Hey everybody! Long time no talk to. I am using an old computer while mine's in the shop and this page was bookmarked. I thought of you guys often but could never remember the website. The good news...
I'm just popping in today to say hello - and saw this thread and just wanted to contribute that there is light at the end of the tunnel. My rheumatologist diagnosed me with "severe" fibromyalgia last...
Finally after one application and three appeals (the 3rd being the final one) Manulife accepted my disability claim and will be forwarding me a cheque. I was off work full-time for 3 months and...
Vestabula wrote: Geeez...maybe in my fibro mind of was thinking of elk. They both begin with an 'e'. HA HA HA! You're so hilarious! Made me think of other stuff you could get mixed up. Monkey and...
I'm totally with ya donnaeil! I live in Vancouver, Canada. You guys are the only country in the world not on the metric system so....a bit of a translation problem....but here it almost never goes...
Hey everyone - just checking back to see who's still around who might remember me. Not sure I can answer anyone's questions. Everyone's symptoms are different, of course, and many people have...
Hey it's been a long time since I've posted and wanted to say hi to everyone. I'm on leave from work for 3 weeks of continuing education. I've been working full-time again since May1st and it's going...
I'm finding with being back to work full-time I don't have time for my fun and interesting internet friends anymore. I'm afraid I won't be around much. i do hope to pop in from time to time. Good...
I guess everyone's insurance carrier is different so there's no standard answer to that. I think my sadness comes from the shock of realizing I have a serious condition. I figured it was mild so it...
Hi Marci, Lyrica has been a godsend to me too. I am supposed to take 75mg 3X/day. But my dr. advised me to take one in the morning and two at night, so I will feel more drowsy and fall asleep easier....
I saw my rheumatologist yesterday to talk to her about my stupid Insurance Carrier who has, for the 3rd time, denied my claim. I have worked 1/2 time through the worst of my condition - all last...
It can be a side-effect of codeine or other opiates. I had it a lot when I took T3s for pain. Drove me nuts!...
Good luck with your aspirations! :) As a published writer, my only advice is to get or become a great illustrator. Children's books are sold on the basis of the pictures, not the writing. Unless you...
Many say that meds like oxycontin or morphine or vicodin don't work well, if at all, on fibro pain. I take Lyrica + Tramadol (time-released) and it takes my pain to zero....
I wouldn't think that telling him how you feel should "hurt his feelings", depending on how you say it. If you can speak in I-statements only, then you would "own" your feelings and not be projecting...
Sometimes you have to start with a really low dose of these drugs and they do take a week or even two to work. I had to take 1/8th of a 10mg of amitriptylene for a while because even 1/4 made me feel...
At one point last fall I couldn't get up out of chairs past about 6 pm without leaning on a cane. Now I have new meds and I can do just about anything. Still a little stiff at night, but I can run...
Thanks, Austen. I finally saw that thread and responded. Your underlining of the Sacramento Bee is what threw me off!...
It's a great idea to try smaller doses, if pills can be cut. I began with 1/8th of a 10mg Amitriptylene because even 1/4 made me wiped out the next day. But now I'm up to the whole 10 mg and it...
I wasn't diagnosed with any of those things. That should have maybe been another question, to get more realistic results....
I have terrible foot pain (like extreme "sore feet") only since I got fibro. If I wore bad shoes I'm sure I'd suffer for days. The ice is probably making it worse. I'd suggest hot soaks instead. And...
I can't find the article you're talking about. Your link is to an editorial about doctors who don't believe it exists. Did you mean to post something that actually quotes these "doctors?" I also used...
I take time-released Tramadol (150mg once/day). It's WONDERFUL - especially in that I only need to take 1 pill every morning and then forget about it. It doesn't give me any side effects except...
I haven't gained any weight on Lyrica. I weigh about 55 kg. and I'm 5' 5". I don't have any special diet and I eat whatever I want. I do exercise daily however, as part of the fibro treatment. This...
Dagger - you're right about "withdrawal" - you can't just stop taking Tramadol. But I meant the PAIN was horrible without it that day. Feeling well and relatively pain-free has fooled me into...
I've been on Lyrica for a year now with no problems. You need to get the dosage right, though. I take 2 at bedtime and it does make me tired which is the point. I take 1 (75mg) in the morning with no...
Wow - what do you mean by saying you have "eaten fiber"? I also had chronic constipation with my meds (particularly Tramadol) and I take Metamucil 2X/day now and it's totally fine. I found Metamucil...
Exactly! It's good to see that drugs are being brought out specifically for fibro. So "they", particularly stupid doctors and even more stupid insurance companies cannot say there is no such thing as...
I can finally say it out loud and not worry about jinxing myself. When I was at the lowest of lows with fibro - last fall - I really thought my life was over. As in - all the hopes and dreams...
I walk/jog on the treadmill (that I got for free from Craig's list!) and I have Pilates DVDs. I love both and it's been a total answer to my fibro pain....
Oh...sorry....and btw - amitriptylene takes a while to get used to. But when you do, you won't necessarily gain any more weight and you might lose what you gained. At first I wanted to eat the dog...
I have had REALLY bad teeth pain, sinus pain, face/eye pain which all would come and go depending on what physical activity I did the day before. But if it were REALLY bad, then not only my neck/back...
5 mg of amitriptylene as a "low dose antidepressant" is really an understatement! Some people on here take 100 mg and it can be prescribed for depression at 300 mg, apparently. (I take it too, and...
I've recently taken to getting a relaxation massage on Thursday afternoons. VERY light pressure. It really has helped me relax and made my body much better after a week of Pilates and running on the...
I take both Lyrica and Amitriptylene - now up to 10mg at night. But I had to start with just 2.5 mg or I felt doped ALL DAY. But as I got used to it now I take one pill 4 hours before bed (at 6 pm)...
I have read all the replies, but wanted to respond to the OP. I'm so sorry that your doc made you cry with either his attitude or lack of medical response...that really sucks. The only advice I might...
Great to have someone competent, eh? I'll bet you start getting your energy back once you've got your pain under control!...
I have this problem even when I'm doing well. Especially in the mornings and evenings....
omg that's terrible. I'd be mad too. I'm so glad I live in Canada and can go to any doctor in the whole country that I choose and pay nothing. Hopefully your new president can do something to reform...
This is totally "normal". Sometimes my legs are so weak I need a cane to help me walk. Last December I was in a wheelchair for a shopping trip. I hope you feel better soon....
Yetch! My dad ate head cheese and tongue, too. But he died young - so that's reason enough for me not to....
cactus, what on earth are you talking about?...
Very cool. I'll spread the word on Facebook and Twitter....
My dad, who was a Presbyterian minister (he'd be 95 today if he'd lived) used to say that all pressed meats (like Chicken nuggets) were "Chicken lips and a**holes"....ha ha ha. So I still say that to...
Wow that sucks that you have symptoms of Menieres. I have it/had it, too - and unfortunately lost all the lower-decibel hearing in my left ear (10 yrs ago). Can't put the phone up to that ear and...
Hey Rich, It seems that everyone is different so all I can say is that for ME, getting the pain under control, and taking the amitriptylene for deep sleep made all the difference when it comes to...
When I was a vegetarian I used to order cheeseburgers with everything, hold the meat. LOL! It's really a nice cheese sandwich with lettuce, onions, tomato, pickles. Sometimes I'd order mushroom...
I've been disabled with it for over a year - but I have dragged myself to work half-time. A couple of bouts of not being able to work at all. Then, once I got the right meds and a good exercise...
lol Jeannie - so true. Your post made me think of people in 3rd world countries where water is not a human right but a commodity to be bought and sold by evil multi-national corporations. It's...
I would say "I'm sorry I can't make it today. I have a chronic nerve pain disorder, and sometimes the pain is just too much for me." That way, it's the truth, but there aren't any obvious follow-up...