Hi Cignet, I'm so sorry hearing you've been going through all of this. Your symptoms and experiences with doctors sounds a lot like mine. I'm still searching for answers myself and very confused...
The supplements and foods here to avoid--What are these interacting with/are they in a category together? I have pretty bad neuropathy after DSF too; seems to be getting worse....
I am extremely sensitive to medication, especially psychiatric side effects. I am looking for information on alternative treatments to seizures whether it be herbs or some kind of other therapy...
Hi Garion, thank you for this info. I'm hoping to find an integrative practice that accepts insurance, but I will definitely reach out to them....
Hi all, I am looking for an LLMD in Washington, DC. Someone who is open to herbal protocols, but is still a credible doctor and can make diagnosis. I have a diagnosis for lyme, but recently moved out...
I'm so sorry; I hear you. I am by no means a doctor and would recommend speaking with a physician about this: you could try doing a neurotransmitter test through a company like sanesco and see if...
I have curcumin in capsules. I haven't noticed if it really makes a difference. Has it helped you?...
What are your go tos for pain? Preferably something natural/alternative (besides CBD or kratom). In so much pain right now :( Hands, feet, back, KNEES. Currently not on any treatment/protocol....
Still having some soreness and a little pain in my hands and feet. Not severe though...
Thank you. CBD oil seems to cause neuro symptoms for me :/...
Garzie this is an extremely helpful post. Thank you for taking the time to write this! What are your thoughts on whether or not the symptoms are lyme? (Since it is known to mirror many things)....
I'm unsure. My doctor orders the tests periodically. It is the igM band which keeps showing up and changes each time. Because it isn't concrete I get confused and doubt whether I am ill. But I still...
I stopped DSF about a week ago based on a new doctor's advice (causing neuropathy, burning, possibly messing with neurotransmitter levels). This week, I've started experiencing severely depressive...
The recent ones are all westerblot I believe. Would that be out of different labs? *edit: Oh, Labcorp! If that's what you mean....
With the difficulties of testing for lyme, does anyone have any thoughts on different bands showing up each time the test is taken? For example, (2018) I've had a positive borrelia IFA with a...
Hey all Anyone on disulfiram notice they feel emotionally numb? Low libido and overall lack of emotional feeling? Trying to figure out if this is an effect of the medication. I've noticed an increase...
I’m thinking this is also what’s been happening to me. I experience neurological issues from twitching, to dizziness, to seizures from CBD, also when I smell marijuana sometimes. I’ve had more of an...
Anyone have a sensitivity to CBD oil or marijuana? I seem to get bad neuro symptoms and twitching whenever I take CBD... Not sure if it's an allergy, sensitivity, or herx type of thing but I've...
So is there a way to know whether or not someone has lyme or something else with so much inconsistency in the testing? What is the determining factor that it's lyme? Sometimes I feel so discouraged...
I am still waiting to hear back from my doctor, but I can barely type my hands, fingers, and feet hurt so badly. I have no idea what is going on it all just started about two weeks ago on and off...
That's really interesting about the MCAS. I'll have to look into it some more. Unfortunately, I have a weird sensitivity to CBD....
What affordable lyme test do y'all think has the best accuracy/ reputation?...
Hello, has anyone had success with the ArminLabs blood tests for tracking improvements? Affordability? Elispot vs Tickplex? Thoughts compared to Igenix?...
Hi all, About 3 days ago, after I received a refill of my prescription, I started experiencing sharp pain in my hands and feet and awful joint pain (mostly in my knees) and a dull pain in the rest of...
Okay, amazing thank you! I enabled an email in my profile....
Thank you for this info! Luckily, my headaches went away with the onset of the joint and extremity pain....
Currently on 125 mg every 3 days, and last week started taking folate and benfotiamine to combat psychiatric side effects (helped). Four weeks into the disulfiram treatment (around two days ago) I...
Looking for LLMD and naturopath recommendations for the Washington DC area. Preferably one that addresses mutations (MTFRH/CBS), mold/heavy metal and is familiar with disulfiram (currently on...