the ER. I called to talk to my...
I started having petit mals at age 11. I didn't know what they were until I was in college. They're more annoying than anything, not painful. Everybody feels a little different when they have them,...
Andrew, I didn't feel particularly sorry for the pigs either, and I'd gladly pass my epilepsy to the swine. You're right about it not mattering what religion you follow, people can be judemental...
syzygy Hey, just wanted to drop in a let you know you aren't alone. I think all of us have the times we want to crawl into a hole. The past two weeks have actually been like that with me. As cheesy...
Keppra's side effects with me were poor appetite, weight loss, and insomnia. I didn't take it long enough to find out if they would go away....
I ended up in the ER for most of yesterday - AGAIN! /community/emoticons/mad.gif Usually when I go, they pump me full of dilantin, along with giving valium and ativan to stop the seizures I'm having...
Oh, and it is the people filled with the holy spirit who speak in tongues, you can read about it in Acts. I think where people get the whole seizures = demonic possesion thing, is a parable (short...
LOL!!! /community/emoticons/tongue.gif This whole topic just makes me crack up - people's responses to seizures. My dad griped /community/emoticons/nono.gif at me about not having an ID bracelet, and...
Kenny, You don't sound horrible, you sound honest. Ending a relationship that's unhealthy is never a bad thing. STAYING in a relationship that's unhealthy, now that's bad. :) That's awesome about...
Yung, I'm glad it helped. Knowing you're not the only one who deals with something a certain way always helps. I know that's why I like coming to this forum....
I had my first seizure at work on Thursday. Mortifying, but everyone was really nice about . Too nice, actually, in that patronizing way. My heads been jerking a lot the past few days, and last night...
I frequently get seizures at night, with a very similar aura. Mandi's right; it's completely normal, albeit very scary. I hate the nausea drunk feeling most, and it's hard to stand up w/o feeling...
My BPM is always high, too. It'll go up to 140 b/f I'll black out during a seizure. Glucose has shown up high as well, with iron low. The docs are still trying to figure me out, too, so unfortunately...
Cured and MandiAnn, I apologize for the way my post sounded earlier, with the 'real man' statement. I was venting, and it wasn't appropriate, and I'm sorry. This has been a really bad week, and I've...
Jaimes, I just made the comment about prefering it to hit out of the blue, instead of knowing it's coming and dreading it. he pointed out that if it just hit, I'd get hurt a lot more, and end up in...
I got scheduled for an 8 hour shift Sunday, and was feeling really lousy. They asked for volunteers to go home, so of course I jumped on that. I was feeling better later on, so I went to the movies...
Kenny, I'm glad your sister responded that way, that must really help. On the dating issue - you made me smile. /community/emoticons/smile.gif I just ended a relationship with a guy who wanted to...
Cured, I don't know the answers for most of your questions, so hopefully someone else will come along and read, or you can get him in to see someone who will listen (which would be better, since none...
Thanks Babs! I didn't mean to blab so much on this site, but it really helps. I worked last night until 11 pm. I didn't think I'd make it that long, but it went really well, and a lot of people were...
Thanks, Mandi, you're so groovy! /community/emoticons/cool.gif Okay, that's totally lame, but I'm in a good mood, and my quirky humor is coming out. I was really worried about having to close...
Kenny Several of us have written the same thing. It's never easy to feel like you're burdening someone else. But remember, the people who care about you WANT to be able to help. I know my friends get...
Cured, Sorry things are so rough! /community/emoticons/sad.gif I don't know if the following will help, but here goes. Back in 2001, when I was 19, and before the docs knew I was having seizures, I...
I had my first day yesterday. Just a five hour shift, which was good, b/c I don't think I would have had the energy for anything longer. It felt really good though. A few frustrating moments with...
Babs, Finding out I have FD felt kind of the same way for me as finding out I was having seizures; it felt really good to have someone tell me what was wrong, at the same time it felt horrible to...
Babs Did you know that in one particular form of dysautonomia, symptoms can include seizures? Also included in both forms are panic attacks, anxiety, chronic pain/fibromyalgia, heart and lung...
Hey gang. I got a job! /community/emoticons/yeah.gif I spoke with my social worker on Friday, b/c I've been going nuts, being stuck at home the last two weeks, and he said that I can work while on...
Fen Did you read what RanMan wrote earlier in this forum? He gave me the same advice not too long ago. By law, your employer really does have to work with you to make sure that you are not in a...
Yung, I just moved from Georgia, and I know it was really hard for me to get any help while I lived there. After a really bad night, followed by a few really bad days in the hospital, I ended up...
Chrissy I know what you mean about feeling lost. I've known people through people that have had seizures (you know, where a friend tells you their brother has them or something), but before this...
Definately sucks. /community/emoticons/sad.gif Most of us are spazzes in one way or another . . . /community/emoticons/tongue.gif Just hang in there. You and your mom are in my thoughts and prayers....
I've found the best way to deal with embarrassing situations is to make a story that everyone can laugh WITH you at. 'Course, it helps if you can see my facial expressions while I'm telling it. . ....
Yes!!! I started taking Keppra just a few months ago, adding to the Lamictal I've been on for a few years. I got really anemic and started dropping weight (which made everyone pitch a fit at me b/c I...
To the teens: I knew something was 'wrong with me' when I was in Jr. High, but I never told anyone about it. I was over 21 (am now 24) when I was diagnosed with epilepsy, and didn't start having...
Jaimes, I wrote something on one of the other threads, but I want to repeat it, hoping that you'll read this. The first time I had a seizure that was witnessed (b/c I did the same thing as you, and...