Lori: This will be my third one.. had one 8 eight years ago. It was negative. Then I have one 3 year later..it said nerve damage or something like that. I can't remember..now re-doing test all over.....
YES. I GET MUSCLE TWITCHING... all over..face, legs, arms, and buttocks.. it may last for a day or 2 weeks and then disappear for a few months. I'm told that I have fibro, but having an EMG done next...
OH ...keep in mind that the nurse said muscle- your heart is a mucsle. I would probably followup with your doctor for more information. ((hugs)). I know for sure that cpk is something they test for-...
CPK TEST HAS SOMETHING TO DO WITH HEART. I USE TO GO TO THE ER FOR CHEST PAIN AND THE DOCS WOULD ALWAYS MENTION THAT MY CPK WAS NORMAL. THEY WOULD DO THAT TEST AFTER AN EKG AS A DOUBLE PRECAUTION. MY...
Breathe..thank God your Evoke and Emg was fine..thats good. Maybe it is MS because of the lesions on the brain, my doctor told me that lupus shows on the brain too. If it is MS people can be...
Hi Val, Sorry your going through hard times. May I ask what did the MRI show? What symptoms do you have that led to the testing? I hope all is well and you will get more answers soon. I know it can...
I want chargerable slippers. I'm sure someone has made them.. I'm going to goggle it.. My feet would really appreciate it:+)....
TO EVERYONE THAT REPLIED OR CAN RELATE TO MY POST- THANKS FOR YOUR WARM SUPPORT (((HUGS))). It really means a lot to me!! I often post on other boards to offer my support to them as well. It really...
Reddan.. your right fibro is a strange illness. I hope I'm just reading too much into all of it. Thanks for your support!...
Thanks Mamanan...I really appreciate your advice. Most doctors want to get a MRI done asap to rule out everything like MS etc.. I would get another opinion..I'm sorry your going thru this, because I...
Thanks Judy!!...
Thanks Diane.. I appreciate the words of encouragement.. it helps. But your tongue?and swallowing? :+) Thanks again!!!...
3 or 4 MRI'S..over 10 years..last one did- last week..absoulty normal..(clean as a whislte) my doctor words:+). so whats your dx? meds? thanks!!...
((HUGS)). I can relate to just about everything you said. I don't have MS, but have other health issues and its amazing how people look at me. So I don't explain it anymore. I come here and post or...
No she didn't say what muscle disease it could be (if its one at all) because muscle enzeymes (sp) test came back normal. But there are other test she wants to test..just to go the extra yard. And...
Hi.. Everyone I appreciate the support. I was not offended Afanna by your post (thanks). I'm looking for answers and opinions to help me help the docs figure this out. I appreciate your support too...
Hi all: I was dx with fibro (10 years). Then test positive ANA 1:640. Saw rheumy today..she went over every test with me..test i didn't know was even ordered and the test for lyme disease. All came...
Last week I was told my ANA was 1:640. So when I saw my doctor.. I asked her to run any test she could think of. She called tonight and said all blood work is normal. And for me to take 1000 grams(I...
I have tongue pain off and on..it more of a very sore feeling (ache) - not cuts. It would last for about 3-4 days then stop. I just tested positive for ANA..so following up with rhuemy tomorrow. I...
Thanks for your post- will do!!!...
Hi I have not been dx with lyme or lupus as of yet (appt. with rhumey tomorrow)- ANA positive and I have a lot issues that fit more under lyme than lupus (muscle twitches etc). I have been dx with...
no docs say I could stop.. five day scipt only. Thanks!...
Wow..thanks everyone for the support... I feel a lot better!! The meds I'm on are: motrin, cymbalta, prilocet,vistril and vitamins. I was given predinsone in the ER - took it for 5 days..didn't help...
Christine sorry that your having the issue with swallowing. I have some swallowing issues, but I have not been dx with MS. I try not to panic and relax. I was told that I have some leakage when...
Thanks Serina for all of your replies. I'M sorry to hear your going thru so much pain. I really hope you feel better soon. ((hugs))...
don't call him..focus on you and making your life better. Sometime success is the best payback. So be successful at functioning and accomplishing your goals. If he loves you he will call and call...
Hello..The kids did go to Grandma w/o me.. I actually wish they were here now;LOL. As far as alleriges.. it not allerigies but thanks for trying to sort this out with me. I really appreciate the...
THANKS IRISH AND BABE FOR YOUR KIND WORDS APPRECIATE IT....
Thanks Sherri: I feel like a fool for posting that msg. Yes, its probably fibro or whatever. I'm made a decision not to post like that again..so sorry.. I'm very embarrassed. I know its other things...
Thanks Cathy..I luv you guys.. I'm tryin to relax.. (mentally at least).. trying to enjoy the holiday if my throat let me. Enjoy your day!.....
I had a coworker who went thru all of what you mentioned. Now she has a baby!! God is good!! Your a good friend. Have a good holiday:+)...
Thank you and you do the same....
Sitting here thinking what should I do? Waiting on blood results for lupus and lyme. So I'm being treated.. I know it take time. Told its Fibro by my docs. I had MRI's and CT last week..all negative....
Any one know of a lyme doctor in Michigan? Thanks....
Hi I'm told that I don't hav MS..three neg MRI'S and other testing, But one night my insides were trembling..lasted for about 1 min or less. but I noticed it big time. Currently I'm Being tested for...
Ginny: I think she offered it because she saw the look of frustration and desperation on my face. She is my PCP and she told me that my ANA is significantly (1:64) high and to call the rheumy and...
Thanks so much for your kind reply....
Thanks Rhonda & Gretchen!((hugs))...
Thanks Ginny..actually I took the prednisone for a week (ER doc gave it to me).. I didn't feel better so asked could stop. My doctor offered me Penquil(sp?) the other day. I told her no.. I would...
Nannen -Are you still on plaquenil?...
Thanks everyone for the feedback.. I appreciate all of you!!...
Thanks Ginny: You are correct it is 1:64..sorry for misquote. I will try to relax. I really appreciate you taking the time to reply. I will keep you posted on my blood work..should come back early...
Thanks Jeannie! I remember I went to a neurologist (heard he was one of the good ones).. after several test (10 years ago) ...He told me that he didn't know what it was...but he knew what it wasn't:...
Thank you Sherrie, I guess it just hard to except..Fibro being this painful..my eyes hurt like crazy, scared I will go blind..but it clears up. Dizziness is crazy too. If you say you experience most...
Hello: I have posted on the lupus, Fibro, lyme and MS sites..because I'm lost. I have had issues with my muscles and joints and all the weird things in between since 1998. I was convinced that I had...