I am still doing well coming off. Actually when I got down to the 30 mg. I opened the capsule and took out 1 bead, threw it away and then closed the capsule and took it. I stayed on that for 2 weeks....
It's been a while since I checked in and saw others have been there. Have been on every site there is and read hundreds of posts. As of today I have gotten off all my drugs except cymbalta. But, good...
Hi! I was a constant defender of drugs for my fibro. They helped in the beginning but 7 years in I was getting worse. I started weaning off all of them this past October...
Thanks so much to all of you for the advice and sharing your connections with this drug. I am still off the first 30 mg and it's been almost 2 weeks. I am hovering there as I need to wean off...
I hope this gets the attention of someone with some good advice. In the last 7 years I have been on cymbalta,lyrica,savella,morphine, Vicodin,oxycodone,fentanyl, ,zanaflex,gabapentin,Gralise and...
Sungirl OMG can I relate to your pain and state of mind! People will tell you all kinds of ways to cope, drugs to take, etc. but I found in my quest that you truly have to grieve -- sounds weird but...
Good morning! I started with gabapentin and then my doctor put me on Gralise-- which is time released gabapentin. I felt better. At one time the insurance company didn't want to pay so I went back on...
Gentle yoga. Good for the body and great for the mind/ body connection. It actually acts as a pain killer. Unfortunately it doesn't last all day! Try it! If you can't go to classes try yoga anytime...
Hi all, Since I posted this lots of things have happened. I did successfully get off the fentanyl patch! I wish I could say my pain is better-- but truth was I felt much better on it. But-- since...
I think I missed my mark probably because I talked too much! My point was that I found great relief from the fentanyl patch. I understand the great reluctance in the community to opioids. Here is how...
Hi all Ok I have not been around in a while. Last time was discussing the infusion therapy. I don't want to take anything away from it but I could not tolerate them. I was supposed to do 6 sessions...
Sleep number. Yes pricey in beginning but for 20+ years of service. And you can change to your changing needs for softer or firmer depending on pain levels! Love it. Had mine for 13 years so far....
Here's something I haven't heard anyone mention. I take Gralise. It is a time released form of gabapentin. I know it worked because I had to get off and go to regular gabapentin for about 6 months. I...
Thanks for your input. I actually talked to both of my doctors about serotonin syndrome. They said I should be ok since I have been on the drugs for a long time. It usually happens when you raise the...
Hi All I was scheduled for 6 lidocaine/ketamine IV infusions this past 2 weeks to treat my fibromyalgia symptoms. As my pain has really begun to ruin my quality of life I was willing to try it. I...
Yes yes and yes! You can sleep like a baby and still feel like you can't crawl out of bed. This is definitely a symptom. -- unfortunately. Hoping it's a good day!...
Hi I searched lidocaine infusion and came across your post. I am going to have my first infusion of either lidocaine or ketamine on Monday. I was happy to see your post. I am hoping so much for a...
Go to an orthopedic surgeon and have it xrayed It can't hurt...
Yes I had been on it for years and it was working for me. Then my insurance said they weren't paying for it anymore. They put me on gabapentin ---not working. Going to see if my doctor will talk to...
Have had hip pain for a long long time. Mine turned out to be that I needed a hip replacement. Have you seen an orthopedic surgeon? The other hip turned out to be bursitis which can be very painful...
I use the fentanyl patch for fibromyalgia among other things-- am on 62 mcg every 48 hours but have been on 75. I will probably have to go up again soon. I feel that it works for me also. It is...
Thanks for the support Karen--it's not usual that people understand when they hear you take narcotics for a pain condition that they don't understand....
I forgot to comment on the marijuana. Would love to try that. I live in Texas. Need I say more?...
Akamai Thanks for you response. I'm not sure what I am looking for-- maybe just that I am doing the right thing. Maybe seeing others who use narcotics makes me feel better. You know how the condition...
Shilohz Thanks for your reply. As I have read through more posts I have seen many more people on pain meds. Fibro is a confusing condition. I have read countless articles and postings etc about the...
We must both be very organized types. I have copies of my prescription list-- in every place I could think of-- even in my golf bag and in a Baggie taped to my refrigerator in case of an emergency...
Sherrie Thank you for your reply and the information and your concern. I did read the info. I have never had any of those symptoms and have been on the same drugs for a couple of years. I should have...
I don't know what to offer except I feel your pain. I open my mouth to comment on something and can't come up with the words I need. I can't remember things my husband tells me on a daily basis. One...
Hi all-- I am new to the group but old to fibro! Was finally diagnosed about 4 years ago after years of pain. I have pain everyday-- but definitely more on some days-- Feeling fluish,exhausted,pain...