Verynervous I too was diagnosed with RTLS approx.37 years ago.I am now 39 and have had 2 brain surgeries to stop my serziures.My first TL surgery was in 1999,my second was just last June 8th,2011.I...
mktggurl, I hope I can shead some light into your question.I too take Keppra and I also take Topamax.I have had seizures off and on for about 30 years.I do know that with my seizures when I go into...
shadow1100, I've been on Dilantin for about 20 years now and about 10 years ago my level got very toxic as my PCP called it.That night I took a generic "Nyquil"and my level sky rocketed within...
MISTYGIRL my name is Michael and I have a VNS.I have had my VNS for about 4 years now and the only thing that I would get when mine turned on is a tingleing sensation in the back of my throat and my...
Hi RatFink138, I do have the VNS implant.I had it done about 3 years ago and between my brain surgery,and the VNS my seizures are MUCH better than they use to be.The VNS it's self is no big deal.At...
Hi everyone.As far as "triggers" go mine would be lack of sleep,and certain noises.I sleep with a fan and if I were to really concentrate on just the noise of the fan that would trigger a...
Hi Irene, My name is Michael and I had my right temproal lobe removed back in 1999 for my seizures as well.They didn't shave my whole head,just the area that they were gonna open up.The surgery it...
another day, There are other meds.out there if Keppra isn't or doesn't work for you.I've had seizures all my life,been on probably every medication out there,and today I am taken 1800mg...
mc39 as long as your seizures are "gone"then getting off your meds.is an option,BUT that is something you need to talk with your Neuro.about .I'm 34 and about 20 years ago I grew out of my seizures...
Hi Sarahbtsd, I to have TLE and have had it for 34 years.Before my temporal lobe surgery I had 3 children.Before I started a family my wife and I asked my Neuro.at the time what the odds where of one...
Carla, Hi,I also walk when I have a seizure.I didn't know that until about 2 years ago when I woke up in my daughters bed with a terrible head ache.I have also walked up to my kitchen and got...
TexasJen I have heard of the ketogenic diet.I've had seizures all my life and that diet was an option for me about 10 years ago and I did alot of research,I bought a tape about it and figured out...
dancingfool when I had my surgery back in 1999 I was off work for about 2-1/2 months.My left eye was completly shut for about 5 weeks of that.I had no function of my eye at all.My Neuro.said before...
Who else on this forum has the VNS???Are you having any sucsess with it?I've had mine in for about a year and a half and it seems to have helped alot.My next question is I've noticed since I got it...
Neurogurl, When I concentrate on a certain sound I usually have complex seizures.Yes it does alter my consciousness.I live by myself and have woken up in my little girls bed,I have woken up on the...
Every EEG I've had the flashing lights have never bothered me.All my EEG's come back normal.Really the only thing that bothers me is if I really consentrate on a sound for a while I will have a...
Hi everyone! I had my whole right temporal lobe removed back in 1999 to control my gran mal seizures.Back then I was 26 years old.I was a new father to a new little girl.Before the surgery I went in...