I am very lucky I got epilepsy as child and my father and my childhood nuero ,who saw as a favor to his ex nurse never let me feel sorry for myself or live in fear of the next sz. Even when I lost...
Hi: Since you dislike the medical profession as much as I do I would suggest you look for something in alternative medicine. Like homeopathy, or nuerofeedbak to help you control your sz activity....
How do you care for you teeth and gums while taking AED that slowly destroy them. I use a electriv toothbrush I prefer Phillips I floss Than I use a water pik with warm water and hydrogen peroxide....
I use a water pik with hydrogen peroxide and warm water . It really helps strengthen the gums and clean the ' teeth after brushing and flossing. Dentists and hygenists have been able to see the...
You just sit in bed and wait for a sz to happen as they wean you off your meds. You can watch tv or read books or do puzzles. If you have a laptop bring that to the hospital to keep you busy. If your...
Yes and the Dr lowered my dosage. Speak to your Dr. Riva...
I had that done when I was part of the expirment for felbetol. I had to have that done every month and it does show szs activity as well as improvements. You have to hit the button when you think...
I am sorry for your loss. I am sure your mom will always be with you in spirit. Riva...
TabooCrime when I ran out of epilepsy meds I went looking at alternative medicine. I hope your wife finds the answer thru hormone treatment or alternative medicine wether it be diet, herbs,homepathy...
Britt: I had an awful experience like that on depkote and needed to get off it. I would suggest that you go and see your epilpetolgist and tell him/her whats going on. You may need migrane meds? O r...
Hi Cactus: When you have been on meds for a long time, sometimes your body gets use to them and than different types of szs start. That did happen to me on tegretol. Getting off tegretol and pheno...
Tegretol can go either way when dosage is raised, it can help you or it can end up causing more problems. I would go for a second opionion and see what other Drs have to say. Best of luck Riva...
I use to have nite sweats too, when I took mysoline and tegretol. I never understood why I had them? Riva...
Hi: On another board I met doggie Dr and he controlled the dogs szs with diet.He is really super nice and has alot of success with his dogs. HIs diet was a big success too. If you want more...
Have you had your meds checked? COuld be your meds are making you parnoid? Have you discussed this condition with any of your Drs? Your goal is to have a quaility of life not be hidden away. I would...
On tegretol, I ground my teeth, I had headaches,I was irratable and short tempered. Positive Person...
tazamall, you will have to search for a dr who will help you. wether its out of state or in your state. no its not normal to continue to feel that way. thou the adjustment to meds can be difficult....
Hi: You need to find yourself an epilpetolgist. And work with that Dr for awile ,until your diagnosis and meds are stable. Neither I or anyone else can tell you wether you have epilepsy. You will...
Hi Tazamall: Whenever a med makes me sick I am off to the acupuncturist or the homepathy Dr for help. Sometimes when the reg Drs can't help a good alternative Dr can help you. Right now I am being...
Call your dr,maybe your meds need to be adjusted. Wether it be an increase or a change of meds. It seems like its not working or not enough. Wishing you the best of luck and a sz free life Best...
I took keppra for my szs . Have your kidneys checked every 6 months. Watch out for keppra rage and keppra depression. Wishing you the best of luck on keppra. Your Dr should have advised you on the...
I also have absences szs ,I guess my attitude is they are easier to cope with than a grand mal. Since I have both. than can be regulated with meds. I don't think any of us fit into a nitch, all all...
I agree with Jenn,speak with your Dr and see if you can get a med change!!! I was on tegretol and became very aggressive and parnoid. A med change seems like the best choice why take a med to counter...
Hi: I would go with your gut feeling and for go any testing and tell your insurance provider why you were unconfortable with this Dr and ask to see someone else. They may want it in writing , but its...
Forgot how to correct, In Montreal they took me off myoline too fast and put me in absence status. I won't ever let DRS do that to me again. Riva...
This is third time I am going off mysoline in my life .I just dropped a 1/2 tab last nite. I have been sick from the mysoline for a few months now. The rash disappered but the side effects were...
Med withdrawel is the worst expereince I have had.I cannot begin to explain what I feel,cold,migrine left side from my eye up. Exhustion,nausea. Well at least I am not having absence szs. I feel so...
HI everyone, when I got epilepsy in school after lunch and lost my best friend.I was eleven years old My dad and my Dr. taught to have attitude.NOT FEAR!!!!!! TO THINK THAT I WAS AS GOOD IF NOT...
Hi: I agree with Mandy I got epilepsy when I was a 11 yrs old, the first year was the hardest.The next 23 yrs I was controlled,I travelled,dated ,moved from the states to Canada, had a...
Jscott: My belief is that my left side is weaker and fatter ,due to the fact I can't take the amount of meds I need. Since I never had this problem before 2001 when my vns inplant broke. It also may...
MANDI: My rash is gone and my Dr knows about my treatments with the Homepathy Dr. and the hope to reduce my meds. I live in Oregon, they are not as uptight as in the East Coast, where my Dr told I...
Hi: I have ran out of meds and I started to get a rash from the med I am on, so I went to a homepathy Dr and my rash disappeared . The memory I lost when I went into status starting coming back. I...
My vns disconnected because I was all meds and had a violent sz in the bathroom and broke the leeds in the bathroom. That was 4 yrs ago I have never had the leeds fixed. I have been undecided about...
I have epilepsy also ,I got it when I hit my head when I was 10 yrs old.I think I had absence szs before,but it went undectected. I now have epilepsy 39 yrs. Its been a long road. I now take mysoline...
Hi: I beat you by 9 years .I have epilepsy 39 yrs. I am allergic to dilantin. I am allergic to most meds. I am trying alternative medication right now.Thou I am still on Mysoline and Lyrcia. If the...
What kind of seizures do you have? What are your meds? How long have you had epilepsy? What kind of info are you looking for? We need info to compare our life experience to yours,to see if we can...
For the liver I take a herb its called milk thistle and if you got money go for a tune up with acupuncture. It will help you fight the side effects of a weakened kidney or liver from the meds.I have...
HI: I am adult 50 yrs old, the Dr never should have mixed zarontion with depkote. Thats a wrong mix. I had a Dr who once did that and it made me so sick I was 20 yrs old. We switched Drs and learned...
PS : My husband says I remember what suits me.lol My memory is really fine compared to nuerontin. I perfer lycria to nuerontion. positiveperson...
Lol : thats why I went off nuerontion, I felt drunk and non stop eating. With lycria I am not drunk ,I guess I just put back the weight I lost from lamictol. Plus it Christmas ,didn't help either....
I switched to lycria when I went off the lamictol, I put on 10 lbs. I take a low dose a very low dose. It from the family of nuerontion , I like it better than the nuerontion. Positive Person...
Hi: yes I lost weight and I was more alert and what was great about lamictol was you don't need it 3 times a day. You take it twice a day. I am just super sensitive to meds so who knows?...
Hi : I been taking primidone for almost 25 yrs. I have taken breaks which is not easy ,since it is a barbituate and hard to get off. I always had colorful dreams so I never really gave it a thought....
Does anyone have a thyroid and epilepsy problem as I do? My thyroid is underactive, the naturpath and acupuncturists said it was because I went toxic so many times. Maybe? Thats their theory and from...
I loved lamictol, while I was on it I was alert and lost weight. It gave me a rash. I was so disappointed. If you go on it start with a low dose. Increase lamictol slowly like once a month , you...
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