Thanks for the link. I have an appt for Mayo Clinic in July. I will be seeing a rheumy doc and a GI doctor. I am anxious to hear what they have to say!...
My GI told me I have connected tissue disease. He explained it to me as having " symptoms of a lot of different syndromes". I actually don't remember if he said mixed connected or just connected...
Just curious if any of you have a dry, hacking cough. It seems to get worse in the evenings and when I lay down. My husbanc says is sounds like a smokers cough...I have never smoked! Sometimes my...
Just curious about the Fibro Center at Mayos. Which Mayo Clinic are you going to? I am going to the Mayo clinic in Minnesota for a second opinion for my fibro and IBS....
I read the side effects to the meds that are given, but they all seem to have the same undesirable effects. I am trying to go without Ultram ER (wow 2 days). I really want to find out which one is...
I remember reading awhile ago about some books that some of you recommended. They contained self help skills, diets, etc. I cannot remember which post it was under - does anyone else remember? or...
I am having a good day as far as the pain goes. Slept good (on Spring Break!!!). But I am tired - would love to go back to bed. How do you deal with this urge to just lay down all the time? I am so...
Thanks for the reminder. I have an appt next week....
Oops - I saw that one. Yikes - Thanks for all the help!...
I am on the puritan.com site. I am having a hard time finding magn and malic acid together in one pill. Or did I read it wrong and you take a pill for each?...
I'm glad the acupuncture worked for you. It's too bad insurance doesn't help with this bill. I did like laying there and relaxing during my one and only treatment. I think the practioner I went to is...
Sherrine - I read the Fibro 101 and you mentioned that if you begin to take these supplements that you will also need to take extra calcium. How much?...
danibm - thanks for sharing! I find all of the stories, questions, replies, etc on this forum are all valuable....
OK I am in tears after reading the last 2 posts. Don't really know how to explain it but thanks. I just talked to the pharmicist and concluded that it could be the Ultram ER that is really making me...
Another reason I decided to try it was because my rheumy was talkig about adding Lyrica to my meds. I just was afraid..one more pill and I'm already sick to my stomach from the others. Now I can't...
This is what I was afraid of...lots of money spent but nothing to show for it. I'm just confused as to what to try and what to do and what to think. Thanks for replying!...
I went to a new chiropracter and he specializes in acupuncture. He wants to try and heal my problems by helping my body heal them instead of allowing the pain medication to 'mask' my symptoms. I am...
First of all I want to thank all of you who write and who respond. It definetly has helped me deal with the fibro. I don't usually write but I do read and learn from you all! My question is about the...
Thanks all! I am unusually tired and took Monday off of work. At least the dizziness and nausea stuff is managable. I didn't take my ultram on Saturday and Sunday so that could have explained the...
Wow! I have been having night sweats since the age of 33, my gyno keeps telling me its too early for menopause. Five years later, I still have the night sweats and have added hot flashes. The last...
I am having all my regular symptoms..actually they are little more intense but I am also running a low grade temp. How do you differentiate between fibro and the flu if you don't throw up?? Help!?!...
Thanks Aliza, I am overdue for my GI appt. I never thought of that. Thanks...
Wow! You all are wonderful! Thank you for all the advice - glad I found this site... I will be calling the doctor tomorrow and have a chat with the nurse. Now I am off to read Fibro 101. Did I...
I am a newbie...YEAH ME!!?!! I am also new to fibromyalgia - heck I don't even know if I spelled it right. I was finally given the sentence in October and told to exercise, exercise, exercise with a...
I really appreciate all the information - I have learned so much from the posts. I am really unsure as to why the Entocort was stopped. I wasn't a very good listener with my GI b/c he talked above me...
Still new to all of this.... Anyway my GI said I have spastic colitis and IBS. I was on Entocort for 3 months, he discontinued that. I have Bentylll to use as needed which works wonders. 2...
I am currently not on Entocort - went off June 2. There was really not difference between how I felt these last 3months on it and then this month off of it. I am anxious to see what this month brings...
I am new to all of this so I will not be able to answer your question very well...however the only drug I have been on is Entocort. I was taking it for 3 months per GI's instructions(3 pills in the...
Jan....thank you so much for the websites. I am going to do some reading!!!! Thanks again!...
I tested postive for HLA-B27 - anyone else have this along with colitis?? Just curious, don't have a follow up with rheumy for awhile. I do go get a second opinion from a GI on Monday. Any help would...
For now my rheumy told me to take Tylenol Arthritis - it helps some. Sorry I don't have anything more to tell you, hopefully i will know more at my next appt. I hope you do reconsider and see another...
Angel,I am very,very new to all of this. My GI sent me to a rheumy b/c I kept complaining of joint pain. The doc tested me for a load of stuff, I did get a positive on a type of arthritis associated...
The nurse just called me and said my blood work came back as "inflammortary Bowel Disease associated with arthritis". She said the doc will explain more at my next appt. My next appt is in 3 months!...
Sorry - I just had to ask!!! I don't if I am overanalyzing or if I have forgotten....
Thanks - my questions were just to clarify if my flare ups were flare ups.. so my questions were answered in both of your posts. I think I wanted just to hear a response - I must be desperate!!! I...
Wow - this is my second post and I haven't even been a member for 24 hours. I have been reading and reading about UC here and you are all so honest and helpful. I must have a very mild but irritating...
I live 2 hours outside of Chicago in the cornfields. If you can keep me updated I would appreciate it. I do have appt with a new general practioner soon and I am going to ask him the same thing....
Thank you for the info. I was having the achey joint pain even on the Entocort...that was another reason my GI took me off of that med. Is it normal for this type of discomfort? I am thinking you are...
congrats on your great news! I noticed you are from IL as am I and I teach Kdg. Any suggestions on how to get a second opinion from a 'good' GI? Is there a number or website to call to get that info?...
First I want to say I have learned so much from reading your posts. Thanks!!! I was diagnosed March 08 with colitis - from your posts I now know I must have the UC type - doctor never said. All he...